cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
I just cannot tell the difference between yeast and lyme. All i know is every since i went back on abx my private area is so irritated and sore.
i mean its usually a bit sore to begin with....but it seems like its getting worse by the hour.
Dr cant help, have no clue...
Ive tried the diet and now i cannot stomach any protein...i gag eating it. i became allergic to eggs.
Today, i couldnt even walk its that bad down there. Ive been like this before and had to treat the yeast....
BUT is it all the yeast.....or could some of it be the lyme.
Its only my pelvic area, i dont have any other symptoms, but hair loss and weight loss.
so symptoms are, hair loss weight loss IC (bleeding bladder)
its all in my private area...and gets worse with abx.......1,000 times worse.
Im crying tonite, ive been so strong, but this hurts way more then my bladder surgery did....way more.
I never ever had a yeast problem while on abx in the past.
Im so sad, my life is just passing by....I cannot walk , im a scarecrow..
thanks for listening.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Prayers to you my friend. I will always be there for you.
Posts: 719 | From Delaware | Registered: Jan 2006
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Here is what I am trying for yeast. I am on Diflucan and that isn't really helping....but I ma staying on it for Lyme.
So I have added : garlic caps from Biopure 2 -3 x a day 1 cup of Pau d'arco tea ... will work up to three 2 caps of Capryl 2 x a day with food. No sugaar, flour,pasta, yada,yada .... clean diet Kefir in my morning protein shake and some more at night Theralac and Metagenics probiotic and Acidophilus pearls --- 1 each a day.
Eat cultured foods: kefir, real coleslaw.... look up gigi's receipe on here. Also gogle search cultured foods. They have way more active culture than the pills.
Hope this helps.
robi
-------------------- Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy' Posts: 2503 | From here | Registered: Apr 2004
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posted
I'm so sorry about what you are suffering through.
I'm using Nystatin to quell the yeast while on ABX, and I take Jarrow probiotics in the morning on an empty stomach. Also, candida diet. Sounds like you need much more than that.
Robi's given you some great ideas. They should help a lot.
In the meantime, you need to help the pain right away. Is there something topical you can use to ease the irritation? I wonder if there is something you can get over-the-counter for immediate relief? Ask your pharmacist.
There is something I've used called "Comfort" by Bezwecken, from my ND, for vaginal dryness... like dry as the desert in summer, and painful, and irritated. It has cocoa butter, bees wax, and Vitamin E in it, and it has helped a lot. Not sure if it would help your situation.
How could your doctor have no clue??? Is he/she the right doc for you?
If this hurts more than your bladder surgery, are you sure that it's all a yeast problem? Maybe you should get in to see a gynecologist.
I'm worried about your weight, too. A scarecrow needs some love and care to gain the strength to go through this. Is there another doctor in the neighborhood who can actually help you?
Hugs and prayers, Hopeful4
Posts: 873 | From WA | Registered: Dec 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thanks robi- i have started taking an immune booster, and lots of probiotics...along with azo yeast fighter, and nystatin.
this seems to hurt more when i walk or when i sit...if im lying in bed i have mild iritation.
Hopeful, im so sore, i cant get a gyn exam...i tried to have them do one while i was out, but they wouldnt....only took yeast cultures. i could very well have an infection although, not sure why it would flare with abx. but the infection could be causing the yeast.
maybe i will double up on percocet and get the exam next visit.
I do get dry down there too, like i am now.
Im going to call a dr tomorrow that treats the cause of the problem and not symptoms...they have a more integrative approach. I checked out their website and they test for a bunch of things.
My butt cheeks are also hurting my NP said that could be from my bladder. She seems to think a lot is from my bladder......i just dont know.
im stopping abx....i just cant deal with what they do to me.
no onelse seems to have these problems with abx.....its just beyond frustrating. all my life i never ever had problems with yeast. i dont get it.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
cant,
has anyone thought of this?
What is Vulvodynia? The International Society for the Study of Vulvovaginal Disease (ISSVD) defines vulvodynia as chronic vulvar discomfort or pain, characterized by burning, stinging, irritation or rawness of the
female genitalia when there is no infection or skin diseases of the vulva or vagina that could cause these symptoms. Burning sensations are the most common, but vulvodynia pain is highly individualized.
The condition varies in persistence and location. Pain may be constant or intermittent, localized or diffuse. In many cases of vulvodynia, pain occurs spontaneously.
Vulvar vestibulitis, one type of vulvodynia, refers to pain experienced primarily when pressure is applied to the vestibule, the area surrounding the entrance to the vagina.
Vulvodynia, as with most chronic pain conditions, has a profound impact on quality of life. It often affects one's ability to engage in sexual activity and can interfere with daily functioning. It can impair one's ability to work, engage in physical activity, and participate in a social life. These limitations can negatively affect self-image and may sometimes lead to depression.
Who Suffers?
* Vulvodynia affects females of all age groups, from adolescence through menopause. * Preliminary data indicates that as many as 16% of women experience chronic vulvar symptoms over the course of their lives (Harlow, 2003).
What Causes Vulvodynia? The causes of Vulvodynia are currently unknown, largely due to the lack of research on the disorder in the past years. Current research is looking into factors associated with the development of vulvodynia and potential causes. Medical professionals speculate that causes of the condition may be due to any of the following:
* an injury to, or irritation of, the nerves that innervate the vulva * an abnormal response of different cells in the vulva to environmental factors (such as infection or trauma) * genetic factors associated with susceptibility to chronic vestibular inflammation * a localized hypersensitivity to candida (yeast) * spasms of the muscles that support the pelvic organs
There is no evidence that vulvodynia is caused by an active infection and it is not a sexually transmitted disease.
Diagnosis and Treatment A woman with vulvodynia typically sees at least five doctors before she is given a correct diagnosis.
Vulvodynia is diagnosed when other causes of vulvar pain, such as active yeast infection, herpes, skin disorders, and other bacterial infections are ruled out. Upon examination, the vulvar tissue may appear inflamed and swollen or it may look perfectly normal.
There was another poster on here, that I am thinking of ( female) who had a problem very very similiar to you and it got MUCH worse on abx. I can direct her to you or contact her if I can find her? She had this problem..
Lemme know if ya need her name or if I should contact her.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hi Crime- i do have vulvar vestibulitis.. and i have cream i use for that and for the most part i thought it was under control.
i think i do remember the post from the woman with similar problem. i think i may have emailed her too....i will have to check.
its just so hard to tell, what is bladder ...everything is so close together and with my urethra and bladder neck inflamed too...forget it.
so far since november i have been diagnosed with 3 chronic illnesses.....and probably will be given the chronic yeast diagnosis real soon.
thanks crime for bringing my attention back to these conditions....i kinda overlooked them a bit since they werent bothering me....it could very well be what is going on. maybe the yeast flair from abx too.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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tabbytamer
Frequent Contributor (1K+ posts)
Member # 3159
posted
Lichen sclerosis is another possibility (has been associated with Lyme disease):
luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Cant,
I'm soooo sorry you are hurting so bad! I'm saying a prayer for you right now.
Even though I have systemic yeast, I have not had it anywhere near the level you describe, so what I am about to share may not be as effective for you, but it can't hurt you to try.
Take a raw clove of garlic, wrap it in a long piece of gauze and allow a trail of the gauze to act as a string just like on a tampon. Now, put it in the same place you insert a tampon. Do this for 3 nights.
I only did it at night while I slept because that string hanging down gets pretty nasty after a couple of trips to the bathroom. However, on the nights I used it, I slept like a baby and the vaginal rash (remember not as bad as yours) cleared right up.
I was told not to do this more than 3 nights. Perhaps you could do it 3 nights each week?
It can't hurt and may be just the push over the edge you need. Do it in conjunction with everything else.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
Hi CGUYet, I'm so sorry you're going through this. I know how bad it can be.
A year ago I got redness, swelling, burning so bad I counld barely walk. I couldn't believe yeast could cause such severe pain but it did. There was so much swelling that the normal folds around the vagina swelled into bright red alien blobs, It looked like some extreme, dread disease so I had my PCP look at it. She confirmed yeast could do that.
Here's what worked for me. Monistat 3 day (actually CVS brand) with vulvar cream. I used the vulvar cream morning & night. It burned but seemed to help.
In order to keep the yeast from coming back I had to cut out all (I mean all) grains & sugars. If I had even a little bit of fruit, bread, flour I would get discharge and feel burning right away. That was enough to make me stick to the diet. I ate lots of salads, green vegetables,nuts (my survival food) & beans along with meat and eggs. I could tolerate a little white rice a few times a week.
After I discovered theralac (www.theralac.com) I was able to introduce more foods back into my diet. Condidering how bad you feel right now I would suggest trying the strict diet for at least a few weeks (if not longer) and get some heavy duty probiotics. I took theralac every night for 3 months. Now I alternate it with Primadophilus Reuteri and take one Primal Defense at lunchtime.
Once I got serious about the diet the extreme swelling went away quickly. (of course it felt slow at the time). I did tend to be redder than usual for a long time but now after a year am more normal than I thought I could be. hats
Posts: 956 | From MA | Registered: Nov 2004
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I think we pm'd a while back about the vv and vulvodynia aspect of all this. I'm so sorry you're doing so terribly.
Feel free to pm me, bc I have tons of ideas for yeast.
Try: OrthoMolecular Products Caprin 2 capsules 2x/day OrthoMolecular Uva Ursi 2 Capsules 2x/day Argentyn 23 (colloidal silver), can take by mouth on empty stomach, or use vaginally w/ syringe, or use cut in 1/2 with diluted water in a spray on the vulva. I use it all three ways--it's a natural anti-fungal and anti-bacterial.
I also take Nizerol 2x/day (although it's a liver toxin and you have to monitor through bloodwork every few weeks), and do a candida diet. I make yogurt smoothies w/ plain yogurt (Stonyfield farm), splenda and fresh blueberries--that will get a ton of live cultures in you quickly, and it tastes great.
The thing that works the best for me is the argentyn 23. It's a miracle worker. Google it--there is one site (dont' have it w/ me) where you can get it w/o ordering it through an MD.
I also use lacto-bacillus suppositories in a coconut base--they help rebalance the vaginal PH, and restore good bacteria so that that bacteria can kill the yeast. You put them in several times a week.
I also use nizerole topically, in a coconut oil base. I put it on the vulva 2x/day, and it's like a miracle. There's a pharmacy in Santa Clara, CA that will compound it, if you can get your PCP to prescribe it. I can give you the info.
Word of advice--whatever you do, DO NOT EVER EVER use MOnistat, no matter what kind, or the generics. That is how I originally got vulvodynia, and it's not that uncommon to get vulvodynia from an allergic reaction to Monistat. Also, stay away from Propylene glycol! It's the base for almost all cremes for feminine "problems", but many many women are allergic to it. My advice is that you should get any cream compounded in a coconut oil base by a compounding pharmacy. There should be some near you--just google it.
Or instead of coconut oil, you can try vitamin E, SBR Lipocream, Vanicream, or Olive Oil. I would advise trying each of these as an emollient, since you are so dry (That's what helped me get back to being able to walk, when I was having these problems). Test each one in a pea-sized amount on the vulva and see if you have a reaction after an hour or so. If not, then it's probably safe to use as an emollient, AND as a base for any topical creams. You can find the Lipocream or Vanicream by googling it. I think that drugstore.com might have both. Make sure to get the kind w/ no additives at all--no scents, no anything.
Good luck, and feel free to PM me. I am so sorry you are going through all this. I have been dealing w/ this non-stop for 1 1/2, and I know that it's hell. bsm
Posts: 20 | From Chicago, IL | Registered: Mar 2006
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
What's the story with yoghurt and yeast? I like plain health food type yogurt, but I was told by someone that since yogurt is fermented it's a food to avoid if you have yeast problems.
I figured it would be okay, since it's got active acidopholus cultures. Any thoughts or opinions?
Thanks!
Andie
Posts: 2549 | From never never land | Registered: May 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
thanks BSM. I will PM or email you once i absorbe all your info. thanks so much.
Guess what....i too got all of this from that stupid, stupid, stupid....monistat gel...and guess what i had BV...not yeast at the time.
Im certain that is what weakend that area...too bad we cant sue. I was on so much fire that nite i thought i would die...it was horrid....never been the same since then.
Does this heal...im just so frustrated with it.
the yougurt smoothy sounds yummy...i may try it...just bought a new blender...cant stomach the taste of plain yougurt though.
I wish i never used that monistat :-(
Oh, and the viatmin E works great for me.
I just feel like with a blink of an eye my life was gone for good.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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Kathy Boss
Frequent Contributor (1K+ posts)
Member # 3062
posted
Dear can't,
Sorry to hear you are fighting both. yeast is very hard to get rid of.
UVBI with hydrogen peroxide I.V.'s helped me for the past two years. i could have a couple of those and go for the next 6-9 moths with no problems.
I have been dealing with Candida/yeast for 4 years now.
hyperbaric oxygen worked the best.
I just found out on midcare hyperbaric is covered for Candida.
So I called my insurance to find out if it was true with my ins too. It is. i am so happy.
I just went to my doc the other day and she wrote me referral for both hyperbaric & hydrogen peroxide treatments.
now i just have to find a facility in my area that does it. If i have to I will travel further into CA to get it done.
there is a cnacer clinic in Santa barbara that offeres both but they have to be in my medical group.
I have done alot of research since finding this out and what i found was the benefit of the two combined is ten fold. they use this all the time for cancer which candida is a big problem with cancer from what I understand.
Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
Hi,
I am sorry you are continuing to go through this.
I think you and I had PM'd or I had posted about the Vulvar Pain Foundation. They do have a website.
Back when I was a member over ten years ago, I got their newsletter (it was before websites) but I'm thinking of rejoining to see what's new. It is an affordable group.
Back then, they recommended a low oxolate diet, and were just seeing the link between vulvodynia and fibromyalgia (I had chronic fatigue syndrome at the time). Perhaps there is new information.
I never did the low oxolate diet, although now years later, I'm gluten-free and that has helped some other symptoms.
Thanks to everyone who warned about the Monistat. Last time I used it, I burned for days and my gynecologist was horrified what it did to me. Never had a problem with it before - but won't use it again!
I'll keep you in my prayers.
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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Carol B
Unregistered
posted
Well, this is a long shot-but since it hasn't been mentioned and it has been a great source of pain and discomfort for me at times I will mention it-Hidradenitis Suppurativa.
Got that ? Has plagued me off and on-but really really flared with my lyme-and totally stumped my GYN as far as treatment because I was already on Ceftin for the lyme(two years ago) and that is precisely the antibiotic which treats the Hidradenitis Suppurativa.
Considered an Orphan Disease for which there needs to be more research and understanding. It had me at the same level of desperation as the IC.
Not exactly good news-but the only thing I had to throw into the mix.
Hang in there Can't because we know you CAN and WILL overcome someday.
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