posted
Here is the e-mail so you can send you e-mails [email protected] I have sent mine already He's on the 4.00pm news again day 4 in the hospital theres also a womans story on about her struggle with LD
-------------------- kk Posts: 821 | From nashville tn usa | Registered: Sep 2001
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
I saw that on tonight's news. Seems he is having quite a time with fevers.
Thanks for the address.
Posts: 1366 | From Southeast | Registered: Sep 2005
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I've sent him a nice short one as well- I can feel the tide turning folks! Public consciousness is a strange beast...we will wake up one day and everyone will be talking about how something has to be done about lyme- I have no doubt
best health, Sarah
Posts: 119 | From new york, NY, USA | Registered: Apr 2005
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bettyg
Unregistered
posted
Mary from Canada, FANTASTIC, succinct letter you wrote of the high points of lyme/co-infections! Bravo; my is off to you.
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bettyg
Unregistered
posted
Mary J, that was such an exceptional email you wrote, I borrowed parts of it without reinventing everything to same me time, and it had so much "heart" to it! Here's what I just sent!
Dear Gov. Bredesen,
Wishing you speedy recovery from someone who has chronic lyme disease of 36 years; 34 yrs. MISdiagnosed, and 2 yrs. in lyme treatment.
As you must know, tick-borne diseases are very often misdiagnosed and under-treated. Lyme disease mimics 300 other illnesses! No wonder it took between 45-50 to correctly diagnose me during those 34 years!
The length of tick attachment does not matter. There is either disease transmission or there is not. In your case there was.
I would take at least 8 weeks of heavy antibiotic treatment to be sure to eradicate any disease since the spirochete cycle is every 28 days!
YOU can be CURED; I can NOT be; but hope to go to remission and have some QUALITY OF LIFE left.
I hope you were tested for LYME at IGENEX, Calif. since they test all 16 protein bands, and the numbers showing positive are very helpful to your LLMD, lyme literate MD, in treating you.
Be sure to discuss with your doctors the possibility of having more than one tick-borne disease as this is very common.
The other 2 USA tick labs we recommend doing this are: MD Labs in NJ; Bowen labs in Florida, and Igenex in Calif. (From other lymie experiences, the rest do NOT test for all bands and all strains.)
As state governor, you are now in a great position to understand the problems encountered by victims of tick-borne diseases, who are NOT treated soon enough or long enough,
I trust you will use this knowledge accordingly including talking to Pres. George Bush about your personal experiences with this fatal, if not treated properly, disease as well as the CDC!
If you would like to talk to any of us with chronic lyme, we invite you to join anonymously if you wish at: www.lymenet.org which is a 24/7 educational and SUPPORT group online system with unlimited personal/professional resources!
Best regards, Betty Gordon, Ames, Iowa
I also attached a copy of my online LYME brochure of info that Ann-Ohio recently edited July 06.
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We're all in this TBD mess together so I write when and where it's needed. Be it BC, TN or whatever. I've learned so very much from the wonderful people at lymenet since infection 3 years ago.
When the big breakthrough comes it could be any state or province and the domino effect will follow.
Now having said that, I suggest you keep an eye on canlyme, the province of Nova Scotia in particular.
The big break might be happening there right now as the provincial govt is contacting Lyme patients.
It's premature for me to say much more right now as it only began just yesterday but it would seem that TBDs have finally captured their attention.
Your support would be more than welcome at canlyme because, as we all know, TBDs know no borders.
Thread "meeting in Dartmouth...." is the one to watch right now and there will be others to come as like I said, this is breaking news.
I really really hope this is it!
Mary
Posts: 267 | From Abbotsford BC | Registered: Jul 2003
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Boomerang
Frequent Contributor (1K+ posts)
Member # 7979
posted
Great letter Mary! You made some excellent points in a short concise note.
It does feel like the "tide might be turning" a bit.
Posts: 1366 | From Southeast | Registered: Sep 2005
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bettyg
Unregistered
posted
Mary, thanks for your comments; I'll look for Dunmark, sp, post! You've got my curiousity, and yes, lyme/TB has NO borders. I'll be happy to email a note here & there as well. I love to sound off; guess it's something I am still good at!
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