posted
It just does not go away. Have been on abx since December, It just seems Ceftin, then tini plus zithro does not touch the twitching! What abx helped your twitching? I take magnesium and all the supplements. Thanks! Julie
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
| IP: Logged |
posted
I twitched uncontrollably through my first three years of high dose antibiotics. Finally it is nearly entierly gone after doing 6 months of 300 mg Rifampin for Bart.
Do you know if you have bartonella?
Pomegranite
Posts: 309 | From CA | Registered: Nov 2002
| IP: Logged |
valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
I was going to suggest bart also. My son's eye twitching went away with levaquin/ceftin.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
| IP: Logged |
posted
Twitching and muscle weakness/cramping are big symptoms for me. They seem to come and go. I have been on Omnicef for five months now and feel the twitching and myoclonic jerking has gotten better at times. I have Bart but have avoided Levaquin due to my already bad muscle issues...it would only make them worse I think.
Does twitching seem to get worse with dehydration, lack of sleep, stress?
Posts: 331 | From virginia | Registered: Nov 2005
| IP: Logged |
Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
Besides calcium influx...research acetylcholine.
Posts: 9424 | From Sunshine State | Registered: Mar 2001
| IP: Logged |
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
My twitching/tremors were also Bart related I believe.
With strong meds, they eventually faded away.
They are beginning to return though, so I will most likely address the bart again.
My best, M
Posts: 7052 | From Colorado | Registered: Mar 2003
| IP: Logged |
Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
My twitching was related to a CNS mycoplasma fermentans infection.
-------------------- Mathias Posts: 1242 | From New Jersey | Registered: Feb 2004
| IP: Logged |
Andie333
Frequent Contributor (1K+ posts)
Member # 7370
posted
I started having twitching and mini-seizures after I'd been on Ceftin for about 4 months.
For me, those symptoms were related to Bart.
After a month or so on Rifampin, they stopped. By the way, test results for co-infections are notoriously unreliable. Mine showed me negative for Bart, despite a list of Bart symptoms.
Andie
Posts: 2549 | From never never land | Registered: May 2005
| IP: Logged |
posted
Hubby's LLMD said his tremors/myoclonus could be caused by Lyme, babesia or bartonella. For him seems to be mostly caused by babesia -- also seizure-like episodes from the babs.
Agree with Marnie that phosphatidylcholine may help.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
posted
I saw my LLMD the other day and they told me my tremors/myoclonus is probably from bart. their theory is the infection is affecting the limbic system of the brain. They put me on seizure meds- lamictal and lyrica and it seems to work for me.
Kristen
Posts: 24 | From Oxford, NC | Registered: Oct 2005
| IP: Logged |
posted
Thanks everyone for your responses. My twitching does get worse maybe when I am dehydrated.
Marnie and Bea, my LLMD has me take 3 large acetylcholine capsules per day. I never really knew what they were for. Now I know why she insisted on them.
I can live with the twitching - my main problem is does the twitching mean I am still infected? I am going to try to push my LLMD to treat for Bart. I just have a gut feeling a co-infection needs to be treated. I'll try for lequavin. Thanks again all!
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic