-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96239 | From Texas | Registered: Feb 2001
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bettyg
Unregistered
posted
NO NO NO!
no blood, no bone marrow no organs no tissue
You don't want someone to live the life YOU HAVE lived would you?
Also if you are a donor, on your Driver's license, tape a NO on the front of it for donor donation until you renew it next time.
Notify whoever IF you chose to be a donor before so they can erase you from the computer system.
Do a SEARCH on this topic; many posts/answers before
If YOU are going to need blood, GIVE IT AHEAD OF TIME MARKED FOR YOUR SURGERY, ETC. IF IT'S NOT NEEDED BY YOU, DESTROY IT IMMEDIATELY AFTER ITS EXPIRATION DATE WHERE YOU MAY HAVE NEEDED IT!
FYI, I feel I got BAD BLOOD on several of my surgeres, but I can't prove it. Therefore, I have strong personal feelings on this one ok.
Please pass along this advise to any other lymie, fibromyalgia, or chronic fatigue patient you know! Bettyg
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Lyme has been found in every organ of the body. So that suggests you shouldn't be an organ donor either.
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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posted
One of the saddest days of my life was when I removed the donor card from my wallet, actually -- following my lyme dx. I had always felt so strongly about being an organ donor that it was really a big blow for me to realize I could no longer do that. Thankfully, I never gave blood!
-------------------- "Looks like freedom but it feels like death.. It's something in between, I guess"
Leonard Cohen, from the song "Closing Time" Posts: 822 | From California | Registered: Jan 2006
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posted
if i knew only they would be the sole recipients of my serosanguinous "munificense," i would only donate my blood to certain very-deserving members of the cdc, the idsa, et.al.; for by doing so, i will then, have "contributed" to teh betterment of humanity by helping to eliminate one or more rogues in the gallery of fraudsters in lyme testing and treatment, allowing for the opportunity for true progress in lyme research, thereby; else, no.
Posts: 2708 | Registered: Feb 2005
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
pq..I think you are on to something..Perhaps everyone that wants to donate could get a card specifying that it could only go to one of your recommended recipients.
Posts: 2360 | From SE PA | Registered: Mar 2004
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
In the mid 90s, after being told by several doctors that there was nothing wrong with me, I donated blood platelets at the Dana Farber Cancer Institute in Boston so that I could be added to their bone marrow donor list.
When I was diagnosed with CFS in 2003 (prior to my Lyme dx), I contacted them and was told that I could not be a donor based on current knowledge of CFS, but that they would let me know if that changed.
If they don't want people with CFS, they sure don't want people with Lyme. I find myself wondering how many cancer patients I killed. And then there were all the times I donated blood during my nearly three decades of varying degree of illness prior to being diagnosed.
Scarier still, becauase they should know better, is that the Red Cross will take your blood if you have been symptom-free for, I think, one year. Given the rate of relapse beyond one year of being asymptomatic, this is, of course, very dangerous.
I, also, am no longer an organ donor. I have, however, stipulated in my will that, upon my death, they are to call the Columbia University Lyme Disease Research Center to see if they have any use for my body, or if they know of any researcher who does.
-------------------- Suzanne Shaps STAND UP FOR LYME Texas (www.standupforlyme.org) (Please email all correspondence related to protecting Texas LLMDs to [email protected] with copy to [email protected]) Posts: 977 | From Austin, TX, USA | Registered: May 2004
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