posted
Hi, I was diagnosed with lyme back in 2002 and have been on maintenance antibiotics ever since. I recently developed a new symptom I thought was lyme related because it's so weird. I constantly feel like I'm on a boat and that I'm walking on unsteady ground. I ran across mal de debarquement syndrome on the net, and the symptoms are identical to what I'm experiencing. It's a persistent rocking or disequilibrium sensation after prolonged exposure to motion. I was on vacation in July on a lake and was on a boat frequently, and hung out on a dock that constantly moved. That's when I first noticed the symptom. It lessens when I'm in a car and when I'm lying down. Does anyone have any experiences with this? Mal de debarquement is rare. How likely is it that I have lyme and this?
Posts: 26 | From Washington | Registered: Aug 2006
| IP: Logged |
I've felt that type of thing before, but it goes away after being off the item in motion for awhile.
Do they list any treatments for it??
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
| IP: Logged |
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
I've had this symptom before- this rocking back and forth inside myself, almost feeling weightless, like Im walking on bubbles when I walk.
Babesia treatment and lyme treatment took care of this for me ( with major yeast treatment as well).
Im curious. When you say "maintenace abx" for years... what do you mean by that? Im just curious as to why you have been on maintenance abx for so long, and wondering if you have had coinfections and what not treated.
I had that unpleasant symptom though for five months. It was the most nervewracking time of my lymed life.
-------------------- You want your life back? Take it. Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
| IP: Logged |
bettyg
Unregistered
posted
quote:Originally posted by olivia_ham: Hi, I was diagnosed with lyme back in 2002 and have been on maintenance antibiotics ever since . I recently developed a new symptom I thought was lyme related because it's so weird.
I constantly feel like I'm on a boat and that I'm walking on unsteady ground . I ran across mal de debarquement syndrome on the net, and the symptoms are identical to what I'm experiencing .
It's a persistent rocking or disequilibrium sensation after prolonged exposure to motion.
I was on vacation in July on a lake and was on a boat frequently, and hung out on a dock that constantly moved. That's when I first noticed the symptom.
It lessens when I'm in a car and when I'm lying down. Does anyone have any experiences with this?
Mal de debarquement is rare. How likely is it that I have lyme and this?
Yes, I've been having this unsteady/dizzy feeling the last 5-8 months too.
Welcome, and I'll send you by private message, PM, which you can access in MY PROFILE of my newbies links/advise; 15 pages. Bettyg
IP: Logged |
posted
Thanks for the replies. Re: Mal de debarquement, this syndrome resolves itself after time in some people, but in others it can linger for years. As far as I can tell, there are no known treatments.
I've made yearly visits to my LLMD, each time trying new combinations of oral abx. At the last visit, in January, I was told to continue taking ketek and minocycline as symptoms arise. I'm pretty sure I was treated for co-infections at the very beginning, but was never told that I had any.
This symptom is entirely new to me. It's been really bringing me down.
I've recently hooked up with a new doc. I've relocated to Washington state via NC. The new doc suggested iv treatment but we're waiting for test results and my old medical records to show up.
Is it strange that I've been sort of pulsing abx after all these years?
Thanks again for your replies!
Posts: 26 | From Washington | Registered: Aug 2006
| IP: Logged |
posted
Minocyline did this to me when I first used it, but after years of treating Lyme etc (not with minocycline) I can now take minocycline without having that problem.
I also had a lot of vertigo (room-spinning type), treating Babesia seems to have got rid of that
Nelly
Posts: 416 | From france | Registered: Oct 2001
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Ive had that when lyme got in my brain.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic