posted
I know this is a VERY strange question, but I am at my wits end and trying my best to make sense of this.
I have had this weird sensation for close to a year now and it began around the same time all of my other symptoms strarted. My left foot has a 'numb-ish' feeling and it seems like I am walking in wet sneakers all of the time. squish, squish, squish....
I addition to this, my left ankle and knee is very swollen and stiff and I have electrical-type burning sensations on the top of my feet.
Has anyone else ever felt this? It is a weird feeling that I have come to live with, but it bothers me so much. I hope that it is not permanent because I don't know if I could handle living with this forever.
I have mentioned this to my docs and can't seem to get a clear cut answer. They just pass if off as another annoying lyme symptom. (annoying being quite an understatement!)
I have lots of neurological involvement and a few lesions on my spinal cord. Could this be the cause or could it be something else? I've been on abx for almost 8 months now and some other symptoms have dissapeared, but the squishy feeling is still there.
If anyone else has had this, please let me know...
Thank you very much!
Posts: 21 | From Connecticut | Registered: Nov 2005
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I believe that squishy feet could mean Bartonella,not just Lyme, but I will let others chime in. However, I could have sworn I've heard that because I've been dealing with feet symptoms lately and trying to read everything I can on them with tick-borne diseases.
I've actually been either herxing in my feet from Lyme (my LLMD said there can be die-off in the fascia of the feet because that spirochetes like to hide in areas like that where there is little circulation or oxygen, so it feels like plantar fasciitis) or I have gotten the sore soles that are typical of Bart.
I do know from various LLMD lectures that sore heels can be typical of Lyme, sore soles are often associated with Bartonella.
These are new symptoms for me after a couple of years of treatment, so either the recent Bart treatment kicked it off or the more aggressive Lyme treatment is causing more die-off.
My main Lyme symptoms are nerve burning, electrical stuff, etc. all over my body, so I can relate to the burning/shocking sensations. But I haven't had the squishy sensation - I do have soreness, burning and electrical shocks.
Take care, Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
I have had severe burning skin sensations, predominantly of my arms. But other parts too. Tops of feet on occasion.
The squishiness did occur before treatment. But if felt like a decongestant, foggy head type squishy. Kind of like I was walking on a rubber mat. I was also extremely nauseous.
I had so many symptoms and none that I thought I would prefer over another.
-------------------- Lymester Posts: 519 | From CT | Registered: Jun 2004
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posted
Mom2, I had the squishy feeling in the feet that you describe. It was so bad at times that I was sure my shoes were filled with blood - which created the squishy sensation. Happy to report that feeling is gone but I still have severe bilateral feet pain.
Posts: 267 | From Abbotsford BC | Registered: Jul 2003
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bettyg
Unregistered
posted
I have no knowledge on this, but have plantar fas____ and heel spurs.
But when you mentioned "quishy" feet, my mind went automatically to Lucille Arnez/I LOVE LUCY, squishing those graphes and I had a good laugh seeing her in my mind to that.
Best wishes on your problem...sorry, memory flashbacks; aren't they great?
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
One of my first symptoms was numbness in my right foot. What I haven't experienced is squishy feet...
During my first major herx, I had that sensation of electrical shocks. It actually happened twice but only twice. The numbness persists, even after a year of antibiotics and weekly acupuncture.
It had actually gotten a lot better, but it resurfaced when I started taking rifampin for my Bartonella. So maybe it's part of that disease.
At any rate, I'll be glad when I'm not dealing with this anymore.
And I just hope I don't start having that squishy feet thing...
Andie
Posts: 2549 | From never never land | Registered: May 2005
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posted
Thank you all so very, very much for replying to my weird question!!!
I truly thought this feeling was all in my head since the docs have not been too concerned about it. I'm so happy to hear that some of you have had the 'squishy feet' thing! (sorry to be happy, but you helped to validate my concerns...)
My new lyme literate neuro strongly suspects bartonella from my symptoms and previous tests. I am awaiting results from Igenex and should know in a week or so.
I kind of hope it's bart so I can start the treatment for it- then maybe my lyme symptoms will start to go away. It sounds like those of you who have taken the Rifampin have improved. I am keeping my fingers (and squishy toes) crossed!
THANKS AGAIN! The folks on this board are wonderful!!! Posts: 21 | From Connecticut | Registered: Nov 2005
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