just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
You can choose to PM me if you wish.
I am NOT being racist here.
Just wondering IF we have any chances of getting on the "Kira" show with a lyme(and coinfections) related topic. (Edited for , OOPS "Tyra show") (see what I know??)
We have posted and 'tried' the Ophra show to no success.
Has 'anyone', ever, contacted or tried to contact the "Kira"(Tyra) show???
And my take is IF I was a woman I would be 20 times more likely to be taken seriously.
Where does "Tyra" (oops again) film her show? what city? Do you 'think' it has a chance?? I think she is every bit as good as the chicago lady.
What about the Ellen show? Her show is more goofy oriented and more movie, hollywood star oriented.
Any others?
If I am out of line, please correct me!!
[ 01. September 2006, 04:05 PM: Message edited by: just don ]
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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posted
I think you mean Tyra as in Tyra Banks?
Posts: 225 | From home | Registered: Aug 2006
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AliG
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Member # 9734
posted
PS - I haven't watched the Tyra Banks show much. I do think she caters more to a female audience, but it never struck me that she any kind of racial preference to her guests or her audience. I think you may get better response if you just reach out to "Women" in your subject line.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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just don
Frequent Contributor (1K+ posts)
Member # 1129
posted
Thanks for the replies and the correction. I went backl and edited my original post to show "Tyra" show.
I really do think a black woman could make great inroads to gain access. Their may NOT be so much racial preference shown there but most of her guests are black, some are white, but not as many!!!
But I really think it should be presented from a diverse group of people to a diverse audience. Race has nothing to do with TBI, its a people thing.
I personally think she is a beautiful intelligent person that could get the point accross well.
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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SForsgren
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posted
I think it would be interesting in general if we had a racial breakdown of people on the board that have Lyme. I am of the opinion that genetics plays a role and could it be that white people have more chronic problems with Lyme infection due to their genetics? I don't know but I would be very interested. I know that when I talked to the head of a lab that does HLA, she reported the DR4 prevalence as caucasian. I did not at the time ask for other stats, but makes you wonder....
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
OH! I wondered which show you were talking about. I thought, "We don't get that show here."
Does she have an email address where we could write to her?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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northstar
Frequent Contributor (1K+ posts)
Member # 7911
posted
Scott,
Racial profiling does not work because of the medical establishments attitude to blacks, and possibly economic problems (less insurance/worse health care, etc), and minorities attitudes/beliefs/distrust of establishment.
This has been found in heart attack/condition surveys, where blacks were consistently diagnosed later, or put off, whatever. In other words, they did not receive as quick care.
Perhaps there also is that old medical gender/race condescenion sneaking in there, too.
I do believe there was a study that also mentioned the disparity, with no resolution, and hinted that possibly skin symptoms were not as readily seen.
There was one black person in the "Faces of Lyme".
Who knows how many have been ignored and misdiagnosed, too, and then, they accepted the doctor's pronouncement. Northstar
Posts: 1331 | From hither and yonder | Registered: Sep 2005
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Ann-OH
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Member # 2020
You will see that all Americans are represented there with Lyme disease. If you scroll to each face, you can read a statement by each. It is such a wonderful site. I found pictures of people I knew only on the internet.
Tyra Banks show has more to do with helping people gain self confidence and respect - mostly women. She also stresses self image and good health - not trying to be skinny.
She does a great job and has a great show, I just don't think that production is into disease issues.
Just-Don, you are not out of line. I think media attention is good, but I wonder how many people really act on what they see or read - we are all so overwhelmed with information overload. Ten things a day are presented to scare us.
I keep writing letters to the editor and some get published, and that is good.
I think our best bet is to go after our county and state health departments and our state legislatures to get them to do their jobs. We need action more than sympathy.
AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
quote:Originally posted by Ann-OH:
I think our best bet is to go after our county and state health departments and our state legislatures to get them to do their jobs. We need action more than sympathy.
I agree, Ann.
That's why I thought Geraldo might be a good idea. I think he might actually get involved in the action and give the whole thing National Coverage.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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just don
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Member # 1129
posted
Ali G, I think lots of people have tuned out Geraldo. he is way left of center isnt he?? Never watched him at all, dont know IF he is on ABC, CBS, or NBC??? (Thats because thats all I get on the old TV aerial)
I just remeber he got in trouble for his middle east antics. Other than that, I know nothing of him!!
-------------------- just don Posts: 4548 | From Middle of midwest | Registered: May 2001
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posted
I wrote the Tyra Banks Show when one of the Contestants on America's Next Top Model had Retinitis Pigmentosa (RP), an eye disease that leads to blindness. I have two lyme friends that were previously dx'd with RP and later Lyme. One heeded her Lyme dx and has 20/20 vision today, the other wanted a "specialist" and chose a Yale Dr. Today she is legally blind. I guess she was already blind in other ways . . . sad.
I sent a medical review from pubmed linking lyme and RP and asked the show "wouldn't it be wonderful to save this young womans future on your show?" The ratings would have been huge!
The never acknowledge my email. As for being black, they can't see my color over the internet so there would be no way to racially profile an emailer unless they gave such information.
Her show is definitely geared towards helping young women avoid the pitfalls in the modeling world such as bogus companies asking for money up front . . . she even had aspiring models on her show that had fallen for a setup she did. She pointed out that there was no permanet sign, folding tables were used etc. and these are RED FLAGS you should be paying attention to when trying to get into the business.
And yes, she is big on self esteem.
Posts: 982 | From Florida | Registered: Feb 2002
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lymemomtooo
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Member # 5396
posted
Don, I would think that color should not have anything to do with getting help from a celeb..But I may be wrong.
And to paraphrase Curley, how would a celeb know the color of the one writing the request?
I suppose each of us needs to try to make more contacts until we are successful.
Perhaps more rallies would work, I just don't know and I sure wish there was a glimmer of hope for national recognition of this hell.
Posts: 2360 | From SE PA | Registered: Mar 2004
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Marnie
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Member # 773
posted
The enzyme to breakdown ethanol is called alcohol dehydrogenase.
Spirochetes ferment sugar -> ethanol/alcohol
This is one site that talks about genetic differences re: that enzyme:
P.S. I "wrapped" the above link. If you want to go there, highlight the entire link and drop it into your search engine.
Theoretically, the differences in this enzyme could impact the "fate" of those infected.
Posts: 9481 | From Sunshine State | Registered: Mar 2001
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posted
Anyone know Alice Walker? She wrote "The Color Purple"...
She suffered with lyme for years and wrote a little about it in her memoir "The Same River Twice"--in fact, she was at her sickest on the set of filming the movie and cried on Oprah's shoulder--read this in the book!!!!
So why won't Oprah grab this story...My theory is that it is too political. Remember what happened when she talked about hambergers? YIKES. Maybe she doesn't want the CDC and NIH on her case...
Dunno?
-------------------- We are spiritual beings on a human journey...
quote:Originally posted by Curley911: I wrote the Tyra Banks Show when one of the Contestants on America's Next Top Model had Retinitis Pigmentosa (RP), an eye disease that leads to blindness. I have two lyme friends that were previously dx'd with RP and later Lyme. One heeded her Lyme dx and has 20/20 vision today, the other wanted a "specialist" and chose a Yale Dr. Today she is legally blind. I guess she was already blind in other ways . . . sad.
WOW! That IS sad!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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I think minorities with Lyme are often even more underdiagnosed than caucasians with Lyme. I am darkskinned, and my Lyme rash didn't look like the bright red bulls eye rash, because I am not white.
It looked more like dark brown bruises that were perfectly circular and filled in the size of half dollars, and the outer ring around them was almost invisible.
This is basically what the rash looks like in dark skinned people, but no one is trained to identify the rash in dark pigmented people as a Lyme rash.
The other reason is that the disease occurs more often in areas where suburbia is encroaching on rural areas. These areas in the last few decades have been where more upper class, more caucasian.
A lot of the precursor diagnoses to Lyme, like chronic fatigue syndrome, in the early 90's were sterotyped as an upper class female disease, the "yuppie woman disease". No one expects these illnesses in other groups as much.
The other issue is the cost of medical care. If you are not well off, it is hard to get properly tested by an LLMD for Lyme. Even if you are well off, it is difficult. So if you are from a marginalized group, and you are poor, it will be awfully hard to get the right care.
So all of us Lymies slip through the cracks, but there definitely needs to be more education about the disease in non-white populations, especially about the difference in the appearance of the erythema migrans rash. I know a lot of people don't even get the rash. But for the people who do, if you are not caucasian, it won't look like the most of the pictures of the bull's eye rash we have all seen.
People need to be aware of the different appearance of the rash in those with darker pigmentation.
Farah
Posts: 208 | From New Mexico | Registered: Dec 2005
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bettyg
Unregistered
posted
Farah, you made excellent points.
Do you have a picture of YOUR rash? If yes, please send a copy to the LDA so they could include this photo in their next revision of photos of lyme rashes and even get it ADDED TO LYMENET'S PHOTOS OF RASHES! Many things to connsider.
Thanks for sharing your input on the question and the color of rashes! Bettyg
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I've often wondered why we see differences in MS (and Lyme) incidence among certain ethnic groups. Maybe it has something to do with collagen levels. In order for the Borrelia bacterium to invade the brain, it first has to degrade the collagen layer of the blood-brain barrier.
Likewise, groups with higher collagen levels should have lower susceptibility to disease. I believe African Americans usually have higher levels of collagen. This idea hasn't really been verified yet; it's just interesting to put out there.
-Megan
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