posted
Hi, anyone care to share your Tindamax daily dose and pulse schedule? I have been on Flagyl 500mg 2x per day and just started Tini today.
My NP has me on 1000mg Tini 2X per day- 14 days on then 14 off. I also have been on Ketek 800mg/day continously for 8 months plus will be starting Augmentin XR at 1G 2X per day soon.
I am 16 months into ABX treatment for severe Neuro-Lyme. IV Rocephin got me back alive again and I am trying to make it all the way back now with orals. Thanks for any info!
Posts: 44 | From Northeastern Wisconsin | Registered: Sep 2005
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Jill E.
Frequent Contributor (1K+ posts)
Member # 9121
posted
I haven't been on Tini so I can't comment - but please make sure you are having your liver enzymes checked regularly. Both Ketek and Tini are hard on the liver.
Congratulations on making such good progress!
Jill
-------------------- If laughter is the best medicine, why hasn't stand-up comedy cured me? Posts: 1773 | From San Diego | Registered: Apr 2006
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posted
Thanks for your concern Jill, yes I get a liver panel every 30 days -- so far the Ketek and Flagyl haven't caused any problems. I hope Tini won't either. Doug
Posts: 44 | From Northeastern Wisconsin | Registered: Sep 2005
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posted
I am on 500 mg of tini twice a day. My pulse is 5 days each month. I really don't notice much change from it and wonder if it is adequate in dose and number of days. Questions for my doctor, I realize.
I do usually notice, however, that by day 5 my sleep is worse than usual (and it is bad to start with) and my mood is starting to plunge. So maybe what I'm doing is what I can comfortably handle.
Overall, I'm doing pretty well. Mainly neuro/cognitive and balance problems left. It would be nice to go into a room and actually know why I was there.
Posts: 164 | From USA | Registered: Jul 2005
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