posted
well i think i failed my test. what a nightmare that was, i actually prefer MRI's lol. anybody ever had one of these. they make you look at dots for an hour in all different positions and then shut your eyes and try to keep your eyes looking at the dot, although your eyes are closed.
then for a finale, they put cool air in both ears, this was awful and started to give me vertigo and then they put warm air in your ears.
at the last part of the test the tech says to me, have you been tired? ( i told her i had a glass of wine with lunch) the last reading looks different. great, now what does that mean. i asked her if the results would be sent to my neuro, she said yes, that's it. i hate when they don't give you a clue but the "tired" comment now has me veering away from lyme again.
it never ends. i'm off to my pcp tonight to ask for abx based on clinical diagnosis, let's keep our fingers crossed that the doc working is not the one that said no, your lyme was negative, wait six weeks and retest.....
shoulder has been sore and weak today....still comes and goes....and leg weak too....i hope abx will start me feeling better so i don't continue to freak out about what else i may have...
thanks for the crossed fingers and all your support lately, it means so much to me.
Posts: 68 | From uxbridge, mass | Registered: Jul 2006
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i hate when they don't give you a clue but the "tired" comment now has me veering away from lyme again.
Why would that make you think it's not Lyme?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I agree with Tutu's question. Fatigue is one of my worst symptoms.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
What is an ENG? I am scheduled for tests where they measure vision and balance but it wasn't referred to as an ENG although it sounds similar.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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posted
i don't know what ENG stands for but is a test to see if you have nsygamus when you move your eyes a certain way.
i've been having bouts of vertigo since this all started six weeks ago. after my mri of head and c-spine were clear, neuro suggested ENG since my vertigo wasn't "central" they think it's peripheral, whatever that means.
so they attach electrodes to your face and make you watch this obnoxious red light move up down and sideways and you spend alot of time looking to the right and looking to the left and looking up at the ceiling and then they say, close your eyes and look in the same direction, don't move...WTF>>>>>>>>how do you keep your eyes closed and pretend to look at something on the wall?
then as a finale, they blow cool and warm air into your ears make you shut your eyes and then open. and then finally after 1.5 hours your done.
air made me have vertigo, i don't think i followed commands very well, it was very confusing, especially after a class of wine and some ativan......lol, i know i'm quite the prize lately.
not to bad, probably better than evoked potentials and lumbar puncture.
good luck, email me if you have more questions karen
Posts: 68 | From uxbridge, mass | Registered: Jul 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Sometimes the tests need to be interpreted by another doctor. The tech performing the test might not know how to interpet it correctly.
Did you really have wine before the test? If so, I would recommend not doing that with future tests. It can have a big impact on results.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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5dana8
Frequent Contributor (1K+ posts)
Member # 7935
posted
Hi firepipernurse
I am sorry you hd such a bad time with your test today.
sorry to vere off topic but why would you go back to your pcp who doesn't sound like he knows much about lyme?
Have you tryed to find a LLMD?
Treating lyme disease is complicated to treat and most pcps don't have a clue or the experience to handle it.
Take care
-------------------- 5dana8 Posts: 4432 | From some where over the rainbow | Registered: Sep 2005
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posted
I had an ENG cause of vertigo. I used to come to a top sign and felt like I was still moving or get a feeling like I was really hung over (I don't even drink).
Have you thought of asking someone to give you doxy for a month? If you herx-this is a strong sign of lyme. It wouldn't do any harm and would get you on the road. Also, it can turn a neg test to positive for some.
I had two neg lyme tests through quest (all docs said you cant have lyme) then I begged a doc to give me doxy, retested through stonybrook labs and it came back CDC positive for IgM.
If you are in new england and have a multisymptom illness where the symptoms come and go--think lyme.
Good luck and be patient with yourself.
-------------------- We are spiritual beings on a human journey...
posted
do not feel so bad firepiper..Maybe we all need a laugh
I am the WORST patient of all time. I faint when they take blood...
when I had my EEG for heavens sake I kept trying to get out of it the whole time
I said "I think I will come back and do this some other time"-with all of those flashing lights and colors were driving me NUTS
I could not sit still with my eyes closed like that for some reason It made me have an anxiety like attack
and I could not just get up and go all wired up~
I asked the technician if I was the worse patient she has ever seen and she said I was the worse that day-but I am sure I am up there on her list
I made it through fine though I tend to just not be a good patient.
If you all want a REAL LAUGH-- a few years ago when I switched docs I looked up within the framweork of my insurance to find one in my hometown (Thought she was in my dad's doc practice)
when I arrived at her office there were toys and a fish tank and cartoons on the wall. I thought I must be at the wrong place.
Well, She talked with me and was sooo nice, she mentioned she does have adult patients (she is regular md) and is getting more because she is so great
she always has same day appts (so unlike my other place)
that I stayed with her!! Isn't that funny
It might have been even funnier if you saw me come out with bugs bunny bandaids on my arms a few weeks ago
I am just a really fun type person so this is funny to me.
We could a use a sense of humor
Kristin:)
Posts: 225 | From home | Registered: Aug 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by firepipersnurse: i don't know what ENG stands for but is a test to see if you have nsygamus when you move your eyes a certain way.
karen
Electronystagmography (ENG)
The eyes are closely linked to the inner ear; these organs depend on each other for good balance and clear vision. Head movement or other stimulation of the inner ear sends signals to the muscles of the eyes via the nervous system; this is called the vestibulo-ocular reflex, or VOR.
The VOR normally generates eye movements that maintain clear vision with head movement. Electronystagmography is a battery (group) of eye-movement tests that look for signs of vestibular dysfunction or neurological problems by measuring nystagmus (a kind of involuntary eye movement) and record other eye movements in order to evaluate certain brain functions. ENG tests are probably the most common ones administered to people with dizziness, vertigo, and/or balance disorders, although the test battery and some testing methods vary widely.
During ENG, eye movements are recorded and analyzed via small electrodes placed on the skin around the eyes. The electrodes attach to the skin with an adhesive, much like a small bandage. Alternatively, eye movements may be recorded by infrared video camera while the person being tested wears goggles instead of sticky-patch electrodes.
While the eye movements are recorded, the person being tested will be asked a series of simple questions that are meant to keep the mind busy and alert during the tests.
One ENG test evaluates the movement of the eyes as they follow a moving target. Another observes eye movements as the head is positioned in different directions. During the caloric test (sometimes called bi-thermal caloric or mono-thermal caloric), warm or cold water or air is circulated in the ear canal. The temperature change stimulates the inner ear in order to test the nystagmus response.
From VEDA publication F-6, Diagnostic Tests for Vestibular Problems.
For further information, see also VEDA publication E-8, Common Misconceptions about ENG (Electronystagmography).
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