LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » got my test results

 - UBBFriend: Email this page to someone!    
Author Topic: got my test results
madhattan
Member
Member # 9760

Icon 1 posted      Profile for madhattan     Send New Private Message       Edit/Delete Post   Reply With Quote 
Hey all,

I wanted to post my test results from Igenex and other labs. Unfortunately, after 5 weeks of therapy I am exactly the same.

I know it takes a long time, but I wanted my extreme symptoms to lessen a little bit, so I feel like I'm at the end of my rope.

To recap, this is what happens to me EVERY 5-10 SECONDS for, like, past 130 days:

1) burning, acidic nerve/muscle pains
2) bone throbbing

3) electric shocks -- like static shocks but about 5 times worse
4) water dripping or feeling like I'm walking in it every time I move!

5) stabbing pains
6) hot wax/internal bleeding sensations

7) involuntary jerking
8) muscle twitching

NONSTOP...I once had a 3 hour break, but that's about it. It's pure torture. Anyway, what do you think about my test results?

Abs. CD8-CD57+ Lymphs = 42 (LOW)
tested positive for HLA DR4

Igenex IgG
__________

All negative except
**39 kDa IND

**41 kDa +

58 kDa +


Igenex IgM
__________

All negative except Indeterminate on **39 kDa and **41kDa.

Also, abnormalities from Immunosciences Lab:

IgG Variable Major Antigen 2.1 range 0-2
CD4+ Cell to Antigen A 16.0 range 0-10

CD4+ Cell to Antigen B 13.0 range 0-10
TNF-A Lyme Antigen (A+B)*2 1020 range 0-1000

borderline Lyme TNF-A Medium *1 996 range 0-1000

Do things add up? Thoughts? Hope you are all better than I am, that's for sure!

Posts: 33 | From New York | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

Icon 1 posted      Profile for SForsgren         Edit/Delete Post   Reply With Quote 
Not a clear picture, but Lyme is a clinical diagnosis. I would have tested for coinfections as well like Babesia, Ehrlichia, Bartonella. I don't understand why any doctor would miss that opportunity. The Immunosciences test is not clear to me. I have done their Lyme panel, but it is more than what you have presented. 39 is a Bb specific band and thus does show some evidence, but it could be that your immune response is weak and that with treatment, the test will become more positive. I know there is nothing definite here, but for many of us, that is the way it is. It takes time to put all the puzzle pieces together. You might also want to consider energetic medical diagnostic approaches with EAV, ART, etc. Be well

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Band 39 is Lyme specific. Do you have a know tick bite or other history of exposure?

REad this:

Western Blot explanation:
http://tinyurl.com/ffn3x

from the above link:

Band 39: Unknown what this antigen is, but based on research at the National Institute of Health (NIH), other Borrelia (such as Borrelia recurrentis that causes relapsing fever), do not even have the genetics to code for the 39 kDa antigen, much less produce it. It is the most specific antibody for borreliosis of all.


What meds are you on? Were you on meds when the tests were done?

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
madhattan
Member
Member # 9760

Icon 1 posted      Profile for madhattan     Send New Private Message       Edit/Delete Post   Reply With Quote 
Thanks very much for your responses. I tested negative for the 3 co-infections.

I wasn't on any antibiotics when the blood tests were taken. I have been on cedax, minocycline, and plaquenil for five weeks, but I am changing the cedax to biaxin starting today.

Posts: 33 | From New York | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Well, maybe that will do the trick! I loved Biaxin for what it did for me.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
madhattan
Member
Member # 9760

Icon 1 posted      Profile for madhattan     Send New Private Message       Edit/Delete Post   Reply With Quote 
Really, Lymetoo? Thanks for giving me a bit of hope. I just want 1 hour of relief...just 1 hour!!
Posts: 33 | From New York | Registered: Aug 2006  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
Frequent Contributor (1K+ posts)
Member # 6789

Icon 10 posted      Profile for HEATHERKISS     Send New Private Message       Edit/Delete Post   Reply With Quote 
My first drug was biaxin. after 5 weeks the pain in my hands went away. good luck!

Hope it works for you.

--------------------
HEATHER

 -

Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
Lymetoo
Moderator
Member # 743

Icon 1 posted      Profile for Lymetoo     Send New Private Message       Edit/Delete Post   Reply With Quote 
Really! It does give you a metallic taste in the mouth....but it's worth it!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
SForsgren
Frequent Contributor (1K+ posts)
Member # 7686

Icon 1 posted      Profile for SForsgren         Edit/Delete Post   Reply With Quote 
Believe the co-infection results as much as you would Lyme results....in other words, my money would still be that you do have co-infections if you have tick-borne disease.

--------------------
Be well,
Scott

Posts: 4617 | From San Jose, CA | Registered: Jul 2005  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.