I was diagnosed with LD a year ago. I am slowly, but steadily getting better thru the care of a wonderful LLMD.
After researching LD, I felt sure that my 11 year old son was born with it.
I have been in a very nasty divorce and custody case. My ex has not wanted our son tested for Lyme or co-infections (I have Babs, Bart, and Ehrlichiosis too)
However, at his physical last fall, his non-LLMD pediatrician ordered labs at my insistence. My son first had a negative LD result through LabCorp.
So, I begged his doc to order an Igenex test anyway. The test for Lyme IgG is positive for both CDC and IgeneX criteria.
My son has symptoms of fatigue, tactile, auditory and visual sensitivity, and ADHD (although when he was tested with the IVA test, it was negative)
I had planned on having testing ordered by my son's present pediatrician, then looking for a LLMD if the test was positive.
Well, the pediatrician consulted with the head doc in the practice, and they have decided that according to the test results, my son does not have LD.
My ex's attorney keeps sending me threatening letters warning me not to have any further testing for LD, or have my son treated.
I have made an appointment with the head pediatrician to have him explain his reasoning for interpreting the Igenex test as negative. It just so happens that he is the "ADHD specialist" in the office, and even has a radio program dedicated to such.
Now, my ex wants to come to the appointment to hear what this doc has to say, along with the Guardian ad Litem and arbitrator.
I was planning to drop off some good LD articles to this doc before the appointment, such as Dr. J's Explains the Western Blot, information on IgeneX (as my ex is saying that this is "a lab on the internet") and Lyme and Kids articles.
This is really crucial. If this doc holds his ground as feeling that my son does not have LD, my ex would probably try to prevent me from seeking a LLMD.
I would greatly appreciate some help on the best way to approach this problem.
Thanks so much.
Margie
Posts: 89 | From Northern Virginia | Registered: Oct 2005
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posted
I am so sorry you have to go through this! How absolutely frustrating.
Go to the LDA's web site and print out the brochure "The ABC's of Lyme Disease". One of the articles specifically mentions ADD. Bring copies for everyone and underline the areas that will help with your case. www.lymediseaseassociation.org
Also there is another brocure that is titled "What you need to know about ILADS and Lyme Disease" at www.ilads.org . Again, bring copies for everyone and underline the areas that will help with your case.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
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