LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » The Importance of Seeking an LLMD

 - UBBFriend: Email this page to someone!    
Author Topic: The Importance of Seeking an LLMD
richtersl
LymeNet Contributor
Member # 2554

Icon 7 posted      Profile for richtersl     Send New Private Message       Edit/Delete Post   Reply With Quote 
It's been a while since I've posted anything and after glancing through the forums it's nice to see some old familiar faces still here! [Big Grin]

Recently I got what would best be termed as a "mystery bite". I had been on a garden tour here in Bucks County, PA just days before this mystery bite made its presence known. The bite was roughly 2 inches in diameter with a clear center. In the middle of the light area was a hard brown something-or-other. My husband took a look at it with a magnifying glass and could see that something was burrowed under the skin but could not make out what it was.

The mystery bite looked a lot like the one that gave me Lyme so I wasn't about to screw around and called a doctor across the river in Hunterdon County, NJ. Hunterdon County is an endemic area for Lyme so I gave this place the benefit of the doubt thinking that if it wasn't a tick bite they could at least tell me what it was or, if it was a tick bite, they would treat it accordingly. In the meantime I also had some sort of itchy rash not related to the bite and figured while I'm there they can give me something for that too.

I had no problem securing an appointment. I saw two doctors at this particular office and I will call them Dr. A and Dr. B for simplicity's sake. Dr. A was the one with whom I had the appointment.

Dr. A tells me the bite I have does not look like a Lyme tick bite. I remind Dr. A that the bite has a clear center and a red ring around it and that I am very suspicious of it. Dr. A looks at the other rash and has no idea what it is. Now mind you, Dr. A never examined the bite. In the meantime Dr. A leaves the examining room and goes to fetch Dr. B.

Dr. B does not examine the mystery bite either, and swears to me it is not Lyme. I remind Dr. B of the clear center and the red ring and how it closely resembled the original bite that gave me Lyme. Dr. B then gets all huffy and says that anyone who could say that's a Lyme tick bite doesn't know what they're talking about. I then ask Dr. B about the hard lump in the center and could it result in an infection. Dr. B said that it might and if it did I can schedule another appointment. [Roll Eyes] Yeah, and pay more $$ to their practice and if in 6 months I get symptoms they'll still swear it's not Lyme and put me on steroids, antidepressants, whatever. [Mad] Dr. B really copped an attitude. Dr. B could not tell me what the other rash was other than it was "some sort of contact dermatitis". They gave me a script for the contact dermatitis but not even a precautionary dose of antibiotics for the bite. I guess their HMO scorecard meant more to them than my health.

I was seething as I left the office.

The next day I call my LLMD in Ocean County, NJ and make the hour's trip there. The LLMD takes one look at the bite, and says "I do not like the way that looks." The LLMD then proceeds to get a magnifier to examine it more closely to see what's embedded in there. That turned out to be just a blood blister, probably what was left of the bite. LLMD prescribed a month's worth of Zithro and also recommended taking Samento/Cat's Claw with that as a precautionary measure. I showed the LLMD the other rash. LLMD takes one look at that and says, "Good God, Linda, that's poison oak!" No generic "contact dermatitis" diagnosis here.

If neither doctor at the Hunterdon County place could not diagnose a case of poison oak, then how they hell will they be able to diagnose Lyme Disease?

I've already lived through a nightmare with Lyme and I was not about to repeat that!

If you're a newbie here, never be afraid to ask for a second opinion. And please, seek out an LLMD for your health's sake.

--------------------
Linda

Posts: 749 | From New Hope, PA | Registered: May 2002  |  IP: Logged | Report this post to a Moderator
Carol B
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Hope many newbies read this post as it is a real cautionary tale. I was so gullible when I went to an ignorant Duck the first time. He even diagnosed correctly based on the rash(es), but then treated inadequately. [Frown]
Hence I eventually wound up in an LLMD's office with chronic lyme two years later. So glad you listened to your inner instincts-and got back to an LLMD so quickly. Hope all goes well for you.

Carol

IP: Logged | Report this post to a Moderator
robi
Frequent Contributor (1K+ posts)
Member # 5547

Icon 1 posted      Profile for robi     Send New Private Message       Edit/Delete Post   Reply With Quote 
richertsl!!!!!!!!!! so good to see you and see you are doing well ........... way to go on your proacive stance!!


robi .......

you may not remember me, but you helped me in the past.

--------------------
Now, since I put reality on the back burner, my days are jam-packed and fun-filled. ..........lily tomlin as 'trudy'

Posts: 2503 | From here | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
bettyg
Unregistered


Icon 1 posted            Edit/Delete Post   Reply With Quote 
Breaking this up for us neuro lymies to read & comprehend by shorter paragraphs and one blank line between each paragraph....

quote:
Originally posted by richtersl:

It's been a while since I've posted anything and after glancing through the forums it's nice to see some old familiar faces still here! [Big Grin]

Recently I got what would best be termed as a "mystery bite". I had been on a garden tour here in Bucks County, PA just days before this mystery bite made its presence known. The bite was roughly 2 inches in diameter with a clear center. In the middle of the light area was a hard brown something-or-other.

My husband took a look at it with a magnifying glass and could see that something was burrowed under the skin but could not make out what it was.

The mystery bite looked a lot like the one that gave me Lyme so I wasn't about to screw around and called a doctor across the river in Hunterdon County, NJ. Hunterdon County is an endemic area for Lyme so I gave this place the benefit of the doubt thinking that if it wasn't a tick bite they could at least tell me what it was or, if it was a tick bite, they would treat it accordingly.

In the meantime I also had some sort of itchy rash not related to the bite and figured while I'm there they can give me something for that too.

I had no problem securing an appointment. I saw two doctors at this particular office and I will call them Dr. A and Dr. B for simplicity's sake. Dr. A was the one with whom I had the appointment.

Dr. A tells me the bite I have does not look like a Lyme tick bite. I remind Dr. A that the bite has a clear center and a red ring around it and that I am very suspicious of it.

Dr. A looks at the other rash and has no idea what it is. Now mind you, Dr. A never examined the bite. In the meantime Dr. A leaves the examining room and goes to fetch Dr. B.

Dr. B does not examine the mystery bite either, and swears to me it is not Lyme. I remind Dr. B of the clear center and the red ring and how it closely resembled the original bite that gave me Lyme. Dr. B then gets all huffy and says that anyone who could say that's a Lyme tick bite doesn't know what they're talking about.

I then ask Dr. B about the hard lump in the center and could it result in an infection. Dr. B said that it might and if it did I can schedule another appointment. [Roll Eyes]

Yeah, and pay more $$ to their practice and if in 6 months I get symptoms they'll still swear it's not Lyme and put me on steroids, antidepressants, whatever. [Mad]

Dr. B really copped an attitude. Dr. B could not tell me what the other rash was other than it was "some sort of contact dermatitis".

They gave me a script for the contact dermatitis but not even a precautionary dose of antibiotics for the bite. I guess their HMO scorecard meant more to them than my health. I was seething as I left the office.

The next day I call my LLMD in Ocean County, NJ and make the hour's trip there. The LLMD takes one look at the bite, and says "I do not like the way that looks."

The LLMD then proceeds to get a magnifier to examine it more closely to see what's embedded in there. That turned out to be just a blood blister, probably what was left of the bite.

LLMD prescribed a month's worth of Zithro and also recommended taking Samento/Cat's Claw with that as a precautionary measure. I showed the LLMD the other rash. LLMD takes one look at that and says, " Good God, Linda, that's poison oak!" No generic "contact dermatitis" diagnosis here.

If neither doctor at the Hunterdon County place could not diagnose a case of poison oak, then how they hell will they be able to diagnose Lyme Disease?

I've already lived through a nightmare with Lyme and I was not about to repeat that!

If you're a newbie here, never be afraid to ask for a second opinion. And please, seek out an LLMD for your health's sake .

Thanks for a very important statement! Do NOT be afraid to ask for 2nd opinion. Seek another GOOD LLMD for your health's sake IF YOUR GUT INTUITION tells you something feels wrong and you are getting the run around!
IP: Logged | Report this post to a Moderator
richtersl
LymeNet Contributor
Member # 2554

Icon 7 posted      Profile for richtersl     Send New Private Message       Edit/Delete Post   Reply With Quote 
What absolutely shocked me about the visit to the first place was Dr. B's unprofessional attitude. [Eek!] [cussing]

It unnerved me so much that I never got the chance to tell that duck I had yanked the tick out of that first bite myself and that what had surprised me the most about it was its size: it was tiny and black!

I knew the bite wasn't right but didn't worry because I had no immediate symptoms such as a fever. I didn't even see a doctor about it. The symptoms started appearing months later and by then I was in pretty bad shape and difficult to diagnose. This was in the early 80's.

This was the scenario I wanted to avoid at all costs. [Cool]

You know, if I could only post doctor names on this board, I would tell you to avoid that first place like the plague.

P.S. Hey robi, of course I remember you! Hope everything is going well.

--------------------
Linda

Posts: 749 | From New Hope, PA | Registered: May 2002  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.