Topic: Medical tests for neurological involvement?
hshbmom
Frequent Contributor (1K+ posts)
Member # 9478
posted
What medical tests can be performed to document the neurological effects of LD?
My typing skills were severely affected during my recent illness with LD, but I've noticed a great improvement.
I mispelled elementary words and missed spelling errors while proof-reading. I repeated myself frequently while speaking. I still have trouble saying the right word while speaking. I might think of the right word, but a different word comes out of my mouth.
I've been on antibiotics since I first developed the rash. I'm much better, but am not 100% yet.
I found a Lyme specialist as fast as possible. There were no LLMDs here & I couldn't find any Lyme friendly MDs either.
I'm still waiting for all my results, but I found out I have Babesia and Lyme.
I was surprised by the rapid involvement of so many systems. I had hip soreness with the expanding red rash, closely followed by a stiff neck, restless legs, painful ankle, heel pain, pelvic pain, and the neurological signs. I had all these signs within one week of the tick bite.
Nancy
Posts: 1672 | From AL/WV/OH | Registered: Jun 2006
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I had major nuero symptoms last year. After 12 months of abx, most of the cognitive problems have resolved. The nuerologist that insisted I didn't have lyme suggested cognitive function testing. I declined, I wanted to get better not measure the damage.
You are very fortunate to be on top of this right of way. It sounds like you are starting to get better. Why do you want the damage documented so early? Especially since it should be temporary.
Keep fighting and good luck.
Posts: 87 | From Yorktown VA USA | Registered: Jul 2005
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posted
I agree with yorktown. Skip the neuro testing unless ordered by LLMD, who is better able to interpret the results. Don't give neuros a chance to put the wrong diagnosis on the results, possibly leading to trouble down the line with ins co, etc.
Posts: 8430 | From Not available | Registered: Oct 2000
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posted
I agree with lou about the insurance thing especially. My dx of MS was listed as "probable MS" which is a true dx. I never had an MRI or a spinal tap to warrant the dx.
Two years ago my husband and I decided we needed to get life insurance. My premium is doubled because of the probable MS on my chart. My current doctors are fighting to get it off my chart but the insurance company won't accept it from them. They want it from the original neuro who isn't being very cooperative at the time.
If it was me and I was getting better I would skip the neuro tests. You already know you have neuro problems. I wouldn't let a neuro dig around, they seem to always be able to find something besides Lyme disease.
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