LymeNet Flash: Cervical dystonia question

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Cervical dystonia question

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Topic: Cervical dystonia question

eddog
Member
Member # 8844

posted

My story is kind of long but the gist is this..believe I contracted Lyme in the late 70's, have had fevers and weakness and other unexplained problems over the years but have generally been healthy.

About 4 years ago began to notice grinding and pressure in my neck which eventually became muscle spasms which pull my chin toward my right shoulder.

My GP had x/rays and an MRI done. I ended up at Johns Hopkins where I was told I had MS (passed all the tests but they like MS there),and cervical dystonia.

I never believed the MS thing and finally located a Doc who knows something about Lyme. My tests were not positive for Lyme but positive for Babs. Babs treatment has helped the fevers and fatique.

Has anyone with chronic Lyme experienced this dystonia thing? I think it is related to the Lyme and wonder if anyone else has experienced, or heard of someone with Lyme who has this to deal with.

Posts: 11 | From Maryland | Registered: Feb 2006 | IP: Logged |

Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338

posted

eddog:

You can do a search for posts that mention dystonia.
Towards the top of the page, under the 'post a reply' button, is a 'search' button.

Type the word you want to search into the form.
I'd suggest looking only in the 'Medical Questions' forum, otherwise it spends alot of time looking in all the forums.

When I did it, I got 8 threads; this includes your thread.

Hope this helps.
Carol

Posts: 6956 | From Lancaster, PA | Registered: Feb 2004 | IP: Logged |

eddog
Member
Member # 8844

posted

Carol,

Thanks for the help.

I did the Botox thing for about a year and it did'nt help a bit, in fact I think it made things worse.

I noticed that about 9 days aftr starting my first Babs treatment the dystonia improved quite a bit. Then I began Lyme meds and the improvements vanished. Just finished 4 months of 2nd treatment for Babs and feel better but neck has not improved. I was and am hoping that this may be related to Lyme.

Posts: 11 | From Maryland | Registered: Feb 2006 | IP: Logged |

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