posted
Here is the latest INTERESTING article posted by LymeInfo.
IF this is true, I guess I am on the right protocol since it is the least evasive and least side affects.
Jim ###
Lyme Disease in its advanced stages is not curable, but "it is manageable," said Vogan. She explained that sufferers are treated with antibiotics such as Doxycycline and typically go through periods of remission in which their symptoms are not obvious." ====
Lyme Disease affects the lives of local residents June 10,2006 ROBIN CLAYTON STAFF WRITER
Nine years ago, Stephanie Tyndall had never had so much as a headache. Healthy and ambitious, she rarely had a reason to go to her family physician.
All that changed in the summer of 1997 when Tyndall suddenly came down with an illness that, even after numerous visits to doctors and emergency rooms, remained nameless.
"While preparing for a trip with a friend to visit friends in Utah, I began to feel tired, fatigued," said Tyndall.
Tyndall already had a doctor's appointment about a suspicious- looking spot on her left shoulder so when she went for that visit, she mentioned her new symptoms. The doctor, whose identity Tyndall did not disclose, told her the spot was nothing to worry about and diagnosed her with a sinus infection.
After two months of being misdiagnosed by multiple doctors and even told her illness was in her head, Tyndall finally got her answer in August 1997 when she tested positive for Lyme Disease and Lyme Meningitis.
"I knew my body well enough to know that something just wasn't right," said Tyndall.
Lyme Disease is a tick-borne illness that affects thousands of Americans every year. According to the Centers of Disease Control and Prevention, 122 North Carolinians were diagnosed with the disease in 2004.
Sue Vogan, author and Lyme Disease advocate in La Grange, has written a book and conducts a weekly radio show about the disease. Also diagnosed with Lyme Disease in 1997, Vogan makes it her mission to educate people on the condition. She said knowledge of the disease is not widespread and hopes to change that through advocacy.
"It's very hard disease to diagnose," said Vogan, explaining that the symptoms of Lyme Disease are similar to those of other diseases including multiple sclerosis, Parkinson's Disease and Alzheimer's.
Both Tyndall and Vogan still suffer from the affects of Lyme Disease., the most frustrating being what Vogan referred to as "Lyme fog," or short-term memory lost and confusion.
"You forget your address, your phone number, even your best friend's name," said Vogan, whose Lyme Disease has led to a heart attack and her having to get her gall bladder removed.
Lyme Disease in its advanced stages is not curable, but "it is manageable," said Vogan. She explained that sufferers are treated with antibiotics such as Doxycycline and typically go through periods of remission in which their symptoms are not obvious.
Since getting her diagnosis almost nine years ago, Tyndall has regained her life. Living in Deep Run with her parents, she works in the registration part of Lenoir Memorial Hospital and is going to Lenoir Community College for nursing. She is also trying to start a support group for other Lyme Disease sufferers.
Lyme Disease can be a debilitating disease, but Tyndall and Vogan both say that having a positive attitude can affect the outcome.
"When life hands you Lyme's [sic], make Lymeade," said Tyndall, quoting a saying from an article she read about a Lyme Disease patient. "Life has chosen to give me Lyme's [sic] and I have chosen to make Lymeade."
Robin Clayton can be reached at (252) 527-3191 ext. 273 or [email protected]
Pullouts:
For more information:
- Vogan's radio show, In Short Order, is broadcast every Thursday at 9 p.m. EST and can be heard on www.highway2health.net
posted
ALDF????? They are wolves in sheep's clothing. Mr Fish Head is on the board of directors.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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shazdancer
Frequent Contributor (1K+ posts)
Member # 1436
posted
Too true, tutu.
Methinks the reporter added that link. It reminds me that when I talk to a reporter or write an article, I should make suggestions about what might go into a sidebar. Newspapers love those little boxes, very eye-catching.
But if we don't tell them what might be good to go in there, they will Google "Lyme disease" and get the CDC, ALDF, etc. They have to work fast, so most will welcome it if we help them out a little....
Regards, Shaz
Posts: 1558 | From the Berkshires | Registered: Jul 2001
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Many believe that it isn't cureable. This is not proven or disproven. It just seems like that's what happens.
You can beat it down but how can you rid yourself of that one borrelia that is sitting in you left scapula for 2 months and decides to come out and replicate when you think you're cured?
That's why it's being said that Lyme isn't cureable.
Corgilla
-------------------- "I'll never forget good old Whatsisname." Posts: 694 | From PA | Registered: Jun 2003
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
If there were a definitive test for Lyme disease, there would be no question about whether some one has it or not (diagnosis) or whether someone is cured or not.
Currently, there is no definitive test. Therefore, we really don't know if someone is "cured."
We can all hope for feeling well again though.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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posted
Cured 100% as in zero borrelia left in the body - probably not. Cured as in remission and your life back with little or no symptoms - yes.
Posts: 649 | From United States | Registered: Dec 2003
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posted
Heart-attack from lyme? I have not seen this before - is that accurate?
Posts: 109 | Registered: Aug 2005
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I have not heard of a heart attack from lyme persay.
HOWEVER, my herx to starting IM bicillin put me in the ER with tachycardia for many hours. The ER doc had no idea why my heart was so irritable. (I knew, and I told him). I would not have been surprised at all if my heart hadn't gone into cardiac arrest during that time. 3 1/2 hours of a heart rate of 150 BPM is a lot for a heart to take.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Heart attack might be from Chlamydia bacteria......a spin off from Lyme?
Chicken or egg? I dunno......
Posts: 1366 | From Southeast | Registered: Sep 2005
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posted
HOWEVER, my herx to starting IM bicillin put me in the ER with tachycardia for many hours. The ER doc had no idea why my heart was so irritable. (I knew, and I told him). I would not have been surprised at all if my heart hadn't gone into cardiac arrest during that time. 3 1/2 hours of a heart rate of 150 BPM is a lot for a heart to take.
Timaca "
yes -
i have heard that lyme disease can disrupt the electrical system in the heart and cause cardiomyopathy, palpitations. See this link http://a2a38.a2hosting.com//lyme/page6.html
"Cardiac involvement occurs in less than 10 percent of patients, but is the most threatening acute complication of Lyme disease"
That is why we need to get that ketes out of our body
mags
Posts: 259 | From California | Registered: Mar 2006
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JimBoB
Unregistered
posted
I have definitely read several places that Lyme bugs attack the heart.
quote:Originally posted by JimBoB: I have definitely read several places that Lyme bugs attack the heart. Jim
So so true. Lots of reports about that.
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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Many believe that it isn't cureable. This is not proven or disproven. It just seems like that's what happens.
You can beat it down but how can you rid yourself of that one borrelia that is sitting in you left scapula for 2 months and decides to come out and replicate when you think you're cured?
Well, one trick to solve that problem is to NEVER think you are cured.
IMO, once infected, always infected.
That doesn't mean you can't get back to normal, in most circumstances.
Just means you need to change your way of life: The way you think, eat, drink, sleep, excercise, etc.
Trick is, IMO and I'm not a Dr., you yourself gotta do it. Not your LLMD and whichever Dr. you're using. It's up to you! 99%.
And there's a ton of stuff you can do all by yourself.
The general goal should be, IMO, to make your body an unhappy home for Bb.
So learn about the little **** and fight it!
Your Dr. got other things on his mind than you!
You got mainly YOU on your mind. So who do you think's gonna have to most impact on your recovery?
Michael
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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JimBoB
Unregistered
posted
I tend to agree with you Michael.
That is why I gave up on my duck and took it upon myself to get myself healed. IF that is even possible. BUt at least I don't feel like I am going to die in the near future, like I did last fall.
As a matter of fact, most days I feel pretty good now.
Glad to hear you're doing well. I feel pretty good too. I'm partly following the Buhner protocol too, btw.
In fact, I feel better than before I was diagnosed with Lyme 2y ago.
In fact, I even feel better than way before that too.
And I've had Lyme symptoms since I was around 20.
I am in much more control of myself now. Do not rely on any Dr. I just read read read. Keep a diary. Monitor all symptoms.
I can only speak for myself, but I really do believe that the trick to recovery is to be 100% convinced that the healing is in the hands of the sufferer him/herself.
But my gutt tells me, and the anecdotal evidence available from the internet (incl Lymenet), that most people simply won't accept this. They have to much respect for Dr.s and are too much impressed with medical hype and medical authorities and are intimidated by medical lingo.
I know my dad couldn't do. I know my could do it. I know my wife couldn't do it.
I'm sure there are some Dr's which take a whole body approach and who are knowledgable about Lyme and who are truly concerned about their patients and who are open minded.
I just don't know such, except perhaps Dr. H of Hyde Park who is getting close. But of course he's overburdened with way too many patients to give each patient the time and attention they need...IMO.
Michael
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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hiker53
Frequent Contributor (5K+ posts)
Member # 6046
posted
Wonder what God has to say about Lyme not being curable? Hiker
-------------------- Hiker53
"God is light. In Him there is no darkness." 1John 1:5 Posts: 8890 | From Illinois | Registered: Aug 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
God would say all illness is an illusion because only perfect oneness and love is real.
Upsetting huh.
Posts: 2905 | From New England | Registered: Sep 2004
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Nice comment. Lol or not?
Posts: 71 | From germany | Registered: Mar 2006
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JimBoB
Unregistered
posted
quote:Originally posted by cmichaelo: Jim,
Glad to hear you're doing well. I feel pretty good too. I'm partly following the Buhner protocol too, btw.
In fact, I feel better than before I was diagnosed with Lyme 2y ago.
In fact, I even feel better than way before that too.
And I've had Lyme symptoms since I was around 20.
I am in much more control of myself now. Do not rely on any Dr. I just read read read. Keep a diary. Monitor all symptoms.
I can only speak for myself, but I really do believe that the trick to recovery is to be 100% convinced that the healing is in the hands of the sufferer him/herself.
But my gutt tells me, and the anecdotal evidence available from the internet (incl Lymenet), that most people simply won't accept this. They have to much respect for Dr.s and are too much impressed with medical hype and medical authorities and are intimidated by medical lingo.
I know my dad couldn't do. I know my could do it. I know my wife couldn't do it.
I'm sure there are some Dr's which take a whole body approach and who are knowledgable about Lyme and who are truly concerned about their patients and who are open minded.
I just don't know such, except perhaps Dr. H of Hyde Park who is getting close. But of course he's overburdened with way too many patients to give each patient the time and attention they need...IMO.
Michael
I agree, that the few good docs out there are overburdened with too many patients, so others have to take what is left. We have only two LLMD's here in Wisconsin that I know of, and one of them has quit taking new patients. So that leaves one for the whole state. Sad!
I also think we MUST take our health into our own hands. What makes anyone think that the "hired man" is going to truly care for and about them. I am sure most want to do a decent job IF they can, but certainly are not going to give us the time we can give ourselves. AND they cannot, even in the slightest, FEEL WHAT we feel.
MOST of them just use a cookie cutter method of treating patients, probably because they heard it worked sometimes for others. Also they are hooked on abx, mainly because herbs and other things are not profitable enough for them. (They get a cut for their prescriptions).
I USED to have blind faith in doctors because I didn't know any better either. But after my experiences with my current duck, I have faith in no one but myself and God at this point in my life.
AND the more I read and experience, the less faith I could put in any of them. At least any I have access to.
-------------------- I'm not an MD. The above is IMO and in my experience as well as from health related books.
I've had symptoms consistent with neurological Lyme disease since 1986. Was diagnosed with Lyme in 2004. Am feeling better now than ever before. Posts: 702 | From NY | Registered: Jul 2004
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