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I started having symptoms of lyme the first week of July (still officially undiagnosed). I have an appointment with an LLMD this thursday, if I start treatment soon thereafter is it still early enough that it should be taken care of, or am I looking at long term antibiotic treatment? At this point am I looking at a chronic condition? Basically what is the general outlook for someone in my situation (I'm pretty scared by this whole thing and an honest assesment by someone with some experience will help me.) Thanks, Kevin
Posts: 8 | From virginia | Registered: Oct 2006
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I agree with Lymetoo to research everything you can. You might even want to keep a notebook to keep track of what you are learning. Be as familiar as you can with the various treatment options, types of medicines, etc. Reading the posts on this board will help tremendously.
Keep in mind when reading that many on this board have had the disease for many years. If you have only had the disease since July, them most likely you aren't in the chronic stage yet and may not need the long term treatments. But it won't hurt you to be well informed.
Most likely you will be able to take oral antibiotics instead of IV but alot will depend on how severe your disease has progressed. Don't be afraid of the IV...it's really not too bad...I've been on it for 46 days with only 10 to go and I'm finally feeling really good. I'm so glad I did it.
Also, and this is THE MOST IMPORTANT THING, double check everything any doctor tells you including any LLMD. You have to be your own advocate and not take the any doctor's word until you've checked it out. I wish I had done this early on in my case...I would have been treated earlier.
For example, know what blood tests are being done and make sure they check for co-infections. Ask for copies of ALL blood work, even if it comes back normal. Keep a file. You may need to refer to it later to see your progress.
Document all your symptoms and when they occur. Keep a list of all medications, symptoms, etc. because with Lyme it's very easy to forget. It also helps the dr when it's already prepared for them.
Again...READ everything you can about this disease and the various means of treating. You need to understand and be able to communicate at their level.
And post any questions you have...you will be surprised at the responses you'll get. We're all here to help each other.
Karen
Posts: 154 | From Medford, NJ | Registered: Jun 2006
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Hi kl I am in the same boat as far as when symptoms started-first rash, then knee hurt-Did get on some doxy by end of July -but low dose & only for 21 days-
Glad to hear you are going to see an LLMD-this site is very helpful-read EVERYTHING-try not to let it frighten you..(easier said, I know...)
I recently consulted with a LLMD who ran blood work-(and is now retiring!)plan to resume doxy for 2 months at 400mg/day-Hoping that does the trick!
I can't (don't want to ) believe that everyone who gets LD becomes chronic-Remain proactive & try to stay positive..that will keep you healthier! Sue
Posts: 249 | From finger lakes, ny | Registered: Jul 2006
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