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» LymeNet Flash » Questions and Discussion » Medical Questions » The Brian Fallon fan club

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Author Topic: The Brian Fallon fan club
LYMESCIENCE
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So, who wants to show some love for Brian Fallon.

Seriously though, if I was a girl, or I happened to be a bi-curious male, I'd have a huge crush on this wonderful man.

Alas, I'm a hexterosexual male attracted only to girls.

I'll settle for calling this guy a freaking hero!


Hearing for Lyme-treating doctor nears end
6/15/2006 10:31 AM
By: Associated Press

RALEIGH - There's more testimony Thursday in the case against a Charlotte doctor who could lose his medical license for the way he treats Lyme disease.

Dr. Joseph Jemsek is accused of misdiagnosing patients and treating them with long-term intravenous antibiotics. That method goes against standard practices for treating the tick-borne illness.

The state Medical Board heard testimony Thursday morning from Dr. Brian Fallon, a Lyme disease specialist at Columbia University in New York. Fallon said a study he conducted found that treating Lyme disease patients with several weeks of intravenous drugs was actually helpful.

The supportive testimony was a sharp contrast to Wednesday, when board members heard emotional stories from a man whose wife died after she was treated by Jemsek.

The 12-member board is expected to make a decision after testimony wraps up later Thursday on whether to revoke Jemsek's license.


Copyright 2006 Associated Press. All rights reserved.
This material may not be published, broadcast, rewritten or redistributed.

Posts: 559 | From Cary, NC | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
bettyg
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YES, I've never met the man but read fantastic things about him. I'm a fan of BRIAN FALLON.

I'm hoping when the CHRONIC LYME RESEARCH CENTER opens that he is the head of, that he/others there will do WONDERFUL things for ALL of us lymies!

I have so much HOPE that we will get help and they can accomplish things that others have not to date.

Thanks for the article too. [Big Grin]

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lymemomtooo
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Yes, I guess I can join the fan club for all he has done for the patients of these diseases..It is swell what he did for Dr. J.

But just wish my daughter had been CDC positive to get treatment from him..We must remember, he practices in NY and still does not have a lot of liberty there. Someday!!! maybe they can treat as they see fit.

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humanbeing
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Anyone know why this woman died? Was it lyme related or maybe a picc infection???

People die from taking abx sometimes..rare but I'm sure all docs have a bad experience once in a while...

--------------------
We are spiritual beings on a human journey...

www.ruggierogallery.com

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DolphinLady
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I've spoken with Dr.Fallon and he is a gem. We're lucky to have him on our team.
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shazdancer
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Yeah, I've never met him, but put me on his fan club list as well. I've heard him speak a couple of times, and read plenty of his stuff.

He spoke at the Boston legislative hearing, too, and mentioned that his study proves that long-term antibiotic use is effective against late stage Lyme, that it is no longer speculation or theory, but fact.

So why is a ground-breaking study from a previously-published medical researcher being held up in peer-review for what, over a year now? Don't want to shake up the IDSA good old boys' network, now, do we?

Do we?

Regards,
Shaz

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Lymelighter
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We need the Bill Gates & Daryl Halls of this world to help get Brian Fallon a sufficient endowment fund to open the doors.
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FightFireWithWater
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humanbeing,

My understanding is that the patient, who was an R.N., died because of the amount of morphine she had in her body....more than what Dr. J. had prescribed for her pain.

Doctors are now to be held responsible for the mistakes of others or in the case of suicides????

--------------------
"Help Or Be Helpless" Please visit "Activism" board daily. See the threads regarding the IDSA Guidelines crisis and the threads about Dr. Charles Ray Jones and decide how best to help today!

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luvs2ride
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The issue of whether or not doctors are risking patients lives when treating with longterm antibiotics reminds me of the Catholic Church thinking the Bible in the hands of the laypeople would be a dangerous thing. This is what brought about protestantism.

Why is it that we, the patients, do not have the right to choose our own treatment? The doctors absolutely should explain the risks v benefits of each treatment option and have us sign a form stating we understand the risks/benefits. Then, assuming we are competent adults, the choice of whether or not to take that risk should be ours and only ours.

When did doctors gain the right to make such decisions for us? And how can that right be so powerful that any doctor who acts otherwise can be barred from practicing medicine?

Whose body is sick??????

--------------------
When the Power of Love overcomes the Love of Power, there will be Peace.

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trueblue
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I have seen Dr F and took part in one of his research studies in the mid 90's.

I can totally see the crush thing. (Tell him I said that and you're in big trouble!) [Big Grin]

He helped me out a couple of times. I'm very grateful for that; as well as, his on going work and that he was there to testify on Dr J's behalf.


[group hug] for Dr F!

--------------------
more light, more love
more truth and more innovation

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seibertneurolyme
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Here is more info on Dr B.F.'s testimony.

http://www.charlotte.com/mld/observer/news/local/14819260.htm

Bea Seibert

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lou
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And why has it taken so long to get the Columbia lyme research center established? They are still short several hundred thousand dollars. This has absolutely got to be done if we expect to get anywhere in the world of medicine. It has got to come out of academia, not just a handful of docs in private practice.

Anyone who knows people with a lot of money should be polishing up a heartfelt plea to top off this fund. I can think of few things that are more important to do in the lyme world.

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Foggy
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Lou, I hear you, it's very frustrating that this ball isn't in the hole. The competition for charitable $ is fierce, particularly in the last 5 years. They also need to beef up the in house & outside marketing effort for $. It's easier said than done, given they have mostly volunteers & don't yet have a development person on staff.

That being said, they need to target more foundations, corporate, & high net worth donors internationally to help kick this thing into overdrive. A high profile celeb trumpeting the cause with soirees, golf tourney, etc is a must.

I have given $ to the endowment fund and will continue, knowing it all adds up. they're getting there, sufffice to say, slowly.

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timaca
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I was evaluated by Dr. Fallon. I'm a fan. [bow] I wish I could testify on behalf of Dr. Jemsek. It took 4 1/2 MONTHS of IV antibiotics for me to be in the land of the living. I hope his hearing came out OK. If not, I'll probably make some noise and see if it makes any difference.

I'll post this in general...but here's my idea for raising money for Columbia.

How about you all approach your grocery store manager (or get the head of the chain of your grocery story) and ask that a portion of their profits from the selling of "limes" goes to Columbia.

They can post it in their store....it would likely be a tax write off for them and give Columbia the funds to get up and running.

"Limes for Lyme" can be a sort of motto....unless you all come up with a better one....which I'm sure you can, for I'm having a lyme brain day! [bonk]

Timaca

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lymex5&counting
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"Limes for Lyme"

That's cute!

I don't know about the grocery stores participating.

But what about Paul Newman.

The Newman's Own organic brand always says Paul Newman has given over $200 million to 1,000's of charities worldwide since 1982 on it.

He is in California which is becoming a huge problem area.

It doesn't hurt to ask.

www.newmansownorganics.com

Yes Brian Fallon is a very intelligent man. Glad he is on our side.

Lyme x 9

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bettyg
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Timaca, YES, I love your idea.... Good thinking! [bonk]

LIMES FOR LYME; we have 2 huge grocery store chains where I live: Fareway and HyVee.

If we can get more info, and be consistent on it, I'll then approach both PRESIDENTS of these grocery stores.

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fatigued15
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I saw this article this morning...very sad.


Hearing for Lyme-treating doctor nears end


Raleigh, NC-AP) June 15, 2006 - The state Medical Board has suspended for a year the license of a Charlotte doctor for the way he treats Lyme disease.

Doctor Joseph Jemsek was accused of misdiagnosing patients and treating them with long-term intravenous antibiotics. That method goes against standard practices for treating the tick-borne illness.

The board says Jemsek can keep his medical privileges until July when he meets again with the board. At that meeting the conditions of his suspension will be determined.

The 12-member board started hearings Wednesday and concluded Thursday night with its decision. The board found that Jemsek committed unprofessional conduct in the manner he treated 10 patients whose cases it reviewed.

The board also said the doctor violated the informed consent principle in handling patients' cases.

Posted 10:03pm by Chantelle Janelle

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mtnwoman
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Does anyone have a link to Fallon's research that says long term antibiotics are valid?

Was it published?

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treepatrol
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quote:
Originally posted by mtnwoman:
Does anyone have a link to Fallon's research that says long term antibiotics are valid?

Was it published?

I did searches and even sighned in at medscape and I used the wayback machine and it looks like all referances have been removed??? Dosent look good.Ill keep trying.

All i find is referances to it heres one.

Long_Term_Treatment

This is nuts
Repeated Antibiotic Therapy in Chronic Lyme Disease.
AUTHORS: Fallon BA, Weis N, Tager F, Fein L, Liegner K, Liebowitz MR.
SOURCE: Journal of Spirochetal and Tick Borne Diseases, 1999; 6: 1-9.

lymeinfo

http://www.lymediseaseassociation.org/NewsReleases/20041102.html

Fallon et al (not yet published).

Wikipedia

[ 16. June 2006, 09:50 AM: Message edited by: treepatrol ]

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

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MagicAcorn
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Dr. Fallon and his wife Dr. N have done wonders for the Lyme community.

I'm beholden to Dr. Fallon personally for helping my son when NO ONE else would. Now I have a beautiful, intelligent, little rug rat instead of a sad, sick litle boy.

My little guy didn't like anyone very much as he didn't feel very well. But he knew that Dr. Fallon wanted to help him and my little guy took quite a shine to him. He slid himself right onto the doctor's lap and that was it.

My boy is doing great today and it is ONLY because of Dr. Fallon.

Having a child with congenital Lyme is difficult so if anybody does I would urge them to see Dr. Fallon. He has saved me and my son from the horrors of the school system. When they read what Dr. Fallon wrote about my son they said nothing, and my son gets every available service the school has to offer. And I get no flak.

He is a hero to my family.

--------------------
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seibertneurolyme
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http://www.columbia-lyme.org/flatp/breaknewsfull.html#1-05

Can't find the summary that I thought used to be on this website?

Bea Seibert

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seibertneurolyme
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Does anyone know if this study regarding inaccurate Lyme testing mentioned by Dr F at Dr J's hearing has been published?

http://www.newsobserver.com/102/story/451322.html

Bea Seibert

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timaca
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Bea~ At www.columbia-lyme.org in "Ask the Doctor" is a question about "can someone have lyme with a negative lyme test." I share this often with others.

I don't believe Dr. Fallon's research has yet been published...I think it is due out very soon, however.

Timaca

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PinchotGail
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Mtwoman and Treepatrol,

In my LymeTimes that i just got in the mail there was an article by Dr. Fallon. He said last week (whenever that was -probably 3-4 by now) it was published in The Journal of International Neuropsychiatric Medicine (hope i got that right)

However i can't find it.....He also said it will be published next month (which may be June) in another publication, but it was not named.

I would desperately like to get my hands on this published article.......ANYBODY???? I can't believe it's been published for a few week and NOT been floating in cyberspace and none of us here at Lymenet have seen it!!!!!!!!

Anyone from LDA or LDF or ILADS have the goods???

Gail
 -

--------------------
Strength does not come from physical capacity. It comes from an
indomitable will ~ Gandhi

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robi
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He stated at the hearing that it is in the works to be published soon, but is not published yet. I was there and neard him say this.

robi

--------------------
Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy'

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