posted
My symptoms started with a tingiling in my foot which moved through out my whole body.
At night, I am in severe pain. My body feels like someone is taking a blow torch to it.
This happened before I went on ABX.
I have a LLMD put he is all for ruling out everything before Lyme. I had the IGeneX test, but only one IgeneX positive, the CDC and other IgeneX came back negative.
Anyway, I have had 5 Vitamin IVs, 2 IV Chelation, and a boat load of vitamins. None which have really helped.
I am now on Cipro and Flagyl and I am in more pain then ever. My feet and hands feel like they are on fire. (but keep in mind, they felt like this before the ABX, just a little worse now)
So my question is, should I stay on the ABX? Am I herxing, or do I just have some other strange disease that my 6 doctors have not picked up??
Any advice would be appreciated!
Posts: 20 | From NC | Registered: Jun 2006
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
It could be a herx, but Flagyl can also cause nerve pain damage that results in nerve pain. If this worsened while on Flagyl, I would raise concerns with your doctor ASAP.
When you say only one Igenex positive, do you mean one band or one test? Like IGG or IGM was positive?
-------------------- "When there is pain, there are no words." - Toni Morrison Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
What you describe has been my most painful and longest-lasting Lyme or coinfection symptom. I still have it. It has only lessened slightly on Lyme treatment. That's why we're starting to think it's Bartonella or one of the coinfections.
It is definitely related to my tick bite because I never had it before. The burning started in my feet and spread throughout almost my entire body. Sometimes I have it on my face but not always.
Your blow torch description is good.
Nerve burning, tingling, stabbing, etc. are all quite common with Lyme because it attacks the peripheral small-fiber nerves. My nerve conduction tests were normal, and I was told because nerve conduction tests don't pick up the really small fibers where the Lyme is attacking.
Another Lyme pal of mine with this symptom has had much help from Neurontin (a medication used for nerve pain) and Elavil (an antidepressant that also works on pain) along with her antibiotics and herbs.
I could not tolerate Neurontin so I'm toughing it out (mainly by crying) while on antibiotics and sometimes herbs.
Flagyl can cause or increase peripheral neuropathy. I have not been on that medication yet.
I know others have posted on Lymenet that this symptom has improved or disappeared with treatment, so hang in there. My symptom has been very stubborn, which makes me think it could be a coinfection that hasn't been treated yet. But I do know that when I had to go off Lyme antibiotics for a while, it got worse.
So hang in there - you are not alone!
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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jc
Posts: 20 | From NC | Registered: Jun 2006
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mbroderick
Frequent Contributor (1K+ posts)
Member # 5220
posted
I had severe nerve pain in my feet, legs, and arms for a long time until I started Rifampin / Zithromax. Over the summer while on this combo (for Bartonella) I actually felt almost normal! I hadn't taken it long enough, though, and symptoms started creeping back several weeks after stopping. Needless to say, I'm back on Rifampin, waiting to feel good again! It didn't help my memory but I didn't have any pain.
Posts: 2097 | From PA | Registered: Jan 2004
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