Latley i have been having a nightmire of problems but i WILL start from the beginging.
I have been on antibiotics for six months strait now, i did a run of rochepin 12 weeks and doxy for four weeks with it, saw some improvements but developed a reaction to iv, then we switched to all orals,
i did a combonation of zithrowmax clindamycin and flagyl for a little over TWO MONTHS and was seeing some major inprovement toward the end of it, faar from better though.
then we switched to mepron and all he$$ broke lose, it is like i woke up a sleeping monster inside of me, i crawled through my first thre weeks of it but got a bit worried after i took my week break and my symtoms didnt inprove,
then made it throught another five days before i had to stop the mepron/zith altoghether. Know i am on clindamycin and taking art for the last four days but still really sick,
symtoms since starting mepron have been, horrible fatigue, sweats , air hunger at times, nerve pain, horrible headaches witch i havent had since i first got sick in march of 05, bitten october 04,
the chest pain i was having got a little better for a while , but now worse since off mepron.
I am just in so much pain and dont know what to do anymore, i feel like i am dying some days and it gets pretty scary, this disease really sucks at 19, atleast i have my parents,lymie friends and doctor who is great. without them i think i would be dead.
I have babs, bart, lyme left i think.
Posts: 82 | From Northeast WI | Registered: Oct 2005
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MADDOG
Frequent Contributor (1K+ posts)
Member # 18
posted
Hi,Sorry to hear you are having such a hard time.
Sounds like a babbs herx.sometimes babbs is worse than lyme ever thought of being.
Hopefully time will taper off the toxins.
MADDOG
Posts: 4083 | From Ohio | Registered: Oct 2000
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
The increased symptoms you mention really sound like babs symptoms. The mepron is probably working and you are herxing.
I've heard mepron is really difficult to handle. You may want to do a search on mepron, or post a question specific to looking for help handling mepron.
It may be that you are treating too much, too fast. Maybe talk to your LLMD about slowing down.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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my ambien is kicking in right now and i am enjoying a pain free moment before falling asleep, its weird how my sleeping pill takes away my pain.
Posts: 82 | From Northeast WI | Registered: Oct 2005
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posted
Oh, so sorry you are hurting so much!!! Those DO sound like babs symptoms -- and yes, a lot of folks apparently herx like the devil on treatment for babs. (I have been blessed -- I felt amazingly better immediately after starting Mepron?artemisinin -- of course, I felt just like you do now BEFORE I started it...)
Are you detoxing your system while in treatment??? I'm a big, huge believer in lots and lots of detoxing while doing aggressive treatment -- both the toxins from die-off and the chemicals released by our bodies (cytokines in particular) can cause a host of toxin-related symptoms....
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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liz28
Unregistered
posted
I always found that artemisinin (sp?) supplements helped A LOT, even if the effect was only temporary.
Also, you might be stirring the bart up, if you still have it. Everybody's different, but the symptoms you described sounded very barty.
A whole lot of people relapse once they go off mepron, too (alas, welcome to the club), so while you are jumping into the babesia fray, it might be worthwhile and time-saving to just get rid of the bart. The herx is intense, and can last over a month, but there's a high success rate on rifampin and/or levaquin. Again, you can damp down the babesia symptoms with artemisinin in the meantime.
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bettyg
Unregistered
posted
sol, so sorry to read about how bad you are herxing, but at least it IS doing something inside your body on killing off those spirochetes!
I don't have any co-infections luckily; so haven't been on the many RX meds you have been on; thank you God!
Have you been in touch with NP40 from Wisc. He has a group email list of lymies he sends things to and we help one another; yes, I'm one of the LUCKY ones on his list! They got me set up with my out of state Minn. LLMD.
Best wishes and hang in there. I've had this 36 yrs., 34 MISDIAGNOSED, and 2 yrs. in lyme treatment. My 7-3-6 LLMD appt., LLMD said I'M IN REMISSION!
There are many YOUNG folks on the board who are so sick also: LYMEFIGHTS, BLACKBIRDSINGS are the 2 who come to my mind immediately but know there are also in LATE TEENS, EARLY 20S.
We hope our shared experience can help you overcome this horrible time in your life! Bettyg
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Mepron Active Ingredients: Atovaquone Oral Suspension Representative Names: Mepron Available Product Images:
What is atovaquone oral suspension? What should my health care professional know before I take atovaquone? How should I take this medicine? What if I miss a dose? What drug(s) may interact with atovaquone? What side effects may I notice from taking atovaquone? What should I watch for while taking atovaquone? Where can I keep my medicine?
What is atovaquone oral suspension?
ATOVAQUONE (Mepron�) is an antiinfective agent used to treat or prevent Pneumocystis carinii pneumonia (PCP). It is also used for the prevention or treatment of toxoplasmosis. These infections commonly affect patients whose immune systems are not working properly such as HIV-infected (AIDS) patients. In some areas of the world, this medication is used to treat or prevent malaria. Generic atovaquone oral suspension is not yet available.
What should my health care professional know before I take atovaquone?
They need to know if you have any of these conditions: *decreased appetite or poor eating habits *continual diarrhea, or other stomach or intestine problems *an unusual or allergic reaction to atovaquone, other medicines, foods, dyes, or preservatives *pregnant or trying to get pregnant *breast-feeding
How should I take this medicine?
Take atovaquone oral suspension by mouth. Follow the directions on the prescription label. Shake gently before using. Use a specially marked spoon or container to measure your medicine. Ask your pharmacist if you do not have one; household spoons are not always accurate. Take your doses at regular intervals. Do not take your medicine more often than directed. Finish the full course prescribed by your prescriber or health care professional even if you think your condition is better. Do not stop taking except on your prescriber's advice.
You must take atovaquone with food, a meal, or with a full glass of a nutritional supplement shake to make sure the medication is absorbed into your system. Your infection may not be treated properly if you fail to take your medicine with food.
Contact your pediatrician or health care professional regarding the use of this medicine in children. Special care may be needed.
What if I miss a dose?
If you miss a dose, take it as soon as you can. If it is almost time for your next dose, take only that dose. Do not take double or extra doses.
What drug(s) may interact with atovaquone? (Back to top) *bosentan *lopinavir; ritonavir *rifampin *rifabutin *rifapentine *ritonavir
Tell your prescriber or health care professional about all other medicines you are taking, including non-prescription medicines, nutritional supplements, or herbal products. Also tell your prescriber or health care professional if you are a frequent user of drinks with caffeine or alcohol, if you smoke, or if you use illegal drugs. These may affect the way your medicine works. Check with your health care professional before stopping or starting any of your medicines.
What side effects may I notice from taking atovaquone?
It is not easy to tell which side effects occur from taking atovaquone or result from the disease being treated. Side effects that you should report to your prescriber or health care professional as soon as possible: *difficulty breathing or increased shortness of breath *increased coughing *fever or chills *sore throat or white patches in the mouth (thrush) *skin rash, itching *unusual tiredness or weakness
Side effects that usually do not require medical attention (report to your prescriber or health care professional if they continue or are bothersome): *diarrhea *headache *nausea, vomiting *runny nose, sinus problems *stomach pain
What should I watch for while taking atovaquone?
You must visit your prescriber or health care professional for regular checks on your progress. Tell your prescriber or health care professional if your symptoms do not improve in a few days, or if your symptoms are getting worse.
It is important to take atovaquone with meals, as the presence of food increases absorption of atovaquone from the stomach. Tell your prescriber or health care professional if your stomach is continually upset, or atovaquone causes nausea and vomiting. Stomach problems can stop atovaquone being absorbed into your blood stream.
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