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Was checking the website for info to request test kits for hubby's upcoming endoscopy.
Called the lab -- Test #430 Borrellia Lonestari (Southern Lyme Disease) by Real-Time PCR Test has been available for about a month now. Cost is $130 if lab submits to insurance directly or $78 if patient pays upfront and submits to insurance themselves.
posted
Super interesting. No, I've not known about it.
Before treatment, I had participated in a clinical trial for people with CAEBV. I didn't have this disease, I had lyme, but they took a significant amount of blood. I wonder if I can speak to the researcher, as they said on the concent form that the blood would be stored for a long time, if some of this blood can be tested for Borrelia Lonestari.
Great find!
Posts: 559 | From Cary, NC | Registered: May 2006
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The lab director, Dr Richard Tilton called me back. In general PCR from blood is usually positive for Lyme disease only 4 - 6% of the time. However, PCR from biopsy of rash may be positive for Lyme disease up to 75% of the time.
Mentioned that if you took 35 blood specimans from the same person that the odds of a positive PCR would increase to around 50%. Doesn't sound too promising to get a positive PCR from a stomach biopsy, but we will probably send at least a couple of biopsy samples for Lyme.
Undecided at this time whether to also test for borrelia lonestari. The lab director couldn't give any stats yet as the test is so new.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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All 4 tested, all 4 Negative for stari according
to test.
Posts: 399 | From Texas | Registered: Apr 2005
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bettyg
Unregistered
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lyme science, what is CAEBV? thanks!
Bea, I think you or someone else posted about this when it occurred. Thanks for the update to us all.
Hubby, good luck on your endoscopy. I've had 2. What are they looking for? Mine found some "mysterious" thing, so I redid endo 6 mo. later. When I had a non-related surgery for colon polyp where they took my apendix, I had them check that area. All they found was "FAT"! Bettyg
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