posted
I started feeling myself turn the corner about a year ago. I've been chugging along, no abx since first diagnosed 5 years ago (and only 6 weeks worth), using mostly common sense practices, alternative methods, etc. My LLMD thought my body was "handling it."
I've been trying to do yoga and that has helped - very basic stuff, 2-3 times a week, 1/2 hour. I even brought a mat to work and sneak some time in.
I also have recently done about 3 months of body work - deep tissue, lymph massage, a little chiropractic. (Which I highly recommend, if you can tolerate it.)
I've always been afraid to go too hard at exercising, aerobically, because this would usually slam me back down to square 1. So I would mostly walk, do light hikes.
Recently, I've started getting back together with my old friends (I've been so isolated for so long!) and one of them, the hub of the wheel, so to speak, blew her ACL out skiing, and had surgery 3 months ago.
This slowed her down to say in the least. And I've enjoyed getting out with her, staring slow. Kayaking, hiking, and just started biking.
She's planned this 30 mile bike trip in NYC a few weeks from now. (For years, I'd been looking at my bikes and wondering whether I should sell them!) In the past month, I've been on my bike 3 times. 10 miles the first two times on very flat terrain, and this past Thursday 20 miles. The 20-miler was mostly flat but there were a few hills that made my heart pump like crazy. I thought, oh no. I got off the bike and walked to slow my heart down.
I completed with flying colors, so to speak, no body aches, except for achy neck/back for bending over. I took a detox bath that night.
The next day. Ugghhh. Sick, nauseous, stomach upset, headache, slog, slog, slog, foggy head, fatigue. That good old feeling of toxicity. My muscles were not bothering me, so I take that as a great sign. But my head was Tox Central.
Migrainous, on the right side, ear involvement, and neck involvement. I could have very well laid on the couch all day to recover, and a little voice inside me said that's what I should have done. But, no, I wanted to go out, before Ernesto socked us in for the weekend.
So that next day my friend planned a hike for a few of us which had a few rocky ups and downs, fairly short though. The hike started up with a cardio up hill. Heart pounding, I stopped to let it calm down a bit.
By the end of that day, yesterday, my head was killing me. Eyesight bothered by light, hearing sensitivity (I remember those symptoms). I thought, let me go to sleep, and sleep it off, and hope I was better in the morning.
I woke up about 1:30 and my head hurt so bad, I had to take something strong. And so I did.
(BTW, since I've been doing the body work for 3 months now, I have not had 1 migraine.)
In short, my body, muscle-wise, feels like it's getting in the groove of the work, biking and hiking. When for years, my muscles have felt like mud, and I could not get them to cooperate. Not matter how much I tried to gradually work my way up.
But, it seems to me, the aerobic part, probably, is toxing out my head. Sound right?
The last part I need to clean up now is my head. Does that make any sense? Can anyone explain to me, what is going on here? What I need to do? Detox is all I can think of, but how to detox the head sufficiently? When I take my detox baths, I make sure to hold my head under a few times. I used some essential oils yesterday too.
I feel like I'm almost there. Lately, with my friend laid up a bit, I have been so determined to renew friendship and am very anxious to get out there and play and have fun again.
Many thanks for listening, and sorry if this was long. If anyone can offer any advice, I'd appreciate it !
Kelly
Posts: 90 | From New Jersey | Registered: Nov 2005
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Kelly,
It sounds like you overdid it. Many people cannot handle cardio exercise during Lyme treatment. I don't know the science behind it.
But I'd really slow down with it. Sometimes taking it slow is faster in the long run.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
Vigorous exercise often causes flare ups/herxes for many of us.
Have you been tested/treated for babesia??? My terrible head/neck/back pain decreased dramatically when we addressed the babesia -- I actually tested negative for it, but symptomatically it seemed I had it, so I asked for treatment. HOOOO-EE am I ever glad I did -- made a HUGE difference.
I'm finishing my 4th month of treatment for babs -- Ketek, Mepron, Artemisinin. I think the plan is to discontinue the Mepron after I finish this bottle, but stay on the Ketek and the Arte. I do hope this is sufficient.
I've been SUPER fortunate with my healing so far-- 6 months into treatment, I feel great most of the time, and my bad days are fewer and less severe than ever. (This is after having lyme **at least** since 1988, more likely since birth. I'm pretty sure I picked up the babs in 1988, as that is when the babs sx started.)
So, my non-MD 2 cents is that it is worth trying treament for babs if you haven't already.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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