posted
hi everyone, just curious if anyone with lyme has also been diagnosed with mono. i haven't been tested yet but want my pcp to run a test. my story started in about june of this year and i'm currently on doxy.
i never noticed the fatigue this severe until i started taking doxy. i don't know if it's related or not, all my other labs were normal so there was no obvious cause for fatigue but i noticed the fatigue in the past two weeks has been more severe.
alos anyone have thoracic outlet syndrome, and if so can you post some links.
thanks karen
any ideas?
Posts: 68 | From uxbridge, mass | Registered: Jul 2006
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posted
My teen daughter's first diagnosis was mono. When she was getting worse the pediatrician mentioned depression from the mono.
I knew she wasn't depressed. One year later she was diagnosed with Chronic Fatigue Syndrome. Finally 2 years after she first became ill she was diagnosed with Lyme Disease. After almost 2 years of Lyme treatment she is making slow but steady improvement.
Posts: 488 | From NY | Registered: Oct 2004
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quote:Originally posted by firepipersnurse: i never noticed the fatigue this severe until i started taking doxy. i don't know if it's related or not, all my other labs were normal so there was no obvious cause for fatigue but i noticed the fatigue in the past two weeks has been more severe.
The obvious reason for the fatigue would be the herx you are most likely experiencing.
I've been dxd with thoracic outlet syndrome and mono. Twas lyme.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
My mono from 2-1970 was the BEGINNING OF MY CHRONIC LYME DISEASE of 36 years;
34 MISDX with CFS, fibro, & the continuous list
2 years in lyme treatment!
My recent total body tests showed the EPSTEIN BARR VIRUS, 3 types of it confirming my mono from 36 yrs. ago! Bettyg
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posted
I have been sick for about 10 years but it wasn't until my skin cleared up and I had been off tricylines (aka mino, doxy etc)for a year that my health started to get horrible. At 18 I got shingles and then at some point I got mono as well as virtigo and kidney stones.
Do I think it's related-For me I think that my body was trying to fight the lyme and it did ok until I stopped oral antibiotics- I wasn't diagnoised with lyme until a year ago (when I was 21). I am now 22 and doing better.
You might just be having a herx to the meds but once you have mono it should always test positive for you-they can also tell you if it's still active in your body. Tell your doctor you want to be tested-it can only help answer questions about yourself.
Posts: 484 | From Burlingame, Ca | Registered: Sep 2005
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posted
From what I have read, almost everyone has EBV -- it is generally contracted in early childhood and the immune system badgers it into submission. If you contract it later, it goes into full blown mono.
I had mono at 15 --was VERY sick with it, but eventually got better.
Lyme suppresses the immune system -- that is a good deal of the way it lays us flat. Like AIDS, it allows infections that a healthy person would be asymptomatic with to take hold in us and become nightmares.
If you are interested in this, two really informative reads are:
"Osler's Web" by Hillary Johnson -- she was (is?) a staff writer for Rolling Stone magazine, and chronicled the chronic fatigue syndrome epidemic -- later turned it into a book. It's long, but well worth the read -- it gives a great inside look at the NIH and the CDC, and the horrendous malfeasance that occurred in studying the epidemic. Chronic EBV was one of the early theories of CFS -- and in a twisted way, that made sense, as these patients had high levels of EBV -- much higher than normal. What was missing, however, was WHY this was happening. The cutting-edge research on CFS was cut short due to policy and lack of funds, sadly. There is a good body of evidence that a retrovirus (much like HIV) may be part of the picture.
Another is "And The Band Played On", by Randy Shiltz -- it is about the AIDS epidemic. He ascribes to the "patient zero" theory of AIDS -- but it really does give a good look at the ins and outs of public policy regarding new and mysterious diseases. I haven't fininshed reading this one yet.
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
"Chronic Recurring Mono" was my first diagnosis - in '82! They treated me with steroids, and wow, it "recurred" over and over for years - that was the beginning.
It was/is Lyme, but I'm also pos for mono, and my LLMD tells me that has been active in the past few years - all part of the scenario, for me. So it could certainly be both, in your case.
I agree that it sounds like the fatigue is part of a herx. Hang in there.
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
I, like most kids in high school, got mono. It was almost undiagnosed as I didn't have any swelling of the glands, split tongue...anything like that. Just horrible fatigue. Monospot and EBV were positive, as were expected. However, that was the beginning of my health trouble as the fatigue persisted way after the mono should have gone away. EBV titers were down, but I was still tired so my new diagnosis was Chronic Fatigue Syndrome, which it stayed until a year and a half ago, when I found out I had lyme.
Posts: 691 | From East coast, USA | Registered: Jun 2006
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