posted
i have been suffering with this disease for over 2 years long time reader on this board but havent posted much. I have experienced this disease first hand with getting better and getting worse and i feel as if i have come to a conclusion as to why at least i feel so tired. I didnt realize how exausted and tired and stressed out my body really is until i was switched to flagyl a few days ago which seems to be clearing me up (should have been on it a long time ago). All my life i have been striving for sucess in life and achieving everything i put my mind too and with this disease slowing me down alot it has only made me have to try harder. I think i like many others have been in such a daze for a long time because of this disease fogging our realization up that it has made me to push and push and push and not stop until my body just cant handle it anymore. Now the past few days i was switched to flagyl 750 a day and i am stilll taking bicilling injections twice every 4 days, that i have realized a sense of clarity. I feel as if my brain fog and derealization has really been clearing up the past couple of days and im feeling extremely tired not from a herx or nething i believe but just that i am in realization now and i actually realize how tired my body reallly is anyone else feeling like this??
Posts: 41 | From new jersey | Registered: Apr 2006
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posted
If I'm reading your post correctly, I believe you are saying that the fatigue has to do with pushing ourselves too hard. I think there is likely an element of truth to this...
I know that I have always been an overachiever, and I was sick for many years without knowing why... so, like you, I pushed even harder. Yes, I fatigued myself by doing this -- I needed a lot more rest than I was allowing myself to get.
That said, I do know that herxing can cause fatigue that is nearly unbearable (so can untreated lyme/other infections.) Even folks who rest and relax a lot, or even who are bedbound, can experience an organic fatigue that is not related to activity level but rather to illness.
It is so hard to have a normal life when one is as ill as most of us on the board are. Things that would be within a normal day's work for a healthy person are much, much more tiring when one is ill and in pain. So, the overachievers among us (and there are many) are at a double disadvantage in terms of the energy output needed for their accomplishments.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
When our bodies are stressed, from the disease, from the treatment and from pushing too hard, they don't work properly.
I searched out an alternative doctor to help with my treatment because I could just feel I was exhausting my body.
I discovered I am extremely low in amino acids and I have autonomic nervous system disfunction.
Years of Lyme (I was undiagnosed for 17 years, treatment for 2+ years) was so much stress on my system. My body just can't function under stress anymore.
I've noticed a huge increase in energy since starting to take supplements targeted for my ANS disfunction. In particular, amino acids that I'm deficient in and sublingual B-12 with folic acid.
According to the doctor treating this, I couldn't get this under control without the supplements. When you get too low in amino acids, your body can't digest food properly so you can't get nutrients out of the food.
You can't even get the amino acids out of food, so it's a nasty little cycle.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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