posted
For those who have been dx and treated, how long did it take for your photosensitivity and tinnitus to subside??
Posts: 19 | From El Cerrito, Ca | Registered: Sep 2006
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
The photosensitivity about a year... I was unfortunately not treated with stong enough, long enough, or even the correct abx initially though...
Eight years down the road I still get tinnitis...
You may fair much better than I...zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi Jka
What meds are you taking?-Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
groovy, I haven't been diagnosed yet, waiting for the igenex results to come back. Why do you ask?
Posts: 19 | From El Cerrito, Ca | Registered: Sep 2006
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bettyg
Unregistered
posted
jk, did you get my 18 pages of newbie links/advise; I talk about the special NOIR sunglasses to buy to help you and other stuff.
They were probably asking since if you have lyme and treated with doxycycline antibiotic, it makes your eyes even MORE SENSITIVE THAN WHAT THEY WERE TO BEGIN WITH.
Mine were/are still at 200% MORE sensitive than the "normal" person! All light/glare/reflections are like looking directly at the sun.
I've had this for 36--44 years! It has NEVER for me gotten any better. My story is in my newbie's advise I send all newbies when they come here. Bettyg
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posted
My photosensitivity lasted for approx 2 years. Suddenly last month during my 26th month of treatment it went away. Hooray!!!
I received inadequate treatment my first 4 months and got much sicker. I also was given prednisone for Bell's Palsy. This depressed my immune system and may be part of why my recovery is taking a while. I have made a huge amount of progress though.
While photosensitive be sure to have sunglasses, hat & scarf at all times so you don't get fried.
posted
Hats, good suggestions, and wear LONG sleeves, LONG pants, and cotton glove when driving!
I got sunburnt bad my 1st out of state trip to new LLMD! uffda
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
HI JKA
I guess I must have miss understood you- I was thinking you had sun burn reaction from ABX-- I had it real bad until I figured out what was causing it-
you are having problems with your sight?--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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posted
Jay, Yes I have vision problems too. Floaters, blurry, and vision has gotten worse.
Posts: 19 | From El Cerrito, Ca | Registered: Sep 2006
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
my light sensitivity went away around the 3rd month mark of treatment...I was so sensitive, blinking holiday lights gave me migraines.
Started ABX treatment in Sept. 03, by the time of the holidays, I could tolerate the festive lights.
No problems now, do get eye fatigue if in bright sun for long periods, but I attribute that to the squinting.
Posts: 2675 | From ct, usa | Registered: Jan 2004
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