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I have Lyme and Bart. I was on Levaquiin for 3 months and then Doxy and Valtrex. Then stopped Levaquin afetr my LLMD thought I was doing alot better. My main symptom is twitching and that had cleared about 80%. Then a month later while still on Doxy 400mgs, the twitching really came back. He put me on Rifampin 600mgs. The herx was so bad that he reduced it to 450mgs. It has been 7 weeks and the twtitching is the really the same with some good days, but some really lousy ones. The twitching comes alot at night and in the morning. I take ALOT of Magnesium and all supplements. Should I up my dose of Rifampin. Am I herxing? What is going on and what has helped anyone out there. Is this normal?
Posts: 298 | From los angeles | Registered: Mar 2006
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All I know is, when I started Rifampin I took 150 and worked my way up to 600 over a period of three weeks. I am sorry I am of no other help. I hope you feel better soon.
Posts: 160 | From texas | Registered: Oct 2005
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Bettex, How long did it take to start really working. Have your symptoms come back. Are you feeling better?
Posts: 298 | From los angeles | Registered: Mar 2006
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I was on Rifmapin for a bit longer than two months. I noticed no change. The zith is the one that made me feel better and stronger. I started the zith two months before the rifampin, thats how I cold gauge the results. The main thing the rifampin did was mess up my mensus and give me cramps for the two weeks I was late. I did however while on the rifampin/zith combo get alot of knee pain ,something I rarely have, so something got stirred up. My LLMD told me to dump the rifampin for now and maybe at a later time use Cipro since I had a HUMUNGOUSOID herx off of it on only 3 doses and am still getting over it. oh joy:) Posts: 160 | From texas | Registered: Oct 2005
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Thanks all.
Posts: 298 | From los angeles | Registered: Mar 2006
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lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
9 months of Rifampin with a low dose Flagyl put me into remission. And I've been there close to 2 years. The first 3 months were brutal, but after the 3rd monthly knock you on your butt herx, I did notice an occasional good day.
Which you mentioned you were having... That's a HUGE thing.
We heal in baby steps, and often miss the very subtle improvements as they occur, and it takes a look back over a large period of time to really notice them. A symptom log is good for this.
I'd say stick with the Rifampin.
Your twitching could have more than one cause (myco infections cause twitching, and they're extremely difficult to diagnose). On the other hand, what we think are huge doses of Magnesium might not be enough. You can't possibly absorb all of the mag contained in these whopping doses sold in tablet form. Most of it end up you know where.
Maybe it's not the dose but the timing of it. You might need lower doses more frequently. (every couple hours) Or you might benefit more from an IV Magnesium (or at least IM). It's cheap and easy to do. I still give myself weekly injections and will continue to do so for quite some time to come.
Just some thoughts... always discuss with your doctor first..
-------------------- Julie _ _ ___ _ _ lymeinhell
Blessed are those who expect nothing, for they shall not be disappointed. Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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