posted
I just need to vent here......I cannot believe what happened. About 9 months ago, I asked my new PCP to do a WB test for me because I was still suspicious of Lyme after my old doc got a negative ELISA.
He said we would do the WB which is much more accurate. The next week he told me everything was negative and I said OK....
This was nine months ago......
I have been seeing another doc over the past month and I am awaiting my ig enex results, but yesterday I had to go back to my pcp to get something to help me sleep.....Had not slept in 3 days!!!!!
Was going crazy with heart palps and all kinds of things.....
Long story short, I told my pcp i was awaiting igenex, and he had not heard of them. He said,"Didn't we do a western blot?"
I said yes....you told me it was negative. He ruffled through my records and said...."Huh....strange" Western blot was never done!!!!!!!
Quest did a REFLEX WB, which in case you don't know, this means that they do elisa first, and ONLY if that comes up positive....they do a WB!!!!!!!!
I am so unbelievably livid right now. How much do these people need to be babysat????? All this time I am telling everyone that I tested neg. on WB from quest and I never even got one!!
AAAAAAHHHHHHHHHHH!!!!!!!
Anyway, thanks for listening. By the way, is insomnia a symptom of babs???
Thanks again guys... Kind regards and healing energies, Heidi
Posts: 36 | From new york | Registered: Jul 2006
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posted
Sorry about the mix-up. The lesson here is to request copies of all lab tests -- even if the doc makes you pay for the copies.
Hubby has had many lab mix-ups. It is up to the patient to follow-up. Yes it is a hassle, but it is your health and your responsibility.
Too many times docs will say your lab tests are fine and in reality something may be slightly abnormal. Keep copies of everything.
I made up a chart where I tract monthly bloodwork. By looking at the trend it is easy to see when hubby's babesia is acting up -- bilirubin and LDH start increasing and sometimes RDW as well -- and also when blood ammonia is elevated -- BUN starts decreasing.
The trend is what you need to be looking at. If something is abnormal only once then that probably is a fluke or insignificant. If a value is consistently abnormal or borderline high or low then that could be an important clue.
Glad you did find a doc to order the IGeneX test. Let us know when your results come back.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
something similar happend to me to. For some reason the IGG was only ran thru quest. As of today i have NEVER had an IGM WB run thru Quest. And that is where i show the most bands thru Igenex.
Its sad to say, but we have to look out for ourselves. i would suggest getting copies of all lab reports.
I have found many things that were overlooked by dr.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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posted
Wow Bea....you astound me with your knowledge and attention to detail. I always look forward to reading your posts... I always make sure I get copies of all labs now....
Regards, heidi
Posts: 36 | From new york | Registered: Jul 2006
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Heidi
Most regular doctors have between 2500 and 3500 paitents-- that gives each paitent 15 minutes of ductor time total every 4 to 5 months--
Its no wonder no one gets well-
Its Greed that keeps most of us sick--
We are cattle or less--
Yes Babs can cause insominia Big Time-- hope this helps --Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
Yes Bea, you're right they just tell you the tests were fine. They make such a big deal about copying a few papers. I wanted to forget the following ever happened but here it is.
Prism, I had it happen with a pap smear 10 years ago. They told me everything was fine. I then got a call 3 or 4 months later. "There must have been a mixup when we moved our office" PS the test was abnormal and I needed a procedure done. I was just too shocked to respond. How many women ask for paperwork following a pap smear? They call you or send a lovely letter that everything is OK and we'll see you in another year. (hopefully)
Posts: 465 | From New York, NY | Registered: Aug 2005
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enex results, but yesterday I had to go back to my pcp to get something to help me sleep.....Had not slept in 3 days!!!!!
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