posted
Has anyone with chronic neuro lymes ever taken neurontin? my doc. wanted me to take if for the neuro pain that I have.
Posts: 90 | From NC USA | Registered: May 2002
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posted
I have been taking neurontin for several years and it is the only thing that helps make it bearable. Sometimes I forgot and ran out of prescription (or it was too expensive to refill) and within a day I would be reminded of how it curbed the misery. Without it, sleep is impossible.
Posts: 19 | From texas | Registered: Jul 2005
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posted
I just started to take it and at 600 mg it put me in a major brain fog, couldn't even go to work. Nurse at docs. office suggested i take 200 mg and see what happens. Of course I am taking the generic form of neurontin. I just don't like to put and more pills than need be, already take a low dose sleepping pill.
Posts: 90 | From NC USA | Registered: May 2002
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posted
Since I started on Clindamycin, I've had trouble with neurontin. I love it though. It's the only way I can get a restful sleep. I take 600mg one night than 1200mg the next, than back to 600 and back to 1200... Seems to work really well. The nights I only take 600mgs, my boyfriend says I still twitch really bad. I also take Klonopin and Ambien at bedtime. I was a real non sleeper... I still can be at times.
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
posted
my doc had me on it years ago. Didn't help my pain much or help me to sleep any better so I quit. Everyone is different though. In my opinion it is worth a shot, some people have had great success with it.
Posts: 47 | From WV | Registered: May 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
This is the ONLY thing that will help the periodic nerve pain I get in my spine and back.
Yes, start with a low dose.
Avoid anything with magnesium in it for 1 hour before and after taking it, as I recall. Magnesium dampens the effect, I think.
My biggest problem with it is that I have difficulty distinguishing between what I dream and what is in the real world, even on a very small dose. Still, this is a small price to pay for the benefit I get.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
My husband took it...worked his way up like prescribed and it was a nightmare. He literally woke up in the middle of the night five times one night unable to realize if he was asleep or awake.
It was freaky and he chose to stop taking it.
Like others said...everyone is different...it may be just fine for you.
They still don't really understand how an anti-seizure drug helps nerve pain and that is a bit unsettling...but for some it is a God send...
I hope it helps you...
-------------------- �Pride is concerned with who is right. Humility is concerned with what is right.� - Ezre Taft Benson Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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posted
Oh yeah, I forgot to add what those that added after me had... work up to the rxd amount slowly. I was rxd 1200mg daily, and was a dummy. I started right up there and it stopped me up like no tomorrow. For 2 weeks I didn't pass gas or poo. I was in pain like no one could imagine. When I finally went (with the help of pre-surgery, and then pre-colonoscopy laxatives), I expelled 11 pounds of bile.... Probably more than anyone wanted to know, but I wanted it to hit home how important it is to start out reall slow on this stuff.
And yes, I tried milk of mag and everything else during my 2 weeks of awkwardness, but that made my problem worse. I ended up with terrible cramps every time I would take the milk of mag.
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
posted
Well I took it again last night and so far today I have major brain fog/feel out of it. This time I only took 200mg. Iguess some people can handle it batter than others but considering I have to work during the week, I am thinking about stopping it.
Posts: 90 | From NC USA | Registered: May 2002
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
I haven't taken neurontin, but I have taken some of the newer anti-seizure meds. My experience was that the initial brain fog and tiredness went away after my body adjusted to it.
You might want to give it a little more time before giving up on it. The ones I have taken also built up in their pain relieving effect over time, and as the dose was gradually increased.
posted
Thank you all for your responses. I don't know if I can give it more time to work/decrease in the brain fog. I really don't want to take more time off from work for this, knowing that once I get my blood work and SPECT scan done, then the real hard part of being able to handle the anitbiotics will start.
Posts: 90 | From NC USA | Registered: May 2002
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