posted
I am finally starting on IV Glutathione towards the end of the week or early next week.
I have been trying to once again do a search on this product and have not been successful.
I do recall that at one of the conferences it was mentioned that patients were having good results with this product.
I am trying to find out how it helps, what to expect, how it has helped others, how long were you on it, etc.
Posts: 89 | From AZ | Registered: Mar 2006
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posted
Happy Camper, I hope glutathione makes you as "happy" as it has me. It has been a literal life saver since I started it a year ago. I get 3 iv's each week, 2000 mg each time. Once each week, it is combined with 5 g magnesium.
For info on glutathione, you could check the Wellness Pharmacy website, where I get my product. YOu may wish to google and find research by Rich Van Konyenenburg (if I spelled it wrong, try Konynenburg or some variation). He has some incredible info on it.
It is being used for CFS/FMS/MCS, for parkinsons, lou gehrigs, autism, and other brain disorders.
I have a prescription and after instruction by the nurse, do my own iv's, push it in a 30 cc syringe using a butterfly needle. Squeemish at first, but liked living enough to learn. Ha.
Insurance is even paying for the glutathoine at this point. Shhh. Don't tell anyone.
Blessings. I will check back in case I left out anything important. Jen902
Posts: 23 | From USA | Registered: Feb 2006
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Thanks Jen. This is good to hear. Thanks for the info on who to google also. I will do this.
Posts: 89 | From AZ | Registered: Mar 2006
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I have been getting glutathione intravenously for about 10 months. I try to go weekly, but probably average 2-3 times a month. I have gotten other things along with the glutathione (mainly vit C and magnesium, as well as lipid exchange) but I think the glutathione has helped clear my head and helped manage significant neurotoxicity. I feel a lot of pressure in my head when I am getting the IV, and then I feel really really heavy and tired the rest of the day.
Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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Thanks for taking the time to reply Doc Jen. I have pressure in my head at times...most of the time...so it will be interesting to see how the glutathione effects me. I start Monday.
Posts: 89 | From AZ | Registered: Mar 2006
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kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
Don't want to sound negative, but I did not respond well to IV glutathione. I was warned that it may make me feel whoozy, but it didn't. I had a herx for a few days. I have had friends also experience a herx after glutathione treatments. So just be forwarned.
Hope you have good effects from the treatment! Karen
Posts: 1711 | From Maine | Registered: Jun 2004
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Jen902 and docjen, I'm wondering how many treatments you had before you began to feel that it was helpful? Was it immediate or did it take a while? Thanks, Nancy
Posts: 688 | From Florida | Registered: Aug 2001
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posted
It's kind of hard to tell because I have never had infusions of just glutathione. I also have them in combination with other things, like Vit C. It has been a long road, and slow improvement, but I do think the infusions have helped boost the effectiveness of the antibiotics. I do notice a herx the evening after an infusion, and sometimes the next day or 2, and then I feel better.
Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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posted
I was very sick when I started the glutathione, so my memory isn't very clear. I think I had immediately more energy, but I had headaches at first.
Some people can't tolerate glutathione. Rich Van Konynenburg has written some articles about some who may have problems in their detoxification systems further up the chain--like in their methylation or sulfuration processes. I know of one person who is sensitive to sulfur foods and supplements--garlic, onions, cauliflower, MSM, SAM-e, etc. She doesn't tolerate glutathione, whicih is a sulfur based molecule.
I don't really think I herxed, but don't know to what to attribute the headaches. Also, if I didn't mention it earlier, I got glutathione from a cheaper pharmacy and it gave me really bad headaches, rather than just an annoyance of a headache. Blessings. Jen902
Posts: 23 | From USA | Registered: Feb 2006
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
I did it for a few months IV at the highest dose my LLMD would give and had no appreciable progress. I've heard it's hit or miss from other Lymies.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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