Topic: BAck from Utah,need CatsClaw info' the good and the bad...
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Well we saw the second specialist, who agrees w/ the first one that it is Lyme disease and Bartonella,perhaps more.
Toward the end of the month I will be getting blood work-ups started [scheduling conflicts etc.] Then July 10th I will ahve an MRI brain scan.And the LymeWestern blot/BArtonella draw to be sent to Igenex.
This particular 'Team NN' has patients use the *Cats Claw* protocol to,hopefully, bring the toxins/bacterium and etc. to the 'surface' as it were in hopes of getting a stronger read on blood labs. I am new to all of this,so I'm not sure how common that is.
I'm on the 2nd day of *CC* ,and will prolly breaqk for the weekend, then go back on. I'll be gone most of the weekend.
I saw somtheing recently here ,abotu some forms of Cats Claw causing some issues. This one is 'TOA free'.
We did find out, the left side of my thyroid is swelling some what,and my heart was doing the Mitrol Valve prolapse flippyflop. I've never been diagnosed 'til now,but have been suspicious for a while somehting was up.
I've discovered,I can't find my nose w.my eyes shut anymore. Y'all know the 'hold your hands out, straight in front of you,close your eyes,now, touch your nose tip... test.
I 'bout gave myself a fat lip.And my left hand wants to tremble quake and quiver all by its self... when my eyes are shut especially.
So far w/ the *CC* regimen, it seem like every joint or bone I've ever injured aches, and every numb spot I've ever had,is multiplying...along w/ several more aches pains numb areas and tingling... .
I was warned that something like this might happen. Evidsently many folks symptoms worsen for a while,and a few actually feel better.
I have a bit of a sore throat as well.tho' it is hard to tell if thats typical allergy/sinsu or CC?
If at least two 'bands' com eup positve in the testing,they want to start me on Rocephin IV treatment. I hates needles and being poked... but... i gotta do something...
We are prolly gonna have to fight it out w/ the insurance,and if they wont help out,then will have to figure out something else for treatemtns for awhile.
Because of our shcdeuling issues,I wont have the info and such on LAbs til the end fo July or the beginning of August.
Okay, please share, your experiences the good and the bad on Cats Claw,if y'all are willing. I'd greatly appreciate it... Thank you w/ appreciation...The SilverWolf wanderin'!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
^^^^^Jus' the Silverwolf w/ a bump up^^^^^
Looking forward to any Info' and tho'ts y'all may have! Thank You!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I'm drinking cat's claw decoctions for about 80 days now. Also I take other herbs from the Buhner protocol and even some more.
In the first days I had some strange feelings, but not too bad. Others reported stronger Herx(?)-reactions in the beginning. Maybe it's advisable to start with lower dosages and increase slowly.
After I felt a rather slow but continuous improvement, but since 10 days I'm definatly pretty fine compared to the beginning of the treatment.
There have been quite some discussions recently about cat's claw. You'll find them by using the search function for "cat's claw" and (if you are interested in Buhner's protocol) "Buhner".
So personally I consider CC very helpful for me, just the taste is really hard - bitter medicine!
Good luck!
Posts: 71 | From germany | Registered: Mar 2006
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posted
Glad to know you are getting some answers and treatment. There seem to be two camps on the Cat's Claw, the TOA-free, and the one with TOA. Each camp seems to have it's strong supporters.
I'm sticking with my Doc's recommendation of the Nutramedix Samento (TOA free Cat's Claw) right now. I'm building it up slowly, I'm about half-way up to the full dose now.
I've not had a huge herx from it. I'm on a lot of other goodies as well, so when I am herxing I just don't know anymore what it's from.
Some people are very sensitive to the Samento or Cat's Claw, and herx strongly on just a few drops.
Good luck.
Posts: 873 | From WA | Registered: Dec 2005
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posted
Here's a bit of what Nutramedix has to say about Samento:
Some of the beneficial properties of Samento are attributed to the pentacyclic oxindole alkaloids(POAs) that are found in the plant that act on the cellular immune system and demonstrate powerful immune system modulating properties.
SAMENTO does not contain the tetracyclic oxindole alkaloids (TOAs) that are found in traditional Cat's Claw. TOAs disrupt central nervous system function and greatly inhibit the effects of the POAs.
Some researchers believe that Samento may be as much as 1000 times more effective than Cat's Claw. One difference between Samento and Cat's Claw is that Cat's Claw is an immune system stimulant and Samento is an immune system modulator.
Also, Samento can be used to treat all autoimmune disorders; this is not the case with regular Cat's Claw.
Posts: 873 | From WA | Registered: Dec 2005
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quote: Some researchers believe that Samento may be as much as 1000 times more effective than Cat's Claw.
I didn't hear from independent researchers yet that Samento TM is not only many times more expensive than cat's claw (everybody can agree to that fact), but also is "1000 times more effective".
Also I have a strong bias against companies or persons, who claim the name of a plant as their trademark and possession. In this case after doing that, they even spread out the rumour (by strong marketing power) that the plant itself - which has been used for long times successfully (not only by the natives) and which is still used successfully in the present - isn't worth much at all.
[ 08. June 2006, 01:27 AM: Message edited by: 777 ]
Posts: 71 | From germany | Registered: Mar 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
I've been on the Nutrimedix TOA-free Samento (CC) for 5 months or so. 7 drops 2 x a day is all I can handle. Otherwise, my heart palpitations get too bad, plus some fainting associated with my heart, etc. That's the only herx I can identify that I get from Samento.
Some people take short "breaks" from CC. This helps keep a handle on the herxing, and may help to confuse the Lyme bugs into a false sense of security. I saw one post that specified 12.5 days on and 2 days off.
I've modified that: At the start of each month, I do 10 days on, 2 days off; 10 days on, 2 days off, then use Colloidal Silver instead of Samento the rest of the month. Then I start over.
I'm trying to confuse the bugs a bit with this method, while trying to keep my own sanity with a protocol that changes every few days. At this point, the bugs have more organizatonal skills than I do, so this is my compromise.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< 777,Hopeful4,and Truthfinder >>>>> Hello there,Thank you for sharing info' and insights,it makes me feel a little more secure w/ this.
I am taking AllergyResearchGroup Prima Un~a de Gato Liquid dietary supplement Hypoallergenic. At one dropperful daily. I am on a break from it,for a few days,so I can go to a Ladies Retreat and hopefully not have more reactions.
Then I'll get right back to it, seems ironic that a kitties claws scratching me caused a bunch of the problems and now I'm taking 'Cats Claw'...
I appreciate the info', as this will help TxCoord and me [always feel like I should say I...LOL] ,if we have to locate and purchase some,from other than our Dr. She did say that I should start slowly,as in take the prescribed amount,but take a few days off,anytime,the reactions started getting rough,and I felt I needed a rest. [Makes more sense now,with the confusion quotient...I like the tho't of confusing the fire right out of them 'Bacteriumesiums']!!!
Will have to use it for a full week before the Lyme and Bart tests[July 10th when they also do the MRI brain scan].Hopefully all the needle poking and prodding wont be to rough. Team NN is supposed to ahve some very good phlebotimist types and our Dr. has done well with getting veins to cooperate too!!!
At least they are pretty well sure what all this mess is now,and it's nice to know I'm my usual nutso self,but certainly not insane...even if I do have the urge to howl sometimes...
When I was diagnosed with CFIDS/FMS early nineties I had the same response,as the clinical diagnoses this May...I cried and then felt a huge sense of relief!!! Especially when the docotrs said ,no you are not crazy!!!
Perhaps someday,maybe sooner than later,I can get the dance as worship team going in the little church where we work now.HAve felt so miserable,I was afraid to dance,for concern over tripping and hurting myself or others.And we have some folk that would really like to be involved with a dance team. better post this or I'll wnader rigt of subject...
Thankful Silverwolf here, thanx again for the info'...gotta wander off and pack for retreat!!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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JimBoB
Unregistered
posted
The proponents of TOA-FREE Cat's Claw, Samento, are TOTALLY INCORRECT in their ASSUMPTIONS.
They couldn't be further from the truth. Read Buhner's book, Healing Lyme. That old wive's tale was brought about by ONE (1) test, by ONE (1) group of researchers and has NEVER been duplicated in the real world, on REAL people.
To be more blunt, IT IS A LIE!
The WHOLE Cat's Claw has much more medicinal properties overall than the TOA free stuff.
I hope you are taking Sarsaparilla with it, and also Milk Thistle to clean out your system. I ALSO take Red Root tincture with ALL my herbs. AND I would never depend on Cat's Claw ALONE to really do anything with your Lyme and co-infections.
It is imperative to have Andrographis, (Astragalas IF you are an early Lymer), also Resveratrol, (Hu Zhang), also Devil's Claw and Stephania Root are very helpful in getting cured. Plus others.
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Hey there <<<<< JimBob >>>>> hmmm,I'll talk to my LLND about the variousthings you can take w/ Cats Claw,and perhaps i can switch later to try the other type w/ the TOA.
The reason I am taking a break from the Cats Claw for the weekend,is because. My Dr. said if the symptoms worsen fairly quickly [and they did], a few days off wont hurt as long as I go back on it when I come home! I'm sure it is just general herx,but there ya go...I am Silverwolf the superwimp... .
I do have to stay on it awhile when I get back tho'. They want to see if it will make a differnece what can be seen in the Igenex blood tests I'll have done in July.
If I can get past the herxing,I'll prolly just stay on it for our end of the month mini break with our friends. I have heard that many folks get more energy once they are on it for a bit. I am hoping that is correct!!!
I've heard about Astragulus, because of the CFIDS/CEBV/FMS and have tho't about trying it. I am going to start w/ just the Cats Claw for hte moment,and then add later.
'Team NN' said if there are two or more 'Strands' that test postive,they really want us to start the Rocephin IV's,they have had super good results from folks put on the Rocephin,when it's been along term illness.
Our problem is going to be getting help to pay for it all,the insurance we have gets snarky sometimes.If I only have one 'strand' show positive,or the tests are negative at first we'll be adding several things and not doing the Roceph' yet.
The Dr. is pretty well certain,that it'll be more than just a strand or two. And is very certain it has gone neuro...
Hey the more info we get, the more informed decisions we can make. TxCoord is prolly gonna need tos trt this all too. So perhaps we can try a number of combos To get rid of BArt' Lyme and whatever else may be lurking about in our bodies and cells. Thanx for the info' from Superchikn...er uh Silverwolf yeah thats it...i'm Silverwolf!!!
[PS. I doubt the folks at the retreat would have any problem w/ meds, a number of us take meds, vitamins minerals etc.
And sometimes I like to er...howl... but then they might not get it... . Well a couple of mah friends would...but I shant upset the status quo...LOL...Owoooowooooooo-owoooooooooooH,
Oh yeah squawk cluck cluck cluck OWOOoooooooo...cause I'm a bit of a Superchikn'Siverwolf! Oh my ah am driftin' off subject again...]. LAter ...
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I saw one post that specified 12.5 days on and 2 days off. ![[Big Grin]](biggrin.gif)
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from Superchikn...er uh Silverwolf yeah thats it...i'm Silverwolf!!! 
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