Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
My LLMD wants me to jack up the CSM possibly to 4 scoops per day or maybe more. Anyone done high Cholestyramine doses while on abx?
Did you need a cork screw to deal with the ancillary and lovely "binding" effect of this swill?
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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posted
I have done 2 packets, 2 times daily, but only on a few occasions (it's hard to work that in the meds schedule!). And yes....the side effects were immediate!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
No, we gave up on Cholestyramine after a couple of weeks. That stuff is ugly to go in and ugly to come out.
Further, if you do not do something to avoid the constipating part of that drug, the effect of it is lost. While it sits, you reabsorb all the toxins back into the body --- what have you gained? Neurotoxins on a merry-go-around.
Constipation or slow moving bowels is probably one of the major hold-ups in reaping the benefit of any med or agent that you take. You have heard of a Leaky Gut.
You would probably benefit from a major bowel cleanse, such as Arise & Shine or a simpler one, Dr. Natura's. After that, your body will be able to take up the nutrients and unload the toxins, and your cure is on its way.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
GiGi, I recall you mentioned that Dr. K. uses Chlorella as a binding agent for neurotoxins.
Is there a maximum dose for Chlorella?
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
I am doing 3 scoops or packets a day.
I slowly ramped up and have been doing 3 for over a month now.
Just in the last week I have noticed some real dificulties with my stomach. I mean REAL.
For me the CSM (or something else??) was actually making me go to the bathroom 2-3 times a day. Nice and solid and soft.
Now I feel bloated and gassy and like I have to go to the bathroom 5 times a day but can actually only move my bowels 2-3 times.
I have barely been able to sleep for the last 3 nights as the pain in my tummy is really bad. It feels like it is being SCOURED. I was actually going to post about this and ask if others have had this.
I am unsure why this would happen NOW--a full month into 3 doses a day.
Anyhow---I am on ABX that I take only 2wice a day. And I can RARELY fit any suppliments in. A rough draft of my schedule is morning breakfast and ABX mid morning CSM noon lunch with suppliments mid day probiotics late afternoon CSM evening dinner late evening ABX late night CSM
That gives me 3 doses of CSM.
Let me know what you decide...would love some CSM buddies! Trails
Posts: 1950 | From New Mexico | Registered: Sep 2001
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
I've done CSM three times a day for extended periods. Never had any trouble with gut issues or constipation. I take my doses in the middle of the day, with abx and other meds in the morning and evening.
I do use a compounded version, with no sugar or asparatame, and the only additives are magnesium and a few other things to keep the constipation from getting bad. I also make sure I eat some good quality fat after taking it.
GiGi
Frequent Contributor (5K+ posts)
Member # 259
posted
Foggy, yes, I took chlorella, which is really Dr. K's favorite mainly because it has so many other nutritional benefits. My husband loves it and so does my granddaughter (as a candy snack!)
As binding or mop-up agents, patients alternate or supplement the Chorella with Chitosan, Pectin, Betasitosterol, and more recently Destroxin. ART testing is helpful in determining which one is the most beneficial at this time. It may change -And some people do not tolerate one or the other.
Take care.
Posts: 9834 | From Washington State | Registered: Oct 2000
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
I have done 1.5 sachetes two or three times daily for a while. With 4 doses it is really hard to keep it away from abx as day is short.
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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trails
Frequent Contributor (1K+ posts)
Member # 1620
posted
areneli are you feeling any results from your CSM intake?
Posts: 1950 | From New Mexico | Registered: Sep 2001
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