posted
I know this is getting to be the big question I keep asking over and over but please be patient with me.
Dr. switched me to levaquin for the next month of treatment.
I was on biaxin but started a rash and hives here and there and he wanted to switch me to be careful.
He askes me each month if I want to stay on my antibotic or change to a new one? I hate him asking me cuz shouldn't he be the one to decide, he knows everything right?
I seem to have a cycle of every 4 weeks or so being very ill. Does this mean I should stay on or change antibiotic? He thinks I am herxing. Doesn't this mean its working, why change?????
I am so confussed, I hate lyme.....
I never got tested for co-infections, is this really important to do? How do I know what to hit this bug or bugs with? My western blot I have posted on previous post before, it was some possitive bands and some indeterminate and some postive on bands he wasn't sure meant what??
Yikes
Posts: 33 | From OH | Registered: Feb 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Yikes,
It sounds like your doctor isn't really familiar with Lyme, is the case? I'm saying this because of your statement that he wasn't sure what some of the bands meant.
I think it's vital you trust your doctor. If you don't trust your doctor, than I would try to find a new one. I know that's not always possible with Lyme.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Carol B
Unregistered
posted
I, too , would question the docs knowledge of Lyme. I am following the course my LLMD has set for me which is not easy because of sensitivities and so many other medicines involved. She knows more about what antibiotics treat what, and she does the prescribing. I usually go straight home to look up the med on internet, or this board. All I can tell you is that on some medicl form I had to have filled out -she said "duration of treatment-unknown" meaning it depends on my personal response to the treatment-but I know it is months if not years.
I just wanted to add one thing which is that treating lyme and co-infections can be very very frustrating and unfortunately as far as I understand there are no set rules that work for every person.
So while 2 people might have lyme...one person might do better on tetra and the other do better on doxy. The problem is that a lot of it seems to be trial and error.
The doctor that you see should be an LLMD in order to give yourself the best shot possible at beating this thing.
What kind of symptoms are you having?
I agree that it's very confusing but hang in there and perhaps look into a different dr.
-David
-------------------- Same nightmare, different day! Posts: 401 | From East Coast | Registered: Nov 2005
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posted
the thing of it is that I am going to a LLMD who was reccommended by several on this site.
He seems to know alot about lyme and my POTS.
He sees alot of lymes patients, I picked up flyers at the office last visit, he gives talks and lectures on it to.
I'd like to talk to others who are his patients to compare treatment, but I know were not supposed to include dr's name and such. What would be the appropriate way to put this question out there? Just genereal area and initials or is that even to much?
I am in NE OH, who would I get a second oppinion from?
yikes
Posts: 33 | From OH | Registered: Feb 2006
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posted
Hello, I am just in the begaining of all of the Lyme's thing. I have enough for the Clinical DX, but am waiting on the blood work and going to see LLMD in CO. (still waiting on there call) The thing is I also have POTS/ NCS. I know how hard it is to find a doctor that is good at treating POTS, so if you found a LLMD that also treat POTS I would try to stay with them. THat said I still would yhink of getting a 2nd option to make sure everything you doctro is doing is right, but I turly know how had it is to find good Doctors. I live in Iowa and I go to the Cleveland CLinic to see a doctor the for my POTS, now it looks loke I am going to CO, for a LLMD.
I wish you the best! Posts: 51 | From Des Moines, Iowa | Registered: Jul 2006
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posted
Hello, I am just in the begaining of all of the Lyme's thing. I have enough for the Clinical DX, but am waiting on the blood work and going to see LLMD in CO. (still waiting on there call) The thing is I also have POTS/ NCS. I know how hard it is to find a doctor that is good at treating POTS, so if you found a LLMD that also treat POTS I would try to stay with them. THat said I still would yhink of getting a 2nd option to make sure everything you doctro is doing is right, but I turly know how had it is to find good Doctors. I live in Iowa and I go to the Cleveland CLinic to see a doctor the for my POTS, now it looks loke I am going to CO, for a LLMD.
I wish you the best! Posts: 51 | From Des Moines, Iowa | Registered: Jul 2006
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