posted
K, anyone else besides me 86 any spinal taps? I refuse to let these clowns in my medical community touch my spine, I am in as bad a shape as I ever want to be.
The docs go to Richmond for work on their spinal columns. Even the mayor's husband went to Williamsburg for his spinal surgery.
At first I was a wingnut, a hypochodriac if you would according to the doc vultures that now vie for my spinal fluid.
I explained I had anti-munchousen syndrome, and I have told all of them who dared to insult me in such a mannner that they where a disgrace to the medical profession.
Then I related that I refuse to have any hire hands who did not have the ability to work proficiently and intelligently, and that they were excused, don't call us, I'll call you. Not bloody likely...
Inept docs and me do not play well together, and I have a scathing tongue, am brutally honest and love to tell you how I really feel...
Amazes me how docs always look shocked when you tell them how it is. I have had a few that race after to apologize, or take the time in the future to contact me with an apology.
I was wondering why a spinal tap would be in order. They are painful, and can have serious complications. Please enlighten me.
Next order of business:
I had MRI and CAT scan, appears I have 4 small lesions in brain, neuro doc called them smoke spots (me only vice nicotine), and that I did not have lyme (ya ya we expected that and I had a positive WB lyme test). Go figure...
Neuro Doc wanted to do a spinal, lmao, right in her office, she said she is good. I said no doubt. I said there can be some serious ramifications if a tap goes slightly akilter.
Neuro doc admitted this was the case. Peeps do end up paralyzed, dead, sick from said. I said so your point in doing this is???
I think Neuro doc should go into pharmaceudical sales, she still kept on about a spinal tap, but never told me the reasoning and logic of having same.
K so any of you lucky peeps have brain lesions????
Onwards:
After my heart attack at approximately 2 a.m. in the morn, and I am here to testify to this as I did NOT go to ER where they have a plot to kill me.
I did go the following day to my GP. We did an EKG, which was indicative of irregular heart rhythms. He believed I had a heart attack, he understoood why I did not go to ER.
Instead, he sent me over to see a cardiologist, (this was a Friday night), it was after 7 p.m. when cardiologist did a heart echo/dopler. My EKG was bad.
This is the kind of medical care I am accustomed to. He did not have to stay late and take time from his life. Appears I have along with TBRD, a nice little hole in my heart.
The cardiologist interned in NYC in one of the famous hospital he was a LLMD. He said you are treating the lyme. It should be fine.
I love him he is now my daughter's cardiologist as well as mine.
Hey some of my best friends are doctors, serious. However egocentric this might sound, I believe I deserve quality medical care.
Next Up:
We found the cyst in my thyroid via ultra sound in my GP's office. I told him he needs now to get an EEG machine since after my documented seizure, when (since I was not concious) I wound up in the ER and they did not EEG me, nor MRI me, nary a CAT scan for moi.
So did y'all get any of these thangs? Inquiring minds like mine want to know...
Thanking you in advance for your courtesy and cooperation, I am hoping your future is brighter than the best day you have lived to date
-------------------- wpcj, Cyn Posts: 20 | From Virginia Beach, Virginia | Registered: Aug 2006
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posted
Nope never had any heart problems till I got bit by super flea. Hole in heart is caused by lyme. It likes nice warm muscles.
I believe that it should be added to the typical list of things we test for in autopsies. I believe it is responsibile for alot of heart failures. However, we do not typically test for lyme post humously, so wew shall never know.
This is why LLMD cardiologist said you are getting the lyme treatment, it will be ok.
Thanks for your reply... still procastinating on my booting up and infusing... oh well, time to get on with it...
-------------------- wpcj, Cyn Posts: 20 | From Virginia Beach, Virginia | Registered: Aug 2006
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Regarding the spinal tap: is the neurologist or LLMD concerned about Multiple sclerosis as you have lesions on the brain MRI? Perhaphs they are doing a spinatl tap for the presence of oligoclonal bands?
The yield of borrelia in spinal fluids is extremely low. And I decided not worth the risk. It would not have altered treatment decisions so I decided not to pursue one.
Posts: 628 | From the south | Registered: Dec 2005
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posted
Five years ago I too had a lesion on my brain. Results early demylenting disease or lyme.
Duck said next step a spinal, I was ignorant about the results of spinal regarding lyme. My spinal showed nothing.
I would never have a spinal again, and by the way once I did iv had a repeat mri and spot on brain was gone. The spots will go away with treatment.
I was hospitalized a few weeks ago, and again they wanted to do spinal. I was ignorant once about my illness, but not again. Not so much ignorant but trusting of the doctors. I strongly refused the spinal.
You can fix ignorance, but you can't fix stupid. (A little red neck comedian humor.)
I always research this board and will never be stupid about what's best for me.
You know this you are your best advocate.
Good luck and keep us posted.
Posts: 175 | From Pa | Registered: Aug 2006
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bettyg
Unregistered
posted
Lady, you are a RIOT; such humor in spite of all the adversity you have had.
I had a MRI in May 06; the radiologist was kind enough to make me a CD of it! I took it to my new LLMD but se didn't want to see it.
That's an option, getting the CD and viewing it yourself. Then compare it to the HARVARD site that is shown in Treepatrol's NEWBIE LINKS; I think it's 50% thru the list. I showed HARVARD in the name for Tree so it would be easier to find.
How old is your daughter and does she have lyme too? I couldn't read your 1st post since it was LONG, continuous text with no paragraphs and no empty blank line between paragraph. Good luck; you certainly need it! Bettyg
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posted
Actually, hole in the heart - Patent Feramen Ovale (sp?) (PFO) is NOT from Lyme. 20% of the population is supposed to have it.
We all get born with it, it just closes for the rest of the population early on in your life. Any other hole in your heart would kill you on the spot.
Sorry you're going through rough times!
Posts: 109 | Registered: Aug 2005
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Michelle M
Frequent Contributor (1K+ posts)
Member # 7200
posted
'Allo CynBy.
I'm a fellow Virginia girl. Hailing from Spotsylvania, matter a fact. Enjoyed yer post!
Now, bout those brain lesions. There's no doubt that's why your neuro wants ta start carvin on your back. To THEM, brain lesions spell "MS." It signals THEM to do more diagnostic MS stuff, like lumbar puncture, evoked potentials, etc. I had 11 lesions on MRI, mostly in frontal lobe area. Was not diagnosed with lyme yet, and blissfully let them carve away on me. The spinal tap showed little of diagnostic value apart from elevated proteins. Evoked potentials were a little more useful and more bearable.
Your lesions may go away with treatment. Or not. Odds are about half and half. At one year of treatment, mine had not gone anywhere. But at least, I had not gotten any new ones. :-)
Sounds like you've got a full plate. Stay on top of those docs and get better!
Michelle
Posts: 3193 | From Northern California | Registered: Apr 2005
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