posted
I have a long story, I think I have LYme but initial round of tests at local lab came back neg, even an antigen at Igenex came back negative but was not able to follow exact protocol.
I have been out of work for a month now. A few years back I had a TERRIBLE flu with the worst joint pains insomnia ever. I could not step outside withough sunglasses, floaters. Have history with tick bite, ticks, (nature walks),dogs, live in Massachusetts.
A month ago, had lower back ache and did not feel well, doc prescribed Avelox for me and I went about business. Well, after that all the joint pains and insomnia came back worse than ever,then a new and alarming symptom: I could not speak without terrible stuttering and funny gait.
two z pacs later and speech was much improved but doc still thinks MS, dysautonomia.she prescribed my cefuroxime in the interim to hold me over to help me feel better mentally I think. sHe is very kind and wonderful
This goes on: Insomnia, urinary difficulties, cough,sometimes hard to read, sometimes dialing wrong numbers, mixing up words, bad word recall (now is when bloodwork was done-last few years ago it was lost cuz doc suspected Lyme at time)
Now no one believes me or wants to listen to me anymore about what is going on as far as family or friends. THey all but roll their eyes.
I am lonely since I am not working. shocked to see that no one really cares when you really need them them most! Everyone else is enjoying their summer! I am a young woman and have been working hard at overcoming one thing or another for ten years! Looking forward to some laughter and joy- and fun times- trying to incorporate it now--
I hunted down a specialist who reviewed my case and called me back immediately telling me his secretary would book an appt so I have one on Sept 13-which seems eons away but I know it is not. Emergency room recommend seeing a neuro which is fine but I am afraid/pretty sure they will not know about lyme.
I had to go to the emergency room twice now because LYme has reactivated a Panic disorder that took me years to completely overcome. I have not had one in three years with no medication. Now They are back.
Of course this could be a colossal coincidence that I do not have LYme but it seems I have every sympton!! In which case my friends and family would be able to confirm the fact that they think I am crazy, It gets to the point where I am doubting myself which is ridiculous
I have an appt with neuro tomorrow and am a nervous wreck they will say something frightening. I feel safer at this point with LYme as it is at least treatable.
Also--can Untreated LYme cause yeast on your tongue?
Thank you whoever may help!
Posts: 225 | From home | Registered: Aug 2006
| IP: Logged |
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Im no doctor, but it sounds like you *may* have lyme disease, especially given you were bitten, and yep, you do have alot of the symptoms.
Make sure you pursue seeing a LLMD- one recommended by someone with lyme. ( that always helps to make sure the doc really knows their stuff about lyme).
Don't worry about what your family says. Mine thinks Im nuts, which doesn't bother me one Iota because they are sicker than me in other ways.
You can get your life back.
Lyme CAN cause yeast. Any infection can cause normal flora to grow out of control, so can diet and alcohol, or anything else that suppresses the immune system including antibiotics used to TREAT infections.
You have to be diligent treating yeast AND lyme.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
| IP: Logged |
posted
Hi 'I want help'...Glad you found us..please please for your first step seek out a lyme doctor..the others are a waste of time...
you can post on the seeking dr board on this site. I see you are in mass.that was the site of my first bite..with very similar symptoms that you are having now...I see a dr. in ny state just over the border...please private message me if you would like info to contact him..
if you supected cancer you would go to a specialist right? don't waste vaulable time with docs that don't know about this disease...
good luck on your journey and I hope you get the answers you are looking for.
daniella
-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
| IP: Logged |
posted
Hi, I am not sure where you are from. I am from ILLINOIS and I was mis diagnosed with MS and the treatment for MS set me back with My lyme disease. Your sypmtoms sounds alot like mine.
Local labs are not accurate in testing lyme disease. I was tested twice with local labs and I came back neg. I then seen a Lyme literate doctor and had a lyme test done at IGENEX and came up positive. And I have had so much improvement with the treatment of lyme.
I knew something was wrong when they said I had MS and the treatment was making me worse.
IF I were you I would see an LLMD and go from there. IF you dont you will always wonder!
Good Luck!
Posts: 61 | From ILLINOIS | Registered: Nov 2005
| IP: Logged |
posted
I sent you a Private Massage (PM) with a list of New England LLMDs (Lyme Literate Medical Doctors).
Sounds like Lyme is a very strong possibility. There's lots of great info here on LymeNet. Stick around. hatsnscarfs
Posts: 956 | From MA | Registered: Nov 2004
| IP: Logged |
5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi i want help
If you suspect lyme don't waste any more time in finding a LLMD.
The blood tests for lyme can be inaccurate no matter which lab you use. CDC negative isn't worth the paper it's printed on.
Here's a link about why you can have lyme & still test negative:
posted
hi, i can definately understand your anxiety. even though it could definately be lyme, take the first step and go to a neuro, there are a lot of things than can mimic lyme and i think first of all having proper testing done could be very releiving to you and also rule out other kinds of things.
then, search out a llmd to further pursue treatment. massachusetts does have a high rate of lyme disease, and treatment is based on clinical diagnosis but i think a trip to the opthamologist and neurologist would not hurt.
i know there are alot of people against this course of treatment but it doesn't hurt, it's scarey, god read my posts i know but if it's lyme it's reaffirming that other things get checked out so it's one less thing to worry about. don't forgot modern medicine and skip right to a llmd because for a lot of things there are treatments that CAN help and you don't want to put off if that's the case.
i have been where you are and have been exgtremely frightening at seeing an opthamologist and neurologist but so far all the "scarey" testing i have been through has been negative which is relieving and reaffirming to me......
hope this helps karen
Posts: 68 | From uxbridge, mass | Registered: Jul 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[confused]](graemlins/confused.gif)
trying to incorporate it now--
Printer-friendly view of this topic