Topic: Is 14 grams of IM Rocephin a Week Considered a Normal Dosage
Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
...Or could the orders have been mis-transcribed???
I have Sero-negative Neuro-Lyme[hope that's how it is said?], they have finally got the tests MRI and such all together.
There were some problems getting the faxes back and forth between Idaho and Utah Doctors. Our 'Local Duckter' seems willing to help and to learn.
Team NN- my Doctors, initially were talking about injections 2 to 3 times a week,on IM Rocephin[ Insurance wont help w/ IV ],at about 2 grams a shot. The orders finally got sent this afternoon,and now they are talking fourteen grams a week for twelve weeks.That's a daily burning stinging injection.
We are going for a face to face, w/ my Utah Drs. to see if something could have gotten mixed up.It is less costly ,by IM, but still w/ a daily shot its gonna be $300 a month ,then factor in Mepron, and soemthing to fight the 'yeast beast'.ANd the various herbals must be added to the cost,as we are fighting this traditional and naturopathically.
I have been warned I could have a rather bad reaction to the Rocephin.I try not to be Chick'nWolf,but I am nervous and scared,I've never been very thrilled about shots/injections.
At the same time i cannot stand these headaches,and teh weakness w/o warning any more . Oh,they are also going to treat the Bartonella at the same time.
Any tho'ts or comments would sure be welcome,Thanx in advance from Silverwolf...having a bit of a howl now...Owowowoooooooo.
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I just recently started giving IM rocephin a shot-ha, ha, bad joke
I started wiht quite bit less than you have been prescribed, and actually am going to cut down. (i'll pm details) I have no idea what would be the best protocal but perhaps that will give you something for comparision.
Hey IM Rocephiners--I'd like to keep in touch with others that have done this or are doing this....should we start a buddies group?
jif
Posts: 208 | From Santa Fe | Registered: May 2006
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Relax Wolfy,
2gms of rocephin daily...14 grams a week IS the usual dose for IV injection.
I never had IM rocephin...only penicillin...and yeah they're a little stingy burny.
Maybe someone else has had IM rocephin... the IV's are actually quite cool...
especially if you keep the rocephin in the frig like you're supposed to...
and the heparin does'nt sting either. Too bad your insurance won't go there...I think IV's are more effective also.
You're on your way to feeling better...chin up!
Be advised your headaches may get a little worse before they get better...but they will get better.
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
Some people go higher such as 28 g/week
Posts: 1538 | From Planet Earth | Registered: Jan 2005
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< JIF,Zman,and Areneli >>>>> Thanx for the input and info'. I apprecaite the time y'all took to answer 'me-of the-many-questions'[since I seem to have one about every other time I post]!
Have to be out of town tonight, and am going to Utah tommorrow for a face to face w/ the LLND I see there. We have alot of questions,and phone calls aren't getting them answered.It has helped a good bit to know a bit more info.
When I get back here to my computer,between packing boxes[we're moving,job related],I'll check the 'search'...oh... search engine[Lyme brain in full swing here] as well!
JIF,I'll try to get a PM back to you when we get back home! Thanx for sending me a PM!!!
Thanx again so very much <<<< Allayall >>>>>... jus' Silverwolf here learning to incorperate chickn'clucking into my howling...as I hate injections. I am sure someday my brain will thank me,when I start feeling better
Owowoooo-oWoocluck-cluck-bok-bok-bawawk-cluck-erOOOwooooOow. There i'm tryin' to feel better![I know...my sense of humor is getting more and more bizarre! ].
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I agree with the dosing 2 grams a day is normal for IV. Maybe some lidocaine will be added since you are doing it IM.
Just curious when you say $300 a month are you talking about your out of pocket? I am trying to get the best price $105 a day for a 2 gram vial, comes to about $3150 a month. That has been the best price I could find. My Dr will only use brand name not generic.
Thanks and best wishes with your treatment. Glad you finally got a diagnosis and a local Doc willing to help, lyme x 9
Posts: 399 | From Texas | Registered: Apr 2005
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WildCondor
Unregistered
posted
Usually folks start with 2 grams daily and some increase to 4 grams per day. Everybody's protocol is different.
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
Helloooo <<<<< Lymex5' and WildCondor >>>>>
Thank for info and input! Hope I don't have to go higher on the dose,we'll see.Lidocane would be nice too,but I don't know if they'll do it[cost issues?]??
Lymex',our 'Ducktor',can usually get it for aprox' $70 for ten vials of the generic. I am sorry your Dr. wont deal w/ the generic. Supposedly the safety protocols have been worked on. Now w/ many prescriptions,they have worked to make them virutally the same as the name brand [or so we are being told].
TxCoord [my hubby],had issues w/ the generic synthroid a couple years back,and had to retturn to the higer priced name brand. Ducktor says the generic has been upgraded, we'll see.
Apologies on my run-on length here. We have four serious illness issues among family members,besides mine and TxCoords issues,and are in the middle of moving... But I am not supposed to be getting stressed out... I will be starting my meds protocols toward the end of the month,the LL team agreed it was better to hold off a few days.
I do have to get going on it tho',so next week,I'll be packing like crazier than I already be... ...Silverwolf here loping along in mah brain[can ah outrun this headache?].If I really tried to lope right now my paws'd get tangled!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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I have been trying to get some idea of what dose other people ar starting at, so this is the first time I've heard this was the current standard.
I just started IV Rocephin a few weeks ago at 125 milligrams. We might go up to 250 MG if things are still going well in another week or two!
My doctor said they start patients at these low dosages and go up nice and slow to avoid herxing as much as possible, which he sees as harmful in the long run. He used to start at higher doses, but is trying a new approach.
With other protocols I've tried in in the past where the doc wants to hit me hard with a big dose right off the bat, it's definitely been the case for me that I continue to get worse. So it sounds like this approach may be what I need.
But apparently the dose is unusually low. I would be interested to hear if anyone else has started out as slowly as I have.
So far, so good -- I finally feel like I'm getting some improvement, with no herxing.
Kalina
Posts: 18 | From Texas | Registered: Aug 2006
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Dave6002
Frequent Contributor (1K+ posts)
Member # 9064
posted
IV Rocephin could cause gallbladder stone.
So the current popular regimen is 4 days of IV Rocephin at 4 grams per day (better 2X2g), 2 day of Tini at 2X750 mg and one day rest.
I have done this for 6 weeks, but didn't notice any obvious herx or improvements.
Good Luck
Posts: 1078 | From Fairland | Registered: Apr 2006
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Silverwolf
Frequent Contributor (1K+ posts)
Member # 9196
posted
<<<<< Nat'Cat',Kalina,and Dave6 >>>>> Thanx for the tho'ts,comments and info'!
Hmmm,so the two grams,intermuscular,must be a lower dose from waht i am reading. I am just hoping it works w/o allergic reaction,severe buring or nausea. I do appreciate the input for certain!
I am just such a big chicken when it comes to blood draws and injections,but I am trying to maintain.
I wish I could say I was staying all nonstressed. My Uncle is in surgery,out in Oregon as his kidney shut down,and his heart is acting upas well. His wife has cancer,and my folks who are trying to help them,and some others [family stuff] are in ill health. Add trying to move and TxCoord,my hubby trying to get over the milder form of WNV,and stress free is out of the question at the moment...sigh.
Well I'm sure it'll all work out eventually,I'd just really apprecaite having a bit less stress right now [were I a 'zebra',rather than a 'silverwolf', mah stripes would be puddled around my hoofs.
Silverwolf a wandering here..gotta get back to packin' so we can be w/our 'pack' !!!
-------------------- 2006,May-August2006 Dx w/ Lyme/Bartonella/White Matter Lesion Disease on Brain. [ Clinical Dx w/ two positives and several IND's on the tests from Igenex ], Prior Dx of CFIDS/CEBV 1992, and FMS '93-'94 Diabetes*2 Dx 10/'08 Posts: 3581 | From SE Idaho | Registered: May 2006
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...Silverwolf here loping along in mah brain[can ah outrun this headache?].If I really tried to lope right now my paws'd get tangled!![[Eek!]](eek.gif)
-- a starting dose of 2 GRAMS?![[Smile]](smile.gif)
!!!
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