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» LymeNet Flash » Questions and Discussion » Medical Questions » anyone been on telithromycin?

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Author Topic: anyone been on telithromycin?
bv
LymeNet Contributor
Member # 9578

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Dr. b in his 2005 treatment guidelines talks about t-mycin positively. Curious if anyone has had experience with this abx?

I am currently on flagyl & doxy & am thinking of asking Doc to swith me from doxy to t-mycin b/c doxy causes me severe photosensitivity. Thoughts?

Posts: 213 | From ohio | Registered: Jul 2006  |  IP: Logged | Report this post to a Moderator
lymednva
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I believe that's Ketek? If so, I'm on it and I've seen improvement from it in the five months I've been on it.

I do take milk thistle and have my liver enzymes tested monthly because Ketek can do real damage to the liver. So far so good for me, though. [Big Grin]

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Lymednva

Posts: 2407 | From over the river and through the woods | Registered: Apr 2006  |  IP: Logged | Report this post to a Moderator
WildCondor
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That is Ketek.
You have to get your liver checked while you are on it, it can be nasty. Also, take tons of probiotics...it gave me c.diff. [Frown]

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lucy96734
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I've been on it for 9 months and have made good progress. I also have Babs and take Mepron. I do have my liver checked frequently (every 2 weeks) and take milk thistle, drink detox tea, tons of lemon water, and some other supplements.

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Lucy

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Takedownthemoon
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Hey Bv how's it goin? Ketek has recieved A LOT of bad press lately due to some very serious side effects. I'll do a search later and post the links for you. Hope all is well.
Posts: 89 | From Ohio | Registered: Mar 2006  |  IP: Logged | Report this post to a Moderator
Takedownthemoon
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Hey BV here are just a few-

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=044047

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=044091

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=044155

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=044235

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DL_Utah
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I have been on Ketek for four months. Herx reactions can be harsh. My llmd started me on low doses and we are trying to work up to higher doses, but haven't gotten there yet. Like everyone else has said, you need to make sure that you get your liver tested frequently. I also take milk thistle daily to help. Ketek can be good at getting rid of the lyme though.
Posts: 24 | From East Coast | Registered: Feb 2006  |  IP: Logged | Report this post to a Moderator
   

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