Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I've been getting this really anxious feeling that is accompanied by uncontrolled movements. A neurologist diagnosed the movements as motor tic disorder, induced by Lyme.
I'm wondering if other people get this very anxious feeling or not. It feels somewhat like what I remember adrenaline shots felt like. I used to get them years ago for asthma attacks.
The feeling can be really bad when I wake up. I'll often press snooze for an hour in hopes of the feeling going away.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Carol B
Unregistered
posted
Really just wanted to say Hi.
The only way I can respond is that a seizure aura can give you an anxious feeling, followed by uncontrolled movements can be seizure activity ,too
I'm sure that's not the answer you wanted though. Sorry.
I'm surprised a neurologist didn't pick up on that-unless I am not understanding you correctly.
I'm having too much fun playing with the smileys tonight-hope it doesn't get on your nerves for such a serious subject.
posted
Didnt someone just mention morning symptoms like that related to hypoglycemia? Alan
-------------------- Charter member of the ~ Delux Toasting Club ~ Our Moto: "Take No Prisoners" Posts: 95 | From San Diego | Registered: Nov 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Carol - Smileys are fine. I had an EEG and it was normal, no seizure activity.
Thereminator - hypoglycemia is interesting. I know I am slightly hypoglycemic.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
Sounds to me a lot like restless leg syndrome. The "leg" part is really a misnomer...it is more like restless body. It does make you feel like you just got a big dose of adrenaline (even if you feel perfectly calm) and you have an incredible urge (and need) just to move. You feel like if you had to sit still you would go out of your mind. It is really really unpleasant.
It seems that RLS is a fairly common side effect to neuro involvement and neurotoxicity. There are a couple of different drugs that can help "calm" that need to move until your body has a chance to clear the toxins, which you might want to ask your doc about.
Just my humble opinion! Good luck!
Posts: 393 | From Washington, DC | Registered: Jun 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
hey Aniek
I get this at night the most when I am trying to fall to sleep but without the uncontrolled body movements.
It gets much worse when I am herxing.
Been told it's restless legg syndrome. I get nervous and anxious. As long as I move something like my leggs
or re-position myself, I don't get as much anxious. Needless to say this is not the best thing to have when I am trying to get to sleep. A 1/4 to 1/2 valium on occasion helps. I have heard people say muscle relaxers like flexerial help too. But be careful with either for long term use.
I believe it is from neurolocial damage from the lyme. Never had pre-lyme. The last 3 years of treatment have helped. But like I said when I am herxing it can be hard to bear.
I hope you can find something that helps and find some inner peace
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
I'm on Flexeril. Been on it for over 2 years because it's the only thing that keeps the muscle pain down.
I have an appointment with a new alternative doc in a few weeks. He's an environmental specialist who has worked with autistics. I'm hoping he can give some guidance. I think this is out of my LLMD's knowledge.
The weird thing is that most people say RLS happens when going to sleep. I'm fine going to sleep. It's when I wake up or in the middle of the day that it hits.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
I get the body anxiety to. It doesn't matter if I move around, sit down or whatever...I will feel anxious for no reason. It will make me snappy and irritable too.
It sounds kind of ridiculous, but usually it means for me that my brain is on overload with stress and emotion, so to be honest I will sit down and cry...like sob...for a good 5 or 10 minutes.
Afterwards I'll thrown on an episode of a favorite show...and I'll be back to normal after its over.
Doing this has made it so I could start quitting the Buspar..I have been cutting down on my doses since this started. It feels like my brain can't handle everything, so it comes out via my body unless I let it out a different way.
Posts: 594 | From NJ/NY | Registered: Jun 2006
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I took muscle relaxants and got no relief from the RLS. The only things I have found that quiet the urge to move and anxious feeling are dopamine agonists, and clonazapam. After a year of lyme tx I am almost completely off of both of those drugs. Now I take some supportive supplements for adrenals and neuro support which seems to help.
Good luck! I hope you find some relief.
Posts: 393 | From Washington, DC | Registered: Jun 2005
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Aniek
Yep I get feeling like that sometimes--
Seem to come and go threw time--
I quit drinking caffine and it helped a bunch too-- Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
elley, yes, mine is worse with stress. And I do break down and cry often when I have it, but that's mostly because I can't stop my body from moving. I cried a good 10 minutes in a bathroom stall at work this morning because my hand wouldn't stop shaking.
docjen, I'm on the Flexeril for muscle pain, not this issue. It literally gave me my life back. I've been on Lyme treatment for over 2 years now, but this came on during a period that I was on lower abx because of GI issues. I think it's so bad right now because it's my on cycle for Flagyl.
Jay, Tried no caffeine. Doesn't seem to make a difference. I'm not a huge caffeine person anyway.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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