cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Hey,
I went to a concert tonite...first time out doing a normal activity since i got so sick
let me tell ya i think i over did it.
BUT, i wanted to know if anyone might know why my body reacted this way.
My chest got tight and really hurt when there was a lot of bass in the music. it was so strange...and it still hurts a bit now. I freaked a bit at first and then calmed down and enjoyed the show. but it bothers me that this happend.
The drive home was 3hrs in traffic....they decided to do construction on a Friday nite....i dont know how i did it.
I just wonder if im dealing with something other then the standard TBD.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
When neurotoxin affect temporarily our Autonomic Nervous System, it is not able to control the influx of vibrations and sound such as this into our body. Sound, light, or odor, heat and cold, all are controlled by our autonomics when they function.
Don't worry about this - you just have a little while longer to get totally well. We are sensitive creatures, super sensitive, when our autonomic nervous system cannot perform the balancing act. I used to wear three pair of sunglasses, one on top of the other, to control the light that felt like it was killing my eyes. Same with music. I shunned it totally. I could not handle any. That is all gone.
Get well and stay away from concerts for a while until you can really enjoy them again. I am sure you will.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Carol B
Unregistered
posted
Best Buy was a sensory overload for me,too. My daughter had a couple of gift certificates and asked me to take her to Best Buy to spend them.
Fortunately she pretty much knew what she wanted. At one point I thought if I don't get out of here soon I am either going to pass out-or start screaming at the top of my lungs to override the noise,activity confusion, lights.
posted
Autonomic nervous system sensory overload. Very common with lymies.
I used to run screaming out of the Kmart because of the fluorescent lights.
I had to give up driving for a long time because of the same reason, the movement was difficult to "process" as was determining my place in space. I also had problems with headlights.
"I wear my sunglasses at night" singer Corey Hart must have had lyme, because he sure called that one right.
Anyway, loud noises, motion, malls full of people, crowds, light, especially fluorescent light can and will set you off. So does people yelling at me over the phone or talking too loudly.
Good luck with that one. Lots of deconditioning exercises help, talking yourself through them, understanding what is causing the problem helps too. But the best thing is to be nice to yourself, find quiet as soon as possible or remove yourself from the situation, don't feel weird, nearly every lymie I know has or has had this problem at one time or another, its part of the process.
Its crap its hard but its something we have to deal with. It can and does get better with treatment and time. Hey, use it to your advantage, if you are somewhere you don't want to be, you can always pull a "the lights are bothering me, I have to go" bit. LOL PJ
-------------------- PJ
www.LymeLeague.com"Together We Grow Stronger" Posts: 139 | From A tiny little home office in the middle of Wisconsin | Registered: Feb 2005
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
ahhhh......its all making sense to me now. So im really not a freak.
When i first got sick i couldnt go into stores..the lights, the people talking, the different colors was all too much- so that part i am familar with.
so many times I would pull myself together for the moment and then run like heck out of the store. that part has gotten so much better.
the driving at high speeds still is a bit of an adjustment i feel like im swaying.
I feel like i was run over by a truck this morning...im so stiff and sore...IC bladder is so unhappy.
I did wear ear plugs last nite cause my ears have always been sensitive.
Carol- funny you mention best buy, i had that happen to me too...and walked out very quickly.
Gigi- i just wish i could find a treatment that didnt cause me so much yeast.that i could stick with.
Positive note though , i did stick to the diet...brought my own food.(ate in my car)..and just watched all the normies eating the horrible processed food.
I hope these muscles heel up...staying away from loud noise for sure.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hey Cant
I can really empathize with you on this.
last year I went to an Elton John concert. One I had been looking forward to seeing all my whole life because I am a hudge fan and never have seen him in concert.
We went with 2 other couples. I lasted about 15 minuets and said I had to go to the bathrooom.
The music was too loud and the light show was flashing and I was dizzy and sick feeling.
Everytime I tryed to back in I couldn't do it. I spend the whole concert (2&1/2 hours) sitting out in the hall way feeling like a freak.
It was a really low point for me.
Later I came to realize it was sensory overload and the lyme symptoms flared do to the loud music and lights.
To this day I cant listen to Elton without feeling sad.
I am much better this year and would like to attempt another concert again.
I am sorry this had to happen to you. Hang in there and maybe over time your symptoms will get better too
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
For me, I had a lot of olfactory and auditory sensitivity, some of which still exists.
Fish used to be a staple in my diet, and now I just can't eat it.
Initially, I couldn't deal with any loud or jarring sounds. Some of that has gotten better. But I had two experiences lately that reminded me I've still got a way to go:
A student I know invited me to a battle of the bands he was in...and even with earplugs, it was really tough.
Then the other night, I was at a graduation dinner with six children who ranged in age from 7 to 14 and 9 adults. I was okay for awhile, then suddenly, I started feeling overwhelmed and getting shaky.
In both instances, I felt really hung over the next day. Usually, I try to limit those types of events...that seems to work the best for me.
Andie
Posts: 2549 | From never never land | Registered: May 2005
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No you aren't a freak. This has been one of my issues for years now.
Since I have been diagnosed with Lyme and started treatment it has gotten somewhat better.
Any place that is noisy, crowded, lots of lights are virtually impossible for me to function in. That leaves out malls, most stores and restaurants.
We cope by eating at restaurants that have outside dining or we get food and go to the park. Picnics and potlucks are good because they are usually at someone's house.
I haven't been in the grocery store in almost 2 years, my husband and daughter do all the shopping. I can run in a store quickly usually 5 minutes or less.
My biggest recent accomplishment was to make it through my daughter's graduation ceremony. It was in a huge arena at our local univesity complete with lights and a big crowd.
But I did it. I wore earplugs, sunglasses and sat right inside the door in the disabled section, it was kind of funny because people kept saying hi to me and I couldn't hear them.
I look forward to getting better and getting out in the world again. The isolation that this disease gives us is profound sometimes.
Posts: 460 | From Illinois | Registered: Aug 2005
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posted
I have had this problem too, although I can thankfully say that the experiences are getting less severe.
I used to be an absolute mess whenever I would go grocery shopping. Of course I thought I was crazy, none of my friends had a clue about what I was describing. At least we know what it is now!!
-------------------- Dani Posts: 102 | From Where there is no lyme | Registered: Jan 2006
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
Andie- funny you should mention hung over....ive been saying i feel hung over all day. Like i used to feel when i drank...back in my normie days.
i havent had a drop of alcohol since August 2005.
going back under the covers for another nap.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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In addition to the bass, amplifiers are there too, possible herx similar to rife?
Just a thought.
All My Best, Scott
-------------------- BTW - I am NOT a medical professional - just speaking from MY own personal experience. Posts: 266 | From Philadelphia | Registered: May 2005
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Can't, so glad you're feeling well enough to go to a concert! Bravo! Who did you see?
Perhaps the waft of the wacky tabbacky had something to do w/this? Just Kidding:)
Be sure to buy a set of earplugs, just in case. I never go to shows without them as hearing damage is unseen.
I saw Queen w/Paul Rodgers recently and had a similar reaction. Those dbs stir up the fog something wicked. Then again, I was so thrilled to see Queen live again it didn't matter...
Posts: 1010 | From Mars | Registered: Feb 2004
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posted
I can relate. I still have this but much less so than before. With continued tx it is improving for me.
Posts: 925 | From California | Registered: Sep 2004
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I need to thank you for saving me a couple of hundred dollars.
Your post just made me decide not to buy tickets to a concert we wanted to see in August.
I think it would be a bad idea. Considering I hadn't even been to a movie in awhile.
Last week I took some of my kids to see CARS. And it made me sooooo sick.
Between the loudness, special effects, bright lights, etc.
I felt like I was going to throw up and I couldn't breathe. And I don't normally have panic attacks. It made my whole jaw hurt down to the bone. My eyes, ears, and brain were totally freaking out. All I know is the movie was about cartoon cars. It moved so fast I couldn't keep up.
lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
I've had this symptom for a long time. I used to love music, now I can't bear to hear it.
I watched a tape of a lecture given by Dr. Paul Cheney (a famous CFIDS researcher) where he talked about excitatory neurotoxicity which I think is the problem or at least part of the problem.
Magnesium has been somewhat helpful to me for this. He recommends klonapin. I don't know anything about that medication or whether it would be useful but I have a tendency to look for something other than prescription medications.
http://www.immunesupport.com/library/showarticle.cfm?ID=3154 In part: "Cheney frequently uses the term "threshold potential" when discussing excitatory neurotoxicity. (Think of the threshold - bottom - of a doorway. The lower it is, the more accessible it is. When it is at floor level, everything can enter. When it is raised, access is restricted to taller people. If it is too high, no one can enter.) Threshold potential refers to how much stimulus it takes to make neurons fire. If the threshold potential is too low, even slight stimulation is "allowed to enter" and is detected by the neurons. This causes the neurons to fire, resulting in sensory overload. If the threshold is dropped to nothing, all stimuli get through and the neurons fire continuously, resulting in a seizure."
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
A very good article on lymeinfo.net on HYPERACUSIS AND LYME DISEASE, including drugs and supplements that may help. http://www.lymeinfo.net/hyperacusis.html Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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