ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
What were your experiences with this? Potential for severe side effects worried me a bit. Taking it as part of a Babs protocol. You take 4 tabs at one time, then once each week you take 1 for 3 additional weeks.
Posts: 2276 | From NC | Registered: Oct 2000
| IP: Logged |
posted
I have been on lariam since late June. I started off with 5 pills at once and then 1 pill a week. After 6 weeks my dose was increased to a pill every 5 days, since I noticed babesia symptoms returning on the 6th day.
When I started lariam (5 pill at once), I got very sick. Mostly extreme (and I mean extreme)dizziness, nausea, sound hallucinations, and some vision hallucinations. I spend 4 days flat on my back in bed. After a week, I was feeling better I could get up and move around some. The hallucinations were also gone by then.
Now I have very few side-effects from lariam other than insomnia the night after taking the pill.
Lariam has been very effective against my babesia infections -- I have both microti and WA-1. Most of my symptoms are gone, and I am feeling better than I have in years.
Before lariam, I was unsuccessfully treated for babesia for 2 1/2 years (mepron, clyndamycin, flagyl, artemisimin).
If you already suffer from depression and/or anxiety, you should be very careful about taking lariam, since it is going to make it much worse.
Posts: 187 | From Washington, DC | Registered: Dec 2004
| IP: Logged |
ConnieMc
Frequent Contributor (1K+ posts)
Member # 191
posted
Thanks for the comments on this. The side effects seem a little scary but looks like it may pay off? Hope so. Think I will make sure to take this when my husband is around in case something happens.
Glad you saw improvement in your symptoms. My Babs seems to be my worst problem and I have relapsed several times. Would be nice to get it under more control. I am also taking pulsed courses of Mepron, Septra, Ketek and Art.
Thank you.
Posts: 2276 | From NC | Registered: Oct 2000
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/