just wanted to drop a line....my LLMD happens to think that igenex is too sensitive. Unsure how i feel about that...
Anyway, he tested my blood through Stonybrook and again just for kicks, through quest. Stonybrook came up positive and and quest of course neg for the 4th time!
He feels very confident in stonybrook.....anyone else have tests there??
warm wishes heidi
Posts: 36 | From new york | Registered: Jul 2006
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posted
It's definitely better than QUEST! But not as good as Igenex. HOWEVER, you got the result you needed!
welcome, Lymie!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96223 | From Texas | Registered: Feb 2001
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
Yep...TUTU is right again...you win tex...
I tested negative early in my battle with stonybrook More recently I tested positive IGG and IGM...
I don't understand why your llmd prefers one over the other or any test at all....???
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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Ann-OH
Frequent Contributor (5K+ posts)
Member # 2020
posted
Stonybrook [a part of the State University of NY (SUNY) at Stonybrook, Long Island] is and has been one of the best labs for Lyme disease testing.
Their tick research group is also great.
Wish I could say the same for their Lyme disease clinic. :-(
NP40
Frequent Contributor (1K+ posts)
Member # 6711
posted
My son pulled a positive out of Stonybrook as well. I think some doc's use them because insurance will cover it, where Igenex may not be covered.
Posts: 1632 | From Northern Wisconsin | Registered: Jan 2005
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
I heard the lyme clinic at Stonybrook closed. Is this true?
Posts: 1603 | From ny | Registered: Aug 2006
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
I have had my blood sent to Stonybrook from VA, so you don't have to be from NY.
As for the Lyme Clinic, there was someone who posted in the Seeking a Doctor Forum recently about going there and being very disappointed.
I think a few people had already mentioned that there was no such thing as a LLMD at Stonybrook, bu this person was determined to go there. Then afterwards posted that the doc was NOT Lyme Literate.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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tabbytamer
Frequent Contributor (1K+ posts)
Member # 3159
posted
One of the major labs used to send it out to Stonybrook.
Can't remember now if it was UniLab or Quest, or if Quest took over Unilab.
Anyway, the first WB ran on two of my sons ultimately went through Stonybrook via whatever lab is was as the major lab took Medicaid.
There was some reaction on a couple bands, but still not CDC positive.
Then the same son through IGeneX was packed with Indeterminates & positives.
Yeah...I finally feel 100% confident about Lyme. Not that I really was doubting before, but you know how hard this whole thing can be with all of the controversy playing on your mind!!
Anyway, I am not sure how to contact Stonybrook...My LLMD just happens to use them so he had all the paperwork and it was covered by my HMO!!
I would imagine that any doc could order the test though. Here is the link to the lab page:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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