posted
hi. i am 18 years old and male. about 2 or 3 years ago i began experiencing high blood pressure and dizziness (though i am not very out of shape). about one year ago, i had this "attack" type thing in which i had horrible dizziness, rapid pounding heart, shakeyness, scared, and several other symptoms. i had gone to the doctors several times. well since then i have been seemingly getting better (i think) but i still have many symptoms and many of which have changed. i was also diagnosed with mono about 8 months ago (but that has surely passed because mono doesnt last that long). my current symptoms include swollen painless movable lymph nodes, slight limb weakness, slight dizziness, low blood pressure when standing up, my limbs fall asleep very easily, some vision disturbances, and an overall feeling of just being out of it. i have somewhat bad allergies as well. the reason i am here is because about 9 years ago (i was somewhere around 7-10 years of age, my mother and i found a tick on my leg. i remember that she took it off. i am wondering if i could have lyme disease. i am going to the doctor and will have it checked out. but is it possible i could have this after all these years? and do the symptoms match? thanks for any help!
Posts: 3 | From new york | Registered: Jun 2006
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posted
i saw that you like if it is broken up so i did that.
quote:Originally posted by musicftm: hi. i am 18 years old and male.
about 2 or 3 years ago i began experiencing high blood pressure and dizziness (though i am not very out of shape).
about one year ago, i had this "attack" type thing in which i had horrible dizziness, rapid pounding heart, shakeyness, scared, and several other symptoms. i had gone to the doctors several times.
well since then i have been seemingly getting better (i think) but i still have many symptoms and many of which have changed.
i was also diagnosed with mono about 8 months ago (but that has surely passed because mono doesnt last that long).
my current symptoms include swollen painless movable lymph nodes, slight limb weakness, slight dizziness, low blood pressure when standing up, my limbs fall asleep very easily, some vision disturbances, and an overall feeling of just being out of it. i have somewhat bad allergies as well.
the reason i am here is because about 9 years ago (i was somewhere around 7-10 years of age, my mother and i found a tick on my leg. i remember that she took it off.
i am wondering if i could have lyme disease. i am going to the doctor and will have it checked out. but is it possible i could have this after all these years? and do the symptoms match? thanks for any help!
[ 29. June 2006, 11:40 AM: Message edited by: musicftm ]
Posts: 3 | From new york | Registered: Jun 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Welcome to this board.
It's definitely possible that you could have Lyme, but I wouldn't suggest pursuing only that route. But your symptoms are all potential symptoms of Lyme disease.
If you post under the Seeking A Doctor forum, people will send you a private message with information on LLMD's in your area. An LLMD is a Lyme Literate Medical Doctor. It's not an official specialty, but a term used by the lyme community to describe doctors who specialize in treating Lyme.
If you read around on this site, you will notice there is a lot of controversy about the diagnosis and treatment of Lyme.
I was infected with Lyme when I was 12. I never saw the tick, but I had a bug bite with the typical rash. (You can have Lyme without the rash, no matter what any doctor tells you).
I had no other symptoms until I was 18. Then I suddenly had severe swelling in my knee. We never figured out what it was and it eventually went away.
I basically have had pain symptoms ever since, but for many years not significant enough for me to think something was really wrong. It wasn't until I was 27 that things got so bad that I realized I was sick and eventually got diagnosed.
So yes, you could have it and it just laid dormant. It's also possible that having mono activated the immune system to react to the Lyme Disease. I believe food poisoning is what reactivated my Lyme when I was 27.
However, people can also have relapses of mono.
Keep on researching. It's really great that you art taking control of your health and not just relying on doctors. It means you'll find answers much faster.
-Aniek
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Well hi! Glad you decided to post a query here. Lots more Lymies here, than on the other health board.
posted
Welcome. Your search for health will pay off.
Your post reminds me of someone I read of recently who treated their persistent Mono with high-dose vitamin C. I can't recall the exact information, but a little searching found this mention of Mono and C, which might be a start:
You might play around with some vitamin C while you're searching for answers.
Posts: 204 | Registered: Jan 2005
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bettyg
Unregistered
posted
music, welcome & I sent you a PM, privte message with my newbie links...
music, I had mono at age 21 which started my LYME disease. misdiagnosed for 34 years.
Recently had complete body lab testings & would you believe that mono, EPSTEIN BARR VIRUS, still showed up & 3 were shown plus HHV-6, human herpes virus 6 non sexual, & simplex herpes virus! 36 years later!!
Music, when you quote someone, " ", please delete the first 4 characters of 2nd line that looks like this:
[/QB] that makes the post BOLD, and that is really hard on my eyes & others who have had chronic lyme for decades. Thanks so much for helping us out. It causes me headaches.
We all continue to learn on the board; congrats for noticing yourself we like things broken up.
If you want to, you could go up to your 1st post and delete all the text there showing duplicate or you could take your 2nd post after you delete the bold markings and copy/paste it to the 1st note and delete 2nd note to avoid duplicate entries.
We're glad to have you, and will assist you 24/7 since someone is always on the board since we lymies can not sleep!
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Its entirly possible that you have lyme or some of the ticks borne coinfections. 1. Unexplained fevers, sweats, chills, or flushing 2. Unexplained weight change (loss or gain circle one) 3. Fatigue, tiredness, poor stamina 4. Unexplained hair loss 5. Swollen glands: list areas ___ 6. Sore throat 7. Testicular pain/pelvic pain 8. Unexplained menstrual irregularity 9. Unexplained milk production; breast pain 10. Irritable bladder or bladder dysfunction 11. Sexual dysfunction or loss of libido 12. Upset stomach or abdominal pain 13. Change in bowel function (constipation, diarrhea) 14. Chest pain or rib soreness 15. Shortness of breath, cough 16. Heart palpitations, pulse skips, heart block 17. Any history of a heart murmur or valve prolapse? 18. Joint pain or swelling: list joints __ 19. Stiffness of the joints or back 20. Muscle pain or cramps 21. Twitching of the face or other muscles 22. Headache 23. Neck creaks and cracks, neck stiffness, neck pain 24. Tingling, numbness, burning or stabbing sensations, shooting pains, skin hypersensitivity 25. Facial paralysis (Bell's Palsy) 26. Eyes/Vision: double, blurry, increased floaters, light sensitivity 27. Ears/Hearing: buzzing, ringing, ear pain, sound sensitivity 28. Increased motion sickness, vertigo, poor balance 29. Lightheadedness, wooziness, unavoidable need to sit or lie down 30. Tremor 31. Confusion, difficulty in thinking 32. Difficulty with concentration, reading 33. Forgetfulness, poor short term memory, poor attention, problem absorbing new information 34. Disorientation: getting lost, going to wrong places 35. Difficulty with speech or writing; word or name block 36. Mood swings, irritability, depression 37. Disturbed sleep -- too much, too little, fractionated, early awakening 38. Exaggerated symptoms or worse hangover from alcohol http://www.ilads.org/burrascano_1102.html#sympt
Theres alot more information in Newbie links. Welcome
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
A lot of your symptoms sound like the ones I had over many years - many doctors - and no diagnosis.
The hardest part is finding a doctor who believes in lyme and who will test you with a good lyme test using Igenex labs - instead of the test most doctors use (Elisa) which can give you a false negative.
If you can't find a good LLMD (lyme literate MD) there are Fibromyalgia and Fatigue Centers located around the US who do extensive blood work and will test for bacteria such as lyme and for viruses.
Keep searching - you have to be your own health advocate. If I had listened to my pain doctor - I would not know I had lyme and would not be in a treatment program getting well.
posted
What you're experiencing seems to be increasingly common among our generation. The low blood pressure upon standing and the "out of it" you are experiencing is lumped into something called POTS syndrome. You should get a tilt table test to have it documented. Here is a good forum to learn about POTS . You'll find many stories like your own where one begins to suffer from autonomic dysfunction after some kind of viral infection. Now, none of this answers the question of "what is the underlying problem", but it's a start.
Posts: 53 | From tampa | Registered: Mar 2006
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bettyg
Unregistered
posted
Music, God bless you for deleting your bold coding for my eyes! We apprecite you. Bettyg
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LostCityAgent
Unregistered
posted
Hi Music.ftm, I am sorry to hear of your symptoms. As I read through your experience I became amazed to read an experience so similar to mine.
I was 18 as well when this all began. Today I am 27 years old, but, my first signs of LD (Lyme disease) were at your age, with the same exact symptoms.
I hold advanced degrees in biology and chemistry and therefore have had an upper hand in understanding Bb. It was only for this reason that I fought against a diagnosis of MS and was diagnosed with LD.
You must be careful of which physicians you allow to treat you. If it is LD, expect a fight for your true diagnosis. Now, lets take a look at your symptoms:
1. The early pathology of vertigo, blood pressure, and heart palpitations matches mine. As you probably know these symptoms are non-specific for any one disease etiology.
2. The more discreet attack of ``horrible dizziness'', rapid heart rate, the shakes, fear et seq. were a similar presentation to mine.
3. ``swollen painless movable lymph nodes'', ``slight limb weakness'', ``slight dizziness'', ``low blood pressure when standing up'', ``my limbs fall asleep very easily'', some vision disturbances.'' I experienced all of these in a similar sequence around your age.
4. ``an overall feeling of just being out of it.'' This is called ``Malaise'' so when you see a physician say this word to make it easier for yourself to be heard.
To answer your question: yes your symptoms match and yes you could have LD based solely on your clinical symptoms. But on the technical end if you throw a tick in there. I would say, young man, that you are at a much higher risk.
Feel free to PM me if you like. Do not wait to have this treated, like I did.
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