Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Has anyone else experienced these isolated abdominal pains?
My right upper ab (GB area) and right lower ab (appendix, ovary areas) are continuing to ache with intermittent sharp pains. These places are very tender to the touch. This has been ongoing for the past month or more.
But all blood, UA, and other testing seem fine.
My doc thinks this is all lymph back-up, and while I am doing somewhat better with other symptoms since discontinuing Ketek and trying many detox remedies, these areas have not improved at all.
Can anyone shed any light on this, or offer any words of advice?
I am really perplexed, and would sure like to see a resolution with these particular symptoms (?)
Thanks so much in advance. Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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liz28
Unregistered
posted
I take at least four liver supports while on ketek. Otherwise those symptoms come back right away.
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Dont forget yeast hun
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I have had issues with my stomach and my lower right abdomen since the start of all this. All tests are coming back negative.
My thought is that the lyme is affecting my nerves, making my stomach and intestinal tract contract, spasm, hurt, etc.
Its the only thing I can think of.
Posts: 594 | From NJ/NY | Registered: Jun 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Yup. I even had to acute attacks that seemed like gallbladder attacks. In my case, my pancreatic enzymes are elevated.
I take an antispasmodic when I feel tenderness, and it seems to help. It's called Nulev.
My LLMD thinks its pancreatitis caused by the Lyme or babesia.
My new doc treating my autonomic nervous system disfunction thinks it is related to that. He says that it is probably muscle spasms caused by the ANS disfunction. He is treating me with amino acids, based on my own deficiencies, and B-12 with folic acid.
Of course, he thinks most of my symptoms are from the ANS disfunction, which was caused by the Lyme.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
Have you tried castor oil packs over the area? IV glutathione can also help to heal and detox the liver and galbladder. Even just once a week would help.
-------------------- You're only a failure when you stop trying. Posts: 945 | From U.S | Registered: Oct 2004
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I have pain in those same exact places although not so severe. Thay are rarely stabbing.
Both places are sore/aching and feel like pulling(hard to explain) and both are still tender to touch.
The lower one is considerably more bothersome at this point than the upper. (Which seems to be more diffuse now and somehow involved with the rib pain as well.)
At this point the pain is somewhat intermittant and seems to have taken a back seat when the arthritic stuff hit really hard (also on my right side). The bigger pain wins I suppose.
Sorry, I wish I had some great words of advice. Eating more seems to help somewhat with the upper one.
I recently saw my internist, who has no real interest in TBDs, when I asked about those 2 spots said... "Have you ever had a colonoscopy?" To which I said, "Nope, too young, only 49 1/2." His reply was, "Next time". My labs all came back normal, as well.
My gut feeling on this, sorry for the pun, is that perhaps these are areas where the infection is/has been hiding and the Meds are getting to them. Boy, I hope that's the case.
I hope someone comes along with a better reply than mine and that the pains stop soon.
-------------------- more light, more love more truth and more innovation Posts: 3783 | From somewhere other than here | Registered: May 2005
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Nal
Frequent Contributor (1K+ posts)
Member # 6801
posted
Yes, I get the same symptoms.
All my tests were normal too until I insisted on a new hida scan of my gallbladder. Thats when they found out its not functioning properly at all.
Yes, I am having it removed in hopes that it will at least help SOME of my GI pain a little. The dr told me that my GB sits kinda low and that if its inflamed, it could be irritating the intestinal tract as well causing problems.
Who knows. Have you had a hida scan done? Ultrasounds are not always reliable when it comes to GB issues without any stones present.
Nancy
-------------------- Life is 10% what happens to you, 90% how you respond to it!
-Chuck Swindoll Posts: 1594 | From Colorado | Registered: Jan 2005
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quote:Originally posted by Melanie Reber: Has anyone else experienced these isolated abdominal pains?
My right upper ab (GB area) and right lower ab (appendix, ovary areas) are continuing to ache with intermittent sharp pains. These places are very tender to the touch. This has been ongoing for the past month or more. Melanie
Hi Melanie,
I was visiting LN yesterday in search of answers for my Dad and I saw your post. It's good to see you, but it's not nice to read that you are having problems. Hopefully, you will bounce back quickly. I have had very similar symptoms to the ones you have described during my own battle with Lyme and co-infections, so I thought I would share some of the things that helped me. (I apologize in advance if others have already shared any of these remedies.)
I would often times have tenderness, pain and a feeling of congestion in my URQ (upper right quadrant). Regarding my URQ pain, I feel certain that mine was due to my gall bladder and liver. I found silymarin (milk thistle) to be gentle and helpful in my case.
I lived on Mark Konlee's whole-lemon olive drink, which helps to move lymph and seems great for gall bladder congestion. (My posts on that no longer exist, but his info can be found here: http://www.keephopealive.org/lemondrk.html ) I would urge you to proceed with caution when it comes to the whole-lemon olive drink, especially if you have a lot of pain and tenderness. You don't want to dislodge a stone or create more problems than you already have.
In the past, I have eased into the whole-lemon olive drink just by adding a little bit of fresh lemon juice to water and sipping it throughout the day until I could tolerate more, eventually transitioning to the full lemon olive drink. Don't even try that if you think it would upset your GI tract. It is better to proceed slowly and with caution. It's really wonderful, but only when you can tolerate it.
I have also tried Bio-Active Homeopathic VISCUMFORCE and Nature's Sunshine Lymphatic Drainage (alcohol free herbal extract that you mix with warm water & sip) before I had real answers. Both of those products seemed gentle and beneficial. I hope someone else is familiar with them, because I wouldn't even know where to buy either one these days. There are probably others out there, but those are the ones I used.
I frequently experienced pain in my lower abdomen, mostly on the right side near the appendix and/or my ovary on that side. My OB-gyn even located a growth in that area. My pain flared for a solid year after he performed internal and external ultra-sounds on it. It burned constantly and sometimes it even felt as if a coral snake was chewing venom into my side. He seemed to think it was near my appendix and that the ovarian pain with ovulation was a separate source of inflammation. I just couldn't bring myself to go in for exploratory surgery, because I had lost my health insurance at the time.
I never bothered to have it checked out and I no longer worry about it anymore. The pain first increased and then resolved completely as I journeyed through the MP. I have no tenderness in that area at all anymore, not even with ovulation or menses. As a result of the MP, I have also experienced the disappearance of a documented lump in my breast. It was identified as a fibroid adenoma by biopsy and my doctors told me that it would never decrease in size or go away: It didn't for years... not until I was halfway through the MP.
Because of that, I have extrapolated that both it and the growth my OB-gyn found might have been granulomas or scar tissue. (In my mind, I associate both with Bartonella. I could be wrong about that, but I can't help but wonder about that possibility. I was never able to conquer Bartonella until the MP and it really affected my lymph nodes and stomach, among other things.
As far as coping with the severe pain and discomfort goes, heat (especially moist heat) has always been soothing to both my URQ areas and my LRQ abdominal pain. It helped me to tolerate the LRQ pain, which could be quite severe at times. I have also come to feel that it might have even helped me to dissolve the fatty, cholesterol stones when I had my gall bladder attack so many years ago. (During my most severe gall bladder attacks, I also used Actigall to help dissolve stones.)
I still have my gall bladder and it seems quite healthy these days, even when I run. I say that only because running used to aggravate it in no time at all, even long after I though it had healed and I was well.
Whenever I experienced any lower abdominal pain, I always found I had to switch back from my other probiotics to Culterelle and Bifa. I think Culterelle was more effective than any of the other good brands I have used, because it is a human strain. It seemed to help when nothing else would.
Well, I have made this far too long, but I lack the time to go back and condense it. Please be well and recover from this glitch quickly.
Posts: 487 | From USA | Registered: Feb 2002
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Melanie how are you???
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
Pocono Lyme
Frequent Contributor (1K+ posts)
Member # 5939
posted
Melanie,
Are you OK?
-------------------- 2 Corinthians 12:9-11
9 But he said to me, �My grace is sufficient for you, for my power is made perfect in weakness.� Therefore I will boast all the more gladly about my weaknesses, so that Christ�s power may rest on me. Posts: 1445 | From Poconos, PA | Registered: Jul 2004
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posted
When I was my worst with Lyme, I had incredible pain in lower left abdomen... I had 3 cat scans and ultra sound and they found NOTHING.... I lived on pain pills for about a month, and then it suddenly went away, as fast as it started. I hope yours gets resolved faster... strange pains seem to be part of Lyme and neither the doctors nor we seem to know why.... Laczitag
Posts: 121 | From Sarasota, FL | Registered: Oct 2000
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Melanie, I just had a long reply all ready and hit the wrong button by mistake, poof,gone. Essense of it was I have never ever been accused of being overly qualified to give GOOD advice here, this will be no exception. I think the intestinal clense or coffee thing is or has merrit. The oral cleanse seems so much better or should I say easier, in my opinion.
Bruceallen in General had an extensive thread on it and its good. Also Sunday morning AM radio from a big station here, has my Sunday morning worship services(many of them weekly).
It also has a couple paid infomercials, one of which is an intestional cleanse such as Bruce is talking about. Might be the same or a different one , dont know for sure.
So see I havent damaged my reputation as not giving any GOOD advice yet!! cuz -i-b--just don--
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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AZURE WISH
Frequent Contributor (1K+ posts)
Member # 804
posted
Well In thouse areas I have had pain from the lyme itself (ovarary area all tests said nothing was wrong and I was young years before ovararies were functioning)
I have also had gullbladder pain. Had it out now no problems with that.
I have also had pain in gullbldder area from gastroparesis (delayed stomach emptying). since being put on med and watching what I eat that is much better.
Personally I believe that it was caused by lyme for me and then when I was on stronger pain meds -
It just exacerbated it to the point where I couldnt eat anything. Just all sharp pain all the time.
I have also had problems with my intestines most likely due to the pain meds. (they slow down your digestive track) Things were really not moving through my intestines and that makes them sore -
especially when it keeps going on. Quite a few months of zelnorm (and Quite a wile off the stronger pain meds) and now my intestines are ok. (I am off the zelnorm too now)
Sorry I dont have any answers as to the source of your pain but I thought if I listed mine maybe it would give you some ideas where to start and what to get checked.
Hope some dr. can figure it out and get you relief soon.
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Dear friends,
Please forgive me for taking so long to reply.
Life for me has been very difficult these last few days, weeks, months? Many, many problems healthwise, and otherwise...
But with the incredible help from some very dear friends, I am slowly beginning to pull back out of the dark place I found myself in, and am starting to be able to deal with things once again.
Just trying to tackle one thing at a time...and regaining my sense of hope.
The ab pains continue but are less frequent now and usually less intense. I'm doing everything possible to just make them go away.
Many meds, supps, herbs, and acupuncture, I think, are beginning to work.
I SO APPRECIATE all of your replies here, emails, messages, phone calls, cards, and well wishes, etc.
Liz, I was finally taken off the Ketek after my adventures in the urgent care and ER, thank Goodness. I do think that drug, while it has helped so many, just was not meant for me, and finally, my doc took one look at me and agreed.
Tree-hugger, Yes, the yeast is still very bad. The imaginary bugs have returned. I have been on 200mg of Diflucan daily since 7-28, am doing a very strict no sugar/ low carb diet, but have not seen an improvement yet. I am going to ask about a different med, perhaps nystatin (didn't work for me in the past), or caprylic acid at my next apt. I may also ask for the Candida blood test...perhaps I am dealing with a different strain or something?
I have to admit that I haven't been as consistent as I should be with the probiotics because they have been in the fridge. But now have a shelf stable type, and am doing much better with that.
Elley, Yes, your guess is as valid as anyone's it seems...we are trying everything at this point. Have you read Dr. Sheer's article on Bells of the tummy? Very interesting.
Aniek, Thanks for the additional information. We have no clue why this is happening, except for a probability of lymph adrenal issues...for which I am doing major detox stuff and acupuncture.
Micul, No, I have not tried the castor oil packs, but that sounds interesting, can you tell us more?
Tootsie-Pop, Thanks sweetie!
Bluebird, As you know, eating is difficult for me now...but I am trying to force down food with the meds. I too hope these are/were bugs in hiding that are just really ****ed and are dying!!!
Nancy, The only testing I have had specifically for this besides UAs and renal panels, is a GB ultrasound, which revealed nothing. The ER experience and bill have kept me from wanting to do any further testing. I know you have had many issues with your tummy and I pray that will find relief very soon! Hello to CO for me!
Dolphin and Dana, I have begun Milk thistle again, so hope that will help some.
Lonestartick, Wow, it has been awhile since we have seen your smiling face...thanks for taking the time to drop in and say hello and for such good info. I am SO pleased that you are back on your way to good, I know how you suffered for so very long! As I mentioned above I have added in Milk thistle once more, so thanks for the added vote.
Re: the coffee enemas, I do know that they have helped many, and I am not opposed to trying them, it is just that things are moving too fast already for me in that department!
I do sip on lemon juice practically all day either mixed in water or in my concoction of watered down cranberry juice with aloe juice, thistle, etc. I also try to do salads with olive oil frequently. I know that is not the same thing, but is as close as I have come thus far.
Ouch, I am so pleased that the snake is OUT of your tummy now...I can relate. I could actually feel a swollen ``tube-like'' thing near my lower ab, ovary area last week...very noticeable, felt swollen and sore. Yesterday, I could also feel a peanut sized knot right on the GB area, I even had my acupuncturist feel it so she wouldn't think I was entirely nuts. So, yes, things are inflamed there...and are manifesting in very odd ways.
I do have Bart, and Babs and the ever present LD, so it could be any or all doing this to me...hard to distinguish one from the other, and I do also think that with such a mix each exacerbates the rest.
This is my first stab at true Babs treatment, so I suppose that is why it has been particularly difficult. My Babs symptoms can now be traced back some 23 years.
I am SO pleased that MP worked so well for you! It makes my heart happy and brings a huge smile to my face, thank you for sharing so much of what you have done and the very good news!!! My dream is to run again some day- that is what I plan on, and will do!
Pocono, As always- thank you for checking on me, and for all that you have done for others!
Laczitag, Thanks for sharing...yes, I am also waiting for this to leave...and believe it will eventually, like all the other stuff did!
Hey Don, Darn it, I hate it when that happens! I will try to find the thread you are speaking of...thanks so much! And, BTW...you ARE most helpful!
Azure, Not to worry, you were very helpful actually. I also think something may be up with the digestive track...I have had pretty serious leaky gut in the past, and can relate to constant pain with or without food. The tum is not as severe now, thank Goodness, just occasional cramping...but a very smart gal helped me to finally figure part of that one out. It seems that one should eat PRIOR to taking mega meds.
Funny, still learning something new each day even after years of this
OK, I think it is time for a nap now... Once more THANK YOU each so very much for helping!
Much love, Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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