posted
So my Doctor sent me for a sleep study. The results are in...it seems that I have a sleep disorder...I woke myself up 85+ times during my sleep. He won't treat me for Lymes now since the Lyme test was neg and he figured out why im dizzy, I have floaters, light & sound sensitivity, numbness & tingling in my arms..can't get out of bed, joint pain in shoulders & knees, breathing issues, headaches, neck aches, he wants me to go to a neurologist to discuss these migraines that I have been having....
Posts: 8 | From North Jersey | Registered: Sep 2006
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posted
jpres -- I have a sleep disorder too, sleep apnea. Woke up 187 times during the test. The problem is then they (doctors) blamed everything on this. Once it was treated with CPAP machine, I should be feeling "great" and "clear". It slowed down the eventual diagnosis of lyme disease.
So my point is one can have both, and doctors will stop when there is one diagnosis, but if symptoms do not clear within a day or two of using the CPAP, there's something else also going on.
Check out the newbies section of this to learn how ILADS LLMD's interpret Western Blot. My daughter is "negative" according to CDC criteria, but positive on some of the most critical bands -- 39 and 41.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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Vermont_Lymie
Frequent Contributor (1K+ posts)
Member # 9780
posted
jpres: My advice would be to see a LLMD; there can be false negatives on blood tests for lyme, and it is a clinical diagnosis. Check out the Newbies links for info on the ILADs guidelines. Seeing a LLMD might save you alot of time and suffering.
If you have lyme, and your symptoms sound suspicious, then you need to be treated for lyme. Sleep disorders are a common part of lyme symptoms, and being treated for sleep apnea will not help if lyme is the real problem.
Posts: 2557 | From home | Registered: Aug 2006
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Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
Have to see how you feel after Apnea treatment to see if it helps.
The same goes for Lyme once you see a LLMD.
Many of us went through the same process of ruling out other conditions to see how our symptoms responded.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
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