posted
Hi, I have a friend who is wondering if he could have Lyme.
4 years ago it started with what doc's thought was prostatis. They treated him with no success.
It progressed to be a burning senstion of his whole groin area - his skin and bones feel like they are burning from the inside out. It includes his lower abdomen, thighs, groin, hamstrings, hip area. He gets muscle spasms in in his hamstrings, accompanied by muscle twitching and numbess thoughout that whole area. The burning is pretty torturous and making his life miserable.
It is constant, which seems a little odd if it were to be Lyme, but it does change in its severity.
He also has swollen glands in that area, and swollen glands in his neck area. He has anxiety, panic attacks, depression, night sweats periodically. Constant sweating of hands and feet. He also some balance problems.
He has been from doc to doc to neurologists.. CAT scans, X-Rays, MRIs - you name it. He has been diagnosed as having prostatitis, shingles, possible MS... but all of the above have been ruled out. They are now saying it is caused by "stress".
He has no recollection of recent tick bites, but had plenty in his childhood.
Can anybody relate?
Thanks.
[ 25. September 2006, 11:35 PM: Message edited by: luvdogs ]
Posts: 589 | From Rhode Island | Registered: Jun 2006
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Tell your friend that I can totally relate. I have had burning in the pelvic region for about 8 years! It wasn't until earlier this year that I was diagnosed with chronic nonbacterial prostatitis, so I began treatmenet, which consisted of taking 1000mg of Aleve a day. Within a few a days I noticed a little improvement...less burning during urination, etc., so I was somewhat excited. Unfortunately, it was temporary, and it was about a month later that my personal Hell began.
I started getting dull pains everywhere in my body from head to toe. I started getting twitching in my calves 24/7 for a few days and then that spread to every single muscle in my body. Each month I kept getting worse and it took 3+ months to finally be diagnosed with probable Lyme. A lot of guys with Lyme have prostatitis. What probably happened was for all of those years, the spirochetes were confined (for the most part) to my prostate and brain. Then when I started to use NSAIDS, the homeostatis of my body (and prostate) changed and they decided to leave this area and SPREAD throughout my ENTIRE body. Remember, Lyme can lie dormant in the body for over a decade before causing trouble.
I have burning in every single muscle of my body. At first it spread to my legs...then, everywhere. Quick, stabbing, acidic pains as well as throbbing, annoying pain. I also have parasthesias (water drops, bugs crawling, painful electric shocks) and regular "clubbing-type" pains, arthritic-type pains.
I wouldn't be concerned about the "constant" pain not being Lyme. My burning never left, although it was most obvious during urination. Now my current symptoms don't wax and wane like most Lymie's, but my LLMD says that everyone presents differently and although it is slightly unusual, it isn't too shocking that the pain is constant.
I also have a history of swollen glands in my neck, too. In fact, I had to have some of them removed about 10 years ago, and they never found out why they were swollen. They turned out to be benign, but still...nobody knew why I always seem to have swollen glands. I've also had strange sweating patterns.
The balance problem DOESN'T sound like stress to me! Good grief, there are so many idiotic doctors out there.
I've read that the spirochetes like to head to the reproductive organs, because since Lyme can be passed sexually, this ensures their survival. Don't know if they are really that smart, but I wouldn't put it past them!
Luvdogs, maybe your friend should see you know who? Good luck! He's not alone!
Posts: 33 | From New York | Registered: Aug 2006
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posted
Thanks you guys - this really helps. I have been confused, and so has he.
I taught him how to surf Lymenet and he will be reading these responses. He is also registered as a user and may even post with some of his own questions. But this is a great start! Any more experiences, keep them coming!
It would be really nice for him to have a direction to go in now, without having to be told he is "crazy". You know the story Posts: 589 | From Rhode Island | Registered: Jun 2006
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posted
His story is mine to a T.I then ended up with severe back pain,couldnt even stand to wear underware.The lyme had swollen my complete waste,and groin area.I had constant twitches in my legs.etc.
he needs to find a good lyme doctor. And get some klonopin for the anxiety. You would never understand this disease till you have it.
Posts: 510 | From NEVERLAND.USA | Registered: Jul 2005
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