posted
Hi, Most here know me. I had my visit with the LLMD today about where I am at. He wants to up my dose and to, by August 3, have me on 3 different anti-biotics. I cannot spell them yet.
Doxy will be uped to 400 mg, Flagyl maybe added, et al. Also, at my request he has agreed to prescribe LDN.
One of the drugs he is considering, apparently, causes cancer in lab rats. He does not think that it will be a problem, however.
He is a kind man and feels that my leg problems are a result of problems in my lower back: NOT A HERX.
I believe that if you feel your LLMD is truly a good LLMD then you must trust him and try his approach if it is reasonable. Yes I have heard about Flagyl with the CA in labrats but it did not stop me from taking it.
I haven't researched Tinidiazole (alternative to flagyl) to see if it could case CA as well. What other alternative do we have but to try the meds to see if they work?
As far as the legs, I have those issues with leg weakness, buzzing, paresthesia, etc A couple times with major herxes I could not walk but that went away when inflammation died down. I know what you are going through.
I have disc issues in my lower back that caused sciatica in a severe way. Otherwise I don't know if our leg issues are similar.
What is LDN?
Hang in there.
-------------------- We have only this moment, sparkling like a star in our hand... and melting like a snowflake. Let us use it before it is too late. Posts: 221 | From the hills | Registered: Mar 2006
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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LostCityAgent
Unregistered
posted
Low Dose Naltrexone
"LDN may well be the most important therapeutic breakthrough in over fifty years. It provides a new method of medical treatment by mobilizing the natural defenses of one's own immune system." -- David Gluck, MD
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by LostCityAgent:
I AM SO CONFUSED.
why confused I have beeen 3 different abx's lots of times.
Flagyl is the one that is suppose to cause c I have been on that one on and off 3 4 months at a time.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
OH yeah, I asked that question the last time you brought it up!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
John, I've been considering LDN for several months. Just when I get ready to ask my doc about it, things get a little better and I decide to wait.
I've heard some really great things about it. Just make sure you use a formulary pharmacy that uses the pure powder and doesn't just pulverize the commercial tablets. There are additives in those that could confuse the issue, I think.
Hope it works great for you, and I trust you will post about your experience with it.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
Yo John.
'Bout time you got off that weensy doxy dose.
400 mg is 'bout right for a big fella like you.
Flagyl will bust some cyst butt. You might also be seeing increased herxing, headaches, mean stuff. Don't let it scare you; it's a GOOD thing.
I think your doc is probably right; leg stuff can happen because of pinched/compressed nerves in low back even without frank herniation. Even annular bulging or mild disc degeneration could do it.
Several meds at once? WELCOME TO THE CLUB!!! Really, that's the norm, rather than the exception.
I've no experience with LDN, sorry.
Hang on for the ride. Don't get discouraged if it gets tough. Make a vow right now. OK?
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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posted
I tried LDN about 1 1/2 years ago for MS (my long-standing diagnosis before my chronic Lyme diagnosis last month). Most people start LDN at either 3.0 or 4.5 mg. I am super senstive to most medicines, so I started at 1.5 and increased to 3.0. I did NOT have any of the side effects that most people who take LDN have. In fact, I had some improvements in several "MS" symptoms. The only reason I stopped was because of severe headaches - which actually continued afterwards anyway and I'm now sure are from Lyme.
I am very curious to know if others are using LDN for Lyme. I thought I saw a post here somewhere that we shouldn't take LDN if we have Lyme. I certainly would reconsider it if the LLMDs think it's okay.
If you do decide to get an LDN Rx - be sure to use one of the recommended pharmacists. Skip's Pharmacy in South Florida is the most popular and possibly the least expensive - he ships anywhere. I used Irmat's in NY because he agreed to use acidophilus as a filler - 4.5 mg is such a small amount that you have to add filler to the capsule.
Jill
Posts: 49 | From Orlando, Florida | Registered: Jun 2006
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