posted
Dr. V concurs that since I have been off abx for 4 weeks (took myself off cuz of yeast) and I feel fabulous -running 3 miles at 610AM most mornings, and the wee little symptoms I have left are nothing major... I am off abx and will see how it goes. She thinks my symptoms may completely disappear (just a little twitching, sole pain and swollen patch behind both knees.) I CAN LIVE WITH THIS! YEEHAH! Been on abx since December 2005. I've come a long way. Positive attitude helps! Good luck! Julie
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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posted
Did you have Chronic Lyme? For how long? I am just curious because I have been on abx for as long as you have and I am lucky if I get out for a walk these days! I have had Lyme for over 10 years apparently.
Also, what abx did you take and at what dosage? Inquiring minds want to know.
Posts: 331 | From virginia | Registered: Nov 2005
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posted
I have had lyme for 3 years. Did not know what it was until October/Nov 2005, abx started Dec 2005. I definitely had neurolyme but not sure what the definition of chronic lyme is. Is 3 years chronic lyme? I would think so.
Started with ceftin which helped symptoms but made huge strides with tinidazole and zithromax combo which I started in January. It basically ran the little buggers out of my system and I am a good detoxer so it was amazing "watching" them leave.
Then I went back to Ceftin after 6 weeks on tini zithro, stayed on that for 6 weeks, was much better, then one last blast at the tini zithro (about 4 weeks then I was overrun with yeast and stopped) and it was pretty much gone.
I don't think I had as bad a case as some of you all. But I was pretty sick there for a while but it really was mostly neurological through the whole thing. Yes running - love it - it is a GREAT way to get in shape. Could not do it last summer, believe me. Julie
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
I am so very happy for you!! Could you please send some of those "cure" vibes my way and to lots of others still suffering-we could use them!
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Way to go jsnyder. I am also happy for you and that you are back to running. Thats so awesome.
Now. I am not going to rain on your parade, but couldn't live with myself unless I said the following advice:
Be careful on the future for any signs of the lyme coming back. Some would say 3 years is chronic.
If you find yourself under stress and find the old symtoms come sneaking back- don't be afraid to go jump back on some abx .
Keep on running ,feeling positive and enjoying life!!!!!
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Hi Dana, I realize I am not totally out of the woods yet. I appreciate your warning. I just feel so great and I am so happy I had to let everyone know.
I rue the day any weird symptoms rear their ugly head again! I really honestly don't anticipate it though. It is a intuitional thing and some positive thinking maybe?
But thanks for your advice. I do know. Julie
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
Hi Julie, this is Mike over by Wausau. Glad to hear you're doing well.
Two things concern me, the rashes on the back of your legs and sole pain. Could be bartonella symptoms or maybe your soles are sore from all the running ?
Sometimes the minor symptoms at the end of treatment can be from adrenal malfunction. Simplisticly speaking, they get in a heightened state due to a long infection and never quite get back in a relaxed state.
Our doc had my son do the following on a daily basis to correct the adrenals:
pantothenic acid B-complex vitamin e magnesium Lot's of powdered vitamin c [10,000mg p-day]
His remaing aches and pains cleared in about 10 days never to return. [So far, so good] Just some food for thought. All the best, Mike
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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bettyg
Unregistered
posted
Congrats Julie! Looks like we both had pretty good reports from Dr. V!
Next Monday I had to your home town to Allergy Asst., Dr. K, for Tues. appt. ... likely all day since I've never been there before.
Are you working or at home? May be there would be a chance to meet since we have PM each other. Anyway HAPPY for you.
Running? I can't walk with my cane down to my neighbor's house without being so winded & pure pain. Bettyg
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
That's marvelous.
Could you tell us that if you had co-infection and/or had been treated for co-infections.
posted
Hi - Mike- It isn't a rash on the backs of my knees - it is a pocket of flesh that is typical of lymies apparently. It's called planters something or other I think. I have seen it referred to on the board.
The sole pain is negligable but I have had it on and off -nothing like PAIN -but pain nonetheless. My Dr. V. did not seem to think I have bart. I tested negative for that and all other co infections. She treats for symptoms too but she just didn't see enough evidence that I had bart. I thank you for your advice about the adrenals. Sounds like good advice that could most definitely apply to me as my hormones were really affected by lyme. My thyroid went nuts - it went from really bad to really good with treatment in a very short amount of time (thankyou Armour!).
So there you have it. Oh by the way this reminds me Mike you have been a tremendous help and so have many others like Marnie and Lymetoo Jay, et al -thanks so much -this board rocks. Betty - private message to you. xoxo Julie
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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Question for you. What were your symptoms when you first started treatment? Just wondering what kind of neurological symptoms you had.
~David
-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hey jsnyde2
I just wanted to share a qoute from one of my all time favorite movies- chariots of Fire. I watch this movie many times because I just love to watch the runner runs and one of the runners who say this in the movie(the one who throws his head back when he runs) my favorite part:
" I want to compare running a race to life."
"where does the power come to see the race to its end...from within"
You remind me of this movie and the line in it that has given me inner confidence over the years.
Thanks for sharing your success story.
Blessings always
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
Thanks for the inspirational words Dana, I need to rent that movie again - haven't seen it since I have been a runner myself.
David, I had strange things happen to me physically but rarely for the first couple years after being bit. But then neuro symptoms started July 2005 -a year ago. July 3 - left hand very weak -remained that way for at least a month. Couldn't get money out of my billfold. July 5 twitching started my worst and most persistent symptom. I twitched constantly and in places I didn't know one had muscles!
Sometime in July brain fog set in. Said refrigerator when I meant microwave and mixed words up alot. In retrospect I had experienced this at least a year and a half previous to this.
August 9 pain shooting through my body - mostly extremities including fingers. Full body jolts -woke with a jolt one night and bit my tongue! Pain shooting through my body often felt like electrical current or like hot pain. Continued through until treatment.
Sometime in July while trying to get diagnosed I thought it might partly be carpel tunnel because I had severe pain in my right hand and limited dexterity. In both hands.
Somtime in July while running my legs felt like cement - I could no longer run. I noticed walking the one flight of stairs in my house made my legs feel as fatigues as if I had climbed 40 flights.
Sometime in August noticed increased saliva production and also my muscles in my tongue and throat doing weird things. Byt his time I thought I had ALS.
That was about it - was referred to an LLMD by a woman I met at a barbecue that had twitching in the same places I had been and she had just been diagnosed with lyme.
Slow but steady recovery. Yay! Oh the brain fog was first to go, then muscle weakness, then shooting pain and still kind of fighting twitching but it is much better. In fact it is rare - only when I am dehydrated. Hope this helps. Julie
Posts: 351 | From La Crosse, WI | Registered: Sep 2005
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posted
Great News. So glad to hear your are feeling better and using it to the max!!
Im not in the "be afraid of tomorrows collapse so take it cautiously" camp. I feel so bad so often that when I have a good day I use it to the max too.
I went off antibiotics for about 3 weeks and the first 2 were fantastic until the crash. Dam!!! He changed my scrips and Im doing better again.
Since Im sick from having had the vaccine I may never get completely well but If I just get better thats good enough for me to live and love living.
The success stories are the most helpful things on this web site cuz they give hope and so many of us have been without that for so long.
Lets all hope to be the best we can be and enjoy it to the fullest.
Again it was wonderful reading your post. I feel better already
Posts: 561 | From connecticut | Registered: May 2004
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