posted
I'md doing fairly well except I have pain in my jaw, neck (feels like tmj), thoracic and low back. I still have some residual neuro symptoms but these are the last remaining symptoms I just can't seem to get rid of.
The TMJ flared up after I replaced 2 crowns that sat side by side. I see a TMJ/bite specialist next week but wondered if lyme could still be lingering from what I've described?
Lately I've been seeing my chiro which provides very temporaray relief...nothing long term.
Posts: 911 | Registered: Mar 2005
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Yes. These are definitely lyme symptoms. Do you have root canals and/or amalgams?
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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posted
I'm with you - add ear pain and tinitus and these are my most prominent symptoms. Ibuprophen helps but 11 months lyme treatment including 10 weeks Rocephin hasn't nixed these symptoms.
I too still have some nuero symtoms - vasculitis like feelings. I am beginning to think coinfection?
Posts: 87 | From Yorktown VA USA | Registered: Jul 2005
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valymemom
Frequent Contributor (1K+ posts)
Member # 7076
posted
My son has those symptoms.....has for years and after abx teatment for 3 years he is being treated for babs. I think this is why IV and even IM bicillin hasn't helped.....because of this co-infection.
What does your llmd think?
Posts: 1240 | From Centreville,VA | Registered: Mar 2005
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posted
My LLMD tested me for co infections and nothing came back positive except Babesia but it was only borderline according to him (means I likely have it). Testing was done through Igenex.
I too am suspecting co infections. I know they don't always show up as positive even though you can have them. I wish he'd treat me for them..I might have to find a new LLMD.
Luvs2ride I have 2 amalgams left and 3 root canals. My next 2 amalgams will come out in September. I've not addressed the root canal issue. Yes they could be a problem but I'm not financially able to afford doing anything about them.
I'm a single mom going through a bad divorce and money is very tight.
Posts: 911 | Registered: Mar 2005
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posted
My TMJ almost always flares up after a dentist appointment because I have to keep my mouth open for some time.
I have been having severe tension type headaches for more than a week, and they seem to be from my TMJ.
Due to too much flare, I had to reduce ABXs (Doxy and Biaxin) back in mid May, and I finally started feeling better (or not Herxing much at all) mid June.
So, my LLMD told me to increase Biaxin very gradually (one pill every two weeks) at my last appointment late June.
I am still on very low dose of Biaxin, compared to what I was taking before, so I am not sure if this headache/TMJ thing is the Herxing or could be from something else.
I have had TMJ for a long time for on and off, so this is not a new thing, but this time nothing seems to help, and it feels somewhat different.
I have been wearing a nightguard at night, taking Baclofen about a week, and taking Fioricet, which my neurologist prescribed for tension headaches, constantly.
I have pain behind and inside the ears, and sometimes a shooting pain comes on. Chewing food hurts my head, not my jaw though.
Sometimes the pain is kind of throbbing (though a brief one), but I don't think it's migraine.
For some reasons, my jaw joints feel differently (less sore) than other times when I had TMJ headaches.
I am not sure what's really going on now.
Also, my whole body seems to be stiff these days.
Is it possible to be Herxing this much by going from Biaxin 3 days a week (once a day) to 4 days a week (still once a day)?
If TMJ is one of Lyme symptoms, is it considered part of Lyme arthritis?
So, is it possible that Babs is causing this?
I have Reactive Arthritis triggered by salmonella too, so it's complicated.
I think I have a long way to go.
shizuko
Posts: 110 | From Northern Virginia | Registered: Nov 2005
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posted
Yes, think co-infections! (in my non-MD opinion, that is...)
My horrendous neck pain/spasms that I've had for 18 years is finally disappearing with Babs treatment!!!!! (I had a negative test, but lots of sx, so I asked to be treated anyways)
It got a bit better with the Lyme treatment, but didn't really turn a corner until we started treating for babs, too.
Any symptoms that don't seem to be resolving with treatment would make me think co-infection (either tickborne or otherwise, like mycoplasma, virus, etc.) Again just my opinion.
If you have a positive test for babs, TREAT IT!! Babs can be just as bad as lyme, and can interfere with you getting better.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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