Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Im so frustrated. I told my LMD about the all over body skin burning pain. HE said he personaly hasn't seen it very often but is sure it exists.
I thought this was a pretty common symptom? Am I wrong? It scares me. I hate this symptom more than anything!! Right now even my scalp, mouth, tongue--everything that has skin on it is burning.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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posted
yes. i had this, will probably get it again. whole areas of the body burning.
e.g.: turning and stepping out of small car, the thoracic area of front of my torso would suddenly burn, come on in wave form.
often times deltoid muscles would burn.
just two examples.
my partial interpretation: nervous syst. affected directly and indirectly by Bb. Bb sets off metalloproteinases that in turn digest connective tissue.(see mark Klempner, m.d.study).
Posts: 2708 | Registered: Feb 2005
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posted
I have had this for years. Mine ususally migrates. Mine also feels like a traveling fever. So for me it's VERY common and have had Lyme for a long time. Finally being properly treated.
Posts: 298 | From los angeles | Registered: Mar 2006
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Jill E.
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Member # 9121
posted
I've had total body burning, continuously, for nearly four years. It was one of my first Lyme symptoms, started in the feet then spread nearly everywhere.
Treatment has reduced it in certain areas but LLMD and I have been having a hard time getting it reduced. That's why I recently started intramuscular antibiotics, because I only got so far on the orals.
From everything I've read, burning is very common with Lyme. It's usually small fiber peripheral neuropathy (at least in my case, we think it's the nerves and feels very deep within me, but also gives a feeling of skin burning, especially worsened if I'm in the sun).
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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lymeHerx001
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posted
bullsh*t
Posts: 2905 | From New England | Registered: Sep 2004
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
quote:Originally posted by lymeHerx001: bullsh*t
On what? That its not a common symptom? I guess what he was really trying to explain to me was that it was not a common symptom he had seen in his practice. However, he did tell me that one of his patients experienced it while on therapy.
I like my LMD-he has the illness as well but sometimes I wonder if we are the best match. I wish I knew someone here in CO that treated besides him.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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TheCrimeOfLyme
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Member # 4019
posted
I had this. YOu couldnt touch me. Sheets couldnt touch me.
Bartonella was the cause at least for me, and rifampin took care of it ( after it made it alot worse)
I hope this helps at least some.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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Andie333
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Member # 7370
posted
Like crime, I also had this burning sensation on several areas of my body.
I started taking rifampin for bartonella in early January and already that symptom has diminished a lot. I do still get this occasionally in my right knee, but it's not as severe as it used to be.
Hope this helps.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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Nal
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posted
Yeah, I have tested positive for Bart and I truely feel we need to start treating it again. My LMD though believes in treating Lyme first and then co-infections. I no longer agree with that.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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lymeHerx001
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posted
The reason I said it was bull is because Ive had this so bad and so often.
I had this 2 days ago, thought it was a herx but it turned out that it was a flare and some more doxy took care of it.
I get it bad on my feet, like sunburn, my hands my legs,,all over.
I used to get this when I was in high school diagnosed with CFIDS and firbro.
The fn ducks didnt think anything of it. They gave me some antidepressants and alleve.
It just ****es me off that people dont think anything of it.
ITS SUCH A DIBILITATING AND DEPRESSING SYMPTOM
my LLMD said it was a symptom of lyme a classic one.
Muscle relaxers worked a little but nothing long term.
Cant eat sugar at all, this makes me burn in pain big time.
Used to eat loads of sugar and drink soda after soda. I balloned up to 250 lbs as a teen.
Didnt know that the sugar was bad for me then. I was a gluttun for punishment.
Some very deep and bitter emotions here. Posts: 2905 | From New England | Registered: Sep 2004
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Nal
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Member # 6801
posted
Ive tried cutting out sugar and never, ever noticed a difference. This symptom isnt there ever single day. In fact I went several months with not having it at all and no change in diet.
I have to think its from the Bart and/or Lyme. This symptom though, always drives me to the edge. Im crying even today in pain.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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I also get what feels like a warm patch(not burning)that migrates to different areas and happens a few times each day.
Lately it's been in my lower leg near my ankle, lasts a few minutes then goes away.
But I've also had it near my right eye, on my lower arm, upper arm, other places I can't remember right now. Brain fog.
For me, it feels like a deep warmth, not burning and doesn't hurt. Except for my scalp, which can hurt like the dickens.
Posts: 366 | From MA | Registered: Apr 2006
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tabbytamer
Frequent Contributor (1K+ posts)
Member # 3159
posted
When I first started abx, after a couple of months, it seemed like my skin was on fire.
When I told my LLMD he told me to get Pau D' Arco from the health food store. I think I took one twice a day--can't remember what he told me to do.
Anyway, it helped within a couple of days.
So, I wonder if it was a yeast thing in my case? I never did find out why he suggested the Pau D' Arco or what it was used for.
It wasn't the burning pain that would come with Lyme. It felt more 'on the surface' of my skin.
posted
I developed the skin burning 2 days ago. Other than that, my knees have been aching for a month& dizziness for a month - can anyone giage if this is still early disseminated Lyme by those symptoms?
-------------------- ~Erin Posts: 58 | From SE PA | Registered: May 2006
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Carol in PA
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posted
Nal, I just read about a folk remedy for this. One woman who was using Vicks Vaporub to treat her toenail fungus also tried rubbing it on her feet, which had a burning neuropathy type of pain.
It reduced the burning pain.
Just an idea, but I doubt you'd want to use Vicks over your entire body. (Eyes watering just thinking of that)
Carol
Posts: 6956 | From Lancaster, PA | Registered: Feb 2004
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
quote:Originally posted by Carol in PA: Nal, I just read about a folk remedy for this. One woman who was using Vicks Vaporub to treat her toenail fungus also tried rubbing it on her feet, which had a burning neuropathy type of pain.
It reduced the burning pain.
Just an idea, but I doubt you'd want to use Vicks over your entire body. (Eyes watering just thinking of that)
Carol
I doubt my hubby would even get close to me then if I put it all over my body LOL I have tried the vicks before on small areas. Didn't really notice a difference. Thanks anyway!!
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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I have tried the vicks before on small areas. Didn't really notice a difference. Thanks anyway!!
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