posted
Everything came together yesterday, boom! Home health nurse, medication, picc line. AND insurance is paying 100%! For me and my daughter, 3 months.
I am mentally preparing myself for the herx.
Thank you NP40 == I will keep taking flagyl. Very good advice.
Flagyl caused a severe depression 5 weeks ago, lasted for 2 weeks. I saw psych yesterday. He just said keep taking prozac as a prophylactic and probably there is not more that psychiatry can do. However, he does not know lyme. No psych here does.
I have had 5 good days, relatively. More than I have in 5 years. At times I feel "almost" "normal". I see progress that orals have provided for a year, and also detox, diet, attitude . . . and the support of all of you!
Let's see what happens on this rocephin.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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NO my LLMD did not also prescribe actigall and I am worried about it. I told her. I will see her in a month and ask again. I know everyone has said to take actigall but what can I do if she doesn't think it is necessary?
Yes I am taking flagyl because NP40 said that rocephin is known to cause the L form to go into the Cyst form. So people do great and then relapse because the spirochetes sense a hostile environment.
I am also taking biaxin.
I have decided to pulse the flagyl according to my bodymind. It made me very depressed a few weeks ago. Two days after I stopped I was myself. I will take it for a few days or weeks until I start to feel sh***y and then take a break.
I am hoping the rocephin does not make me too crazy.
PS I am a spiritual being with a goddam human body going through a goddam human experience LOL (sorry about the goddam if it offends anyone) (sometimes explitives are necessary with this disease)
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
hi jeff - ask your doc to do a gall bladder ultrasound - both my doc and i were surprised to find out that i have stones!!! are you being followed with cbc's and liver function panels? within a couple of weeks my liver enzymes went up and the doc didn't want to start a second antibiotic until things were at least stable...
have been on rocephn 3+ months and zith about a month - am finally starting to feel better - i know i will have to add flagyl in eventually...
i find that i tolerate rocephin better in 250 cc normal saline instead of 100 - probably just like the extra fluid! also, my liver enzymes normalized after i started doing a daily drink comprised of a whole lemon and olive oil and water blended and increased liver support and gall bladder support herbs....
good luck, deb
Posts: 122 | From richmond, ca, usa | Registered: Feb 2004
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Hope all goes well with the IV Rocephin. My son will be on Actigall when starting the Rocephihn.
How many here have ultrasounds done while on the Rocephin and Actigal? I wanted some opinions.
Thanks!
Posts: 488 | From NY | Registered: Oct 2004
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
I had ultrasounds done monthly while on IV rocephin, and I was on actigall daily.
Jeff~ www.ilads.org has a pamphlet entitled "what psychiatrists should know about lyme disease" (or something like that). Print it out and pass it along.
Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
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