sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
DLL- oh, I ain't that delicate. I didn't feel criticized at all. And I couldn't agree with you more about where the "power" is a the moment.
I'm just a big believer in the power of grass root organizing to CHANGE the balance of power. The ISDA lyme-guys use public financing for their research. So I look at that as a target. Because WE are the people agreeing OR NOT AGREEING to fund their research-- it is a point of vulnerability for them.
Dilly -(PS, Ali- way to go, lady with so much to deal with!!!)
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Oh wow!
It's hard to type when I have my face up to the screen... kissing it! Lucky you.. my lips ain't big enough to reach right through the screen to your face!
YES!
Exactly what I need!!!
No one worry about junking up the posts. This stuff is EXACTLY what I need.
ALL comments about "dirt" is what I need. This is so great! Will you marry me?
Now.. there are LOTS of things we all could be doing.. true. Right now I am not debating that. For what I am doing.. I need this info you all are providing.
THANK YOU, THANK YOU, THANK YOU, THANK YOU!
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Ali.. if you stop now, I am going to have to ride my horse over there and whip up on you.
As soon as I get a horse that is!
Keep up the work. You are on the right track... LOTS of grand stuff! Don't stop now!!!
I've already forwarded your stuff. THANKS!!!!
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Well pooey.. I can't see the other recent posts to reply. Back in a minute! Duh me...
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Beverly...
It's been a long time. It's SO nice to see you!
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Hmmmm.. got several big "A"s here now.. Ok. Areneli..
You mentioned we may need several million dollars to do a class action.
Not to worry. I'm made of money. HA!
Ok.. actually... it may not cost us a nickle. Working on some good stuff.
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I love Texas! And the folks there. (MH, P). Good Chaos! Glad you and others are willing to help. ```````````````````````````````````````````
ConnieMc.. good advise. Will do.
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DocDave.. if I didn't respond to you yet.. just so you know.. I did contact them per your suggestion. Haven't heard back yet. Hoping to. Thanks!
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Nice to see BettyG.
You seem to have something I don't. The ability to organize to make work much easier. Yes.. good idea.
Would YOU be able to make an ongoing list.. ON THE BOARD only... to let others know who is digging into who's dirt?
I would.. but you are much better at it than I could ever think to be.
If possible... thanks! If not possible... please stick you head in a bucket of COLD water and don't lift it out till you change your mind... ok?
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Dilly...
Yes.. "Meanwhile, I think I'll start compiling an IDSA fact sheet of my own, will share it when complete in case anyone finds it useful..."
MOST helpful for MANY! None of us have time to tackle that project! We need to share it across the country... so VERY good idea.
If possible, good! If not possible... please see my suggestion for BettyG above!
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DLL..
Waving to you across the big blue!
Yes.. it's about power. Evil power!
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Truth..
VERY interesting! The dirt seems much deeper than I could have imagined. Scary! Keep up the good posts... PLEASE!
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Yo down there in the Cave..
You said.. "They aren't playing by the *rules*."
I hate to say it.. but you are, you are, you are,
rrr, rrrii, rrriiigggh, RIGHT!
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Lou.. Ali said.. "Thanks for the new toy, Lou!"
I thank you too!
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Dilly said .. "OUR taxpayer dollars are being spent on an effort to keep us from gettign well, and allowing many thousand others to get chronic. Stopping taxpayer dollars from going to a particular place- now that IS something that is possible to do."
Another grand idea! Yes.. you are right.
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ld fighter.. It is getting long in the day. Trying to absorb/understand the 2/3 thing. Am not getting it. MY fault. Can you help me on that?
If so, thanks.. If not, please see what I told BettyG and Dilly to do.
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TN letter writer..
"What advice does anyone out there have about what else I might do?"
Want my advise? Ok..
Go to Dr. J... and support him the best you can. Stay focused. Then hang here and be ready to join in together with as many folks as we can get. I know first hand.. these are evil things we are dealing with. The Bumsteere gang doesn't play by the rules. If they did, we'd be eating 'em for breakfast.
I've spent years one on one. Got no where. This dirty stuff is much bigger than me or any single person. We need an attorney (or God himself) to rattle their cages and grab them by the purse strings.. and shake some sense into them.
We need to be PRO-Active rather than RE-Active. Instead of running around trying to put out fires.. we need to mow them down with al our force.. then hold them down.. climb on their bellies... and tickle their feet till they scream "uncle".
Then we need to grab them by the ear.. or pinch their noses real hard... and tell them..
"That will be enough of that stuff".
Don't feel frustrated.. please. I think ALL of us know we MUST join forces and work together.
dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
double post
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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dontlikeliver
Frequent Contributor (1K+ posts)
Member # 4749
posted
quote:Originally posted by sometimesdilly: DLL- oh, I ain't that delicate. I didn't feel criticized at all. And I couldn't agree with you more about where the "power" is a the moment.
I'm just a big believer in the power of grass root organizing to CHANGE the balance of power. The ISDA lyme-guys use public financing for their research. So I look at that as a target. Because WE are the people agreeing OR NOT AGREEING to fund their research-- it is a point of vulnerability for them.
Dilly -(PS, Ali- way to go, lady with so much to deal with!!!)
I agree.
Posts: 2824 | From The Back of Beyond | Registered: Oct 2003
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Who wants to tackle these toads? In bold, below.
My theory has been the "scleroderma clinic" they have.. which is supposedly next to the Lyme clinic...
Well, my thought is.. it ain't scleroderma. It's Lyme.. the chronic form.. ACA. They look exactly the same!!!
Ironicly, they treat for Lyme for too short of a time.. then they open a sclerodermic clinic next door to further mess with those they misdiagnosed or under treated with early Lyme.
They treat the scleroderma with STEROIDS.. and give the people a 5 year life expectency.. IF that!
Grrrrrrrrrrrrrrr.....
Of course this is MY opinion...
JERKS!
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1: Arthritis Rheum. 1993 Nov;36(11)
Arthritis Rheum. 1993 Nov;36(11):1489-92.
"Chronic Lyme disease" as the incorrect diagnosis in patients with fibromyalgia.
Hsu VM, Patella SJ, Sigal LH.
Department of Medicine, University of Medicine and Dentistry of New Jersey-
Robert Wood Johnson Medical School, New Brunswick 08903-0019.
OBJECTIVE. To evaluate a large number of patients referred with persistent symptoms thought to represent chronic Lyme disease.
METHODS. We retrospectively reviewed the charts of nearly 800 patients referred with persisting nonspecific musculoskeletal and/or neurologic symptoms thought to represent chronic Lyme disease.
RESULTS. Seventy-seven patients were found to have fibromyalgia, not ongoing Lyme disease, as the explanation of their chronic symptoms. Many had received multiple courses of antibiotic therapy for symptoms of fibromyalgia mistakenly attributed to chronic Lyme disease.
No patient reported permanent and/or total resolution of fibromyalgia symptoms following antibiotic therapy. Appropriate therapy for fibromyalgia in those who remained compliant, however, was often effective in improving some if not all of the chronic symptoms.
CONCLUSION. Fibromyalgia is a treatable and potentially curable disorder, and should be considered in the evaluation of patients with "refractory Lyme disease."
I loved your remarks and believe everything you said to be true. And I believe that anything we do as a group is better done away from this message board.
I appreciate your advice about my doc. I WILL DO because he's just incredible and I don't think he is just sitting around letting what happened to him change him or his true regard for his patients.
I am preparing myself and I will be ready to do any and everything to stop these tax dollar funded fat cats from dictating my medical treatment.
If it takes a village to raise a child, it takes thousands of raving lymies to raise awareness that a group of short sighted ducktors are
mishandling federal funds and denying care to some of the most vulnerable citizens in the US of A.
I'm a child of the sixties and I know how to march and I know how to protest and I know how to influence the political system....I'll just do it from my Hoverround this time.
Any other ole protestors around this board?
-------------------- DISCLAIMER: No information presented above should be considered medical advice or take the place of advice given by a medical professional. Links to other sites are provided merely for ease of research. Posts: 287 | From Tennessee | Registered: Sep 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Google "2006 ISDA lyme guidelines" and this thread comes up in the top 10 hits. Labeled "Dirt and war... etc."
Not great.
Dilly
[ 14. October 2006, 08:59 AM: Message edited by: sometimesdilly ]
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Any chronic lymies have a need for any of these drugs?
Pfizer Has Never Been Stronger, Steere Tells Shareholders
Company's Record Over the Past Decade and Warner-Lambert Combination Will 'Uniquely Equip' Pfizer to Continue 'Legacy of Achievement'
NEW YORK, April 27 /PRNewswire/ -- Pfizer Inc (NYSE: PFE) has strong fundamentals, and is advancing in every area, William C. Steere, Jr., chairman and chief executive officer, said today at the company's 2000 Annual Meeting of Shareholders.
Speaking to a crowd of 2,000 shareholders and guests at the Grand Hyatt hotel in New York City, Mr. Steere said, "Nineteen ninety-nine -- the year in which we celebrated our 150th year of operation -- crowned a decade of extraordinary achievement for Pfizer."
During that time, he noted, prescription pharmaceutical revenue increased five-fold, R&D expenditures increased six-fold, reported net income increased four-fold and the price of the company's stock increased by 10-fold.
"Throughout every year of the last decade," he said, "the growth of our pharmaceutical revenue has surpassed that of the industry, and in 1999, it more than doubled the industry rate.
"For the 50th year in a row," he continued, "Pfizer sales increased, and in 1999, our total revenues topped $16.2 billion, a 20-percent increase over the previous year."
"Pfizer is advancing in every area," Mr. Steere said. "Our fundamentals are strong. Our pipeline is broad and deep, and our field forces are second to none."
"Our prospects have never been brighter and our future has never been more promising," he said. "In 1999, Pfizer celebrated 150 years of tremendous growth and achievement.
I believe that in the next 150 years, we will achieve even more. By joining forces with Warner-Lambert, we will create a company that is uniquely equipped to carry Pfizer's proud legacy of achievement into the next millennium."
Henry A. McKinnell, Ph.D., president and chief operating officer of Pfizer Inc and president of Pfizer Pharmaceuticals Group, and John F. Niblack, Ph.D., vice chairman of Pfizer Inc, also addressed the meeting.
"Within our worldwide pharmaceutical segment," Dr. McKinnell said, "new Pfizer products, established in-line products and co-promoted products helped increase total revenues by 22 percent in 1999.
Ten key products, representing about 80 percent of our pharmaceutical revenues, together grew by 31 percent."
Nine of those 10 key products, he noted, have significant remaining patent protection in the U.S., with expirations ranging from 2004 through 2013.
The Consumer Health Care Group saw sales increase by 7 percent during 1999, he said. "In addition to providing convenient treatment, self-medication can extend the commercial life of a pharmaceutical well beyond its patent expiration," he explained.
Dr. McKinnell also cited the Animal Health Group as, "the most active and most productive animal health operation in the global industry, with research in over a dozen therapeutic areas for both livestock and companion animals."
He said that Pfizer has "a growing pipeline of genetically engineered vaccines, gene-therapy products and novel, convenient-to-use medications for animals that could dramatically expand the standard of care and the overall market for companion animals and livestock."
Regarding the pending merger with Warner-Lambert, Dr. McKinnell said, "The merger brings together the industry's two fastest-growing major companies.
Together, on a pro-forma basis for 1999, the 'new Pfizer' had nearly $28 billion in combined revenues, with nearly $21 billion in prescription pharmaceutical sales."
With Pfizer by itself already solidly within the top ranks of the industry in pharmaceutical sales, the combination with Warner-Lambert will propel Pfizer well ahead of the rest of the industry, he said.
Pfizer was the 14th largest company in the world in total pharmaceutical sales in 1990.
"But it is important to emphasize that the 'new Pfizer' will be not just bigger, but better," he said.
"Our already superior growth prospects will be augmented by an enhanced global reach and by immediate opportunities from our complementary product lines."
The combined companies will have 13 pharmaceutical products with sales in excess of $500 million each, eight with more than $1 billion in sales in 1999 and nine products which are number one in their therapeutic category, he said.
The addition of the Warner-Lambert consumer organization will result in "a formidable platform for prescription to over-the-counter switches," he added.
"Our planning for the integration of Pfizer and Warner-Lambert has focused on three essential tasks," he said.
"Maximizing our new product opportunities to increase our sales, eliminating redundancies and adopting best practices to reduce our costs, and building a world-class organization capable of strong and sustained growth."
Dr. McKinnell concluded, "It is clear that the merger provides substantial benefits to shareholders of both companies in terms of improved financial returns and accelerated earnings growth.
Besides giving us a broad, young portfolio, the merger should yield significant cost savings going forward.
These cost savings alone will accelerate our projected compounded annual net income growth through 2002 to at least 25 percent, excluding one-time transition and restructuring charges.
The result: A truly unique business combination in which the best -- Pfizer and Warner-Lambert -- get better."
Dr. Niblack highlighted the seven key products in the late-stage of the Pfizer development pipeline and discussed the integration of Warner-Lambert R&D into Pfizer.
Tikosyn, a treatment for atrial fibrillation (AF), was launched during the first quarter of 2000, and was the first new oral treatment for AF approved for use in the U.S. in the past 10 years.
"It is an excellent therapeutic advance for highly symptomatic AF patients and is an important addition to our already substantial cardiovascular product portfolio," Dr. Niblack said.
Relpax, for the treatment of migraine headache, received an approvable letter from the U.S. Food and Drug Administration (FDA) late last year, he said.
"Clinical data show that within one hour of taking an oral dose of Relpax, up to 40 percent of patients with moderate or severe migraine experience significant or complete headache relief," Dr. Niblack said "Many see relief within 30 minutes."
The company is about to file new data and analyses called for by FDA in the approvable letter, and expects to engage in final discussions over labeling in the Summer.
"Last month we re-submitted our new drug application (NDA) for oral Zeldox," Dr. Niblack said, explaining that FDA had wanted an additional study done comparing Zeldox with other antipsychotic drugs.
"Zeldox is effective across its dose range in treating a broad spectrum of psychotic symptoms," he said, "and has been shown to be effective in long-term disease management.
In contrast to some of the other newer antipsychotic agents, Zeldox causes little to no weight gain and has a favorable effect on cholesterol and triglyceride levels."
The company plans to file an NDA for Vfend, for the treatment of serious fungal infections, this year, Dr. Niblack said.
"Vfend will provide new hope for patients who contract serious life-threatening fungal infections such as invasive aspergillosis, resistant candidiasis and infections of the brain and eye."
Inhaled insulin, a new technology for the treatment of diabetes Pfizer is developing in collaboration with Aventis and Inhale Therapeutic Systems, is well along in clinical development and an NDA filing with FDA is expected next year, Dr. Niblack said.
"Our clinical data show that when used to treat insulin-dependent or Type 1 diabetes, this patient-friendly insulin delivery system is as effective as subcutaneous injections of short-acting insulin," he said.
Pfizer is co-developing valdecoxib, a second-generation cyclo-oxygenase 2 (COX-2) inhibitor for the treatment of osteoarthritis, rheumatoid arthritis and pain, with Pharmacia Corporation, which is scheduled to file an NDA for the drug near the end of this year, Dr. Niblack said.
The first COX-2 inhibitor, Celebrex, was discovered by Pharmacia's Searle unit, which co-promotes the drug with Pfizer.
Darifenacin is a new Pfizer agent for the treatment of overactive bladder, which afflicts more than 50 million people in the U.S., Europe and Japan.
Studies are underway at 50 centers in Europe, with more to begin in the U.S. later this year, Dr. Niblack said.
In addition to these advanced candidates, he said, "Pfizer has a full pipeline of compounds in earlier stages of clinical development and in discovery.
We also have research projects underway to explore new uses for our marketed drugs, to generate new product formulations, to investigate new patient populations (such as pediatrics) and to develop convenient new product combinations."
After the integration of Warner-Lambert's R&D organization, Pfizer Global Research & Development will be "the largest pharmaceutical research and development operation in the world," he said, "with approximately 12,000 employees, facilities in more than 20 countries, more than 130 experimental drugs in development and a budget of some $4.7 billion."
"When the integration is completed," Dr. Niblack said, "the combination of our two great research operations will clearly position us as one of the premier, privately funded biomedical research organizations in the world.
It's an exciting prospect. I expect that the new Pfizer Global R&D organization will set a new standard for quality and productivity for our industry."
SOURCE Pfizer Inc
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Sorry Dilly..
I have no clue what you are talking about. MY fault.
First of all... I don't "google". I tried to Yahoo.. but can't figure out what you are talking about.
Also.. I don't PM.
Did you mean to put a link in your post? Or an article?
Can you make what you are talking about clearer? Please?
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
TinCup-
about google. you may not use google as a search engine, but LOTS of folks do.
right now, ANYONE who wants to find information of any sort about the ISDA guidelines who uses google to search, who types in "2006 IDSA Guidelines" for a search sees THIS THREAD listed in the top ten links of where to go.
I can't imagine how that is desirable, and anyone posting here should at least be made aware of the possible scrutiny.
Given the circumstances, I think it is a really good idea to keep work like this off the board and someplace private that those working on it can access independently--but no-one else. For everyone's sake. I know how to set that up and can do it quickly.
I'm not going to post here about how to do that, for obvious reasons.
Others have volunteered to help with the fact sheet I mentioned, and we are going to collaborate in the way I'm mentioning. I'll be happy to help set up a private way for you and others to work together on the conflict-of-interest project so that everyone can see what others have done.
I can't PM you cause you don't have it. But I assume you can PM me if you want, so just let me know if you want to pursue that option.
Dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Dilly...
You said..
"right now, ANYONE who wants to find information of any sort about the ISDA guidelines who uses google to search, who types in "2006 IDSA Guidelines" for a search sees THIS THREAD listed in the top ten links of where to go."
You may see this as a bad thing.. but actually.. isn't it a good thing?
Don't we want folks to know there are BIG time problems with those guidlines... and that folks who have been hurt by using ones by the same group of nit wits in the past have been harmed?
And don't we want folks.. including the nit wits to know we aren't going away?
Soooooooo.. if it is coming up on google.. that's pretty cool... yes? And a lot cheaper than hiring a sky writer with a plane to send out the message.
I'm not going to worry about the Worm and others right now. We are trying to help folks so they won't fall into the same trap that TONS of others have fallen into. And MAYBE if new folks are directed here by that google thing... they will get help? BUT...
Certainly if you want to work behind the scenes.. feel free to do so.
After all these years.. I want folks to KNOW the scoop.. and at least be able to see there is ANOTHER side to Lyme diagnosis and treatment.
Guess google is giving us free advertising!
PS.. No.. if you don't allow incoming PM's.. you can't send outgoing ones. Sorry!
sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
TinCup-
Yes of course I want people to understand about what is going on-- that's why I'm spending so much time suggesting ways to DO JUST THAT- in a informed way.
As for the rest. NO, I do NOT think it is a good thing for people who don't have a clue to parachute into the lyme world and by way of introduction, read a post that talks about digging up dirt on individuals and declaring a war.
Language matters, and that isn't the language I would choose to discuss the guidelines with as yet uninformed people i hoped to sway to to my side.
And of course I'm not worried about folk friendly to the IDSA monitoring the board- I assume that is the case. I AM concerned my privacy here on the board and that of others being invaded by a host of potential trolls and worse- google isn't a door, its a floodgate.
Last, I'm baffled that you wouldn't bother to check out what alternatives might exist to make some of this work collaborative AND private. Is that fair to the people you are asking to help?
For myself, I've deleted as many of my posts from this thread as my cooked brain could find, and am removing myself from this particular effort. I just am very uncomfortable about the process.
Since the goal of challenging the ISDA guidelines is so critical, I'm going to be working very hard "behind the scene" and very much in front of the scene, on this board and as many places and with as many people as I can find elsewhere.
Now its really time for bed.
Dilly
[ 14. October 2006, 08:49 AM: Message edited by: sometimesdilly ]
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bettyg
Unregistered
posted
Tincup, I'll be back around noonish when I can spend some time reading this more; skimmed it briefly now and saw my name mentioned several times.
TC, awhile back one of our lymenetters pointed out there was a google post on lymenet. So I checked it out, and it was a roll call with nicknames and real names galore. I wasn't aware that type of thing existed.
Perhaps this is what Dilly was trying to say to you since so many of you WISH TO BE ANONYMOUS! later gals, Bettyg
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Tincup, you and other ``activists'' need to be careful out there. Well, maybe we all do.
It appears that Elena Cook - the author of the article about the Steere camp and the Epidemic Intelligence Service (EIS) which is referred to elsewhere in this thread - AN ARTICLE WHICH EVERYONE SHOULD READ - was arrested at her home in the UK early this summer!
quote:Statement regarding my Detention by Elena Cook 7 July 2006
Many of my colleagues in the Lyme movement know that I have been researching the conflicts of interest of the "Steere camp"* of Lyme doctors, especially as regards their connections with the US biowarfare establishment, for some time. I have been very open about this work and written about my findings, and those of others, in the public domain (see list of links below). As a result of this work I have become the target of literally thousands of libellous and hate-filled messages placed anonymously on the internet by a tiny handful of individuals associated with the Steere camp........
.........I was involved in discussions with others in the Lyme movement about the use of darkfield microscopy for rapid detection of the Lyme disease bacteria in a simple blood smear [sound a little like the Bowen test?]. This technique has been used with apparent success by a number of European doctors, but is vehemently ridiculed by the Steere camp....
...Around this time both I and several colleagues began to experience severe problems with our communications. These included problems with land and mobile phones, and computer hacking. I had my firewall logs examined by two separate IT experts who both found evidence that the attempts were conducted by machines registered to the US Navy, Marine Corps, and Defense Intelligence Agency. My colleagues found the same sources in their firewalls too. One friend found that her dial-up account was being targeted by a US military computer every half hour on the half hour. When she tried to time her internet sessions to avoid these times, she then found that the timing, though still half-hourly, was altered to fit in with the times she was logging in.
...Finally in late April the harassment culminated with a threat placed on an internet Lyme group directed at my children. The same day I reported it to the police, a close friend in England had to leap out of the way to avoid an oncoming car, speeding the wrong way down a pedestrianised lane in her local shopping precinct.
On 8 May 2006, three police officers, two doctors, two social workers and a community psychiatric nurse arrived without warning at my door. They had a warrant for my arrest......
So, do you think perhaps the Steerites are a little testy about their deceitful and illicit associations becoming public knowledge in the Lyme community?
It is one thing to be ignored - another thing to be attacked. It is actually a good sign that some toes are getting stepped on, but I say again - be careful out there.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Truthfinder
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posted
Ali, there is this guy who was part of the ``Host Committee'' for the Fiftieth Anniversary Celebration in 2001 of - you guessed it - the Epidemic Intelligence Service (EIS), the sub-group of the CDC to which many of the Steerites belong:
Allen C. Steere, Jr., M.D. New England Medical Center Wellesley, Mass.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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posted
It's so hard for me to understand this whole dispute with Lyme treatment. It's hard to figure out why anyone would try to keep someone from getting the treatment they need to get well.
Antibiotics are used long term for other things beside Lyme and no one seems to have a problem with it. My kids were on antibiotics for years for acne. I read that it can take months to years of antibiotics to treat a mycoplasma infection.
It is so cruel to have to be so sick and to have to fight so hard to get treatment. I've lost 20 years of my life because my doctors were to stupid to figure out what was wrong with me. I would really like to go after them and make them accountable!!
This whole thing really sucks!!
Kathy
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I think I'd kind of prefer to think that "the love of money is the route of all evil". (thanks PITA ) All that EIS stuff scares the bejeepers out of me. I don't think I can even go there in my head right now. It freaks me out.
I think the primary motivation for a cover-up is greed or self-preservation. Usually you can get to the source by following the money. The key questions being, who stands to gain the most and who stands to lose the most.
If there is a in fact a connection between Allen Steere and William C. Steere, Jr, I think that could explain a lot of motivation right there.
Pfizer's drugs are all designed to treat symptoms of chronic lyme. The IDSA recommended treatment for Lyme is short dose ABX with symptomatic treatment with Pfizer type drugs into infinity.
I think we should find a way to check into stock ownership of all these poopie-heads.
[ 15. October 2006, 09:37 AM: Message edited by: AliG ]
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Hey, Ali - sorry, but this has to do with the dratted EIS again, but speaking of Pfizer.....
``The CDC Foundation is working with EIS to increase the number of international officers in each EIS class and is seeking support from foundations, corporations and individuals to fund the larger enrollment and provide stipends for EIS students.''
Here were some of the 2001 donors contributing to this fund:
Chairman's Circle ($50,000+ donations)
Johnson & Johnson New Brunswick, N.J.
The Robert Wood Johnson Foundation Princeton, N.J.
Marcus Foundation Atlanta, Ga.
Pfizer Inc., US Pharmaceuticals Whitehouse Station, N.J.
Wyeth-Ayerst Research & Wyeth Lederle Vaccines Radnor, Pa.
Champions ($25,000+ donations)
Delta Airlines Inc Atlanta, Ga.
TRW Cleveland, Ohio
UPS Foundation Atlanta, Ga.
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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Truthfinder
Frequent Contributor (1K+ posts)
Member # 8512
posted
Oh, and at the risk of being a PITA.......the saying is:
``THE LOVE OF money is the root of all evil''. Money is just a tool, just like computers, cars, stoves, guns, and belt-sanders. But people will always find ways to misuse these tools or be careless enough to cause injury to themselves or others.
Tracy
-------------------- Tracy .... Prayers for the Lyme Community - every day at 6 p.m. Pacific Time and 9 p.m. Eastern Time � just take a few moments to say a prayer wherever you are�. Posts: 2966 | From Colorado | Registered: Dec 2005
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
"Scenario 2: Why would we put a lot of work and resources to establishing an ethics committee so you could put your name on a paper?
A CDC investigator is assigned as a consultant in a developing country. Recognizing the public health benefits of an ethics committee, the investigator wants to recommend to the Ministry of Health (MOH) that such a committee be established.
However, the MOH appears unwilling to invest the resources to form a committee. What should the investigator tell the MOH staff to persuade them to establish an ethic committee?
Most likely, the MOH already has an idea of what the public health benefits would be, but the investigator would do well to reiterate these benefits, e.g., improve research practices, better cooperation between investigators and research subjects, improved international cooperation.
These benefits should be described in detail, as well as any additional long-term benefits, what the processes and requirements are for forming a committee, and the kind of resources needed.
The MOH may find that it is more feasible than they thought. It may help to provide specific examples of the benefits and experiences from other countries.
An additional consideration for the MOH is that, from CDC perspective, the investigator is limited as to the types of activities he or she can be involved in, particularly research involving human subjects. Some of these restrictions may be overcome if the research can be reviewed and approved by a local ethics committee and the CDC IRB. "
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
OK Tracy, You're a PITA
Dilly, If you would like to try to put my gobbledygoop in some sort of organized form on your wiki. That's fine with me.
My brain is very disorganized right now and I'm all over the place with research. I keep getting distracted & going off on tangents. (In case, noone has noticed )
I printed out Tincups request and I've scribbled all over it. I think I need to write up a method for myself with research links, so I know what I've done already.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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sometimesdilly
Frequent Contributor (1K+ posts)
Member # 9982
posted
Because its you, Malarone buddy Ali-
the two Steere's you keep bring up are supremely unlikely to be related. They are from different parts of the country, are of the same generation- a handful of years apart in age-- and both are Juniors. If they were even as close as cousins, one would be a III, not a Junior.
Take care- the truths to be found are damning enough... Dilly
Posts: 2507 | From lost in the maze | Registered: Aug 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Cave said..
"But then I have to admit that maybe there is a plan in tinny's mind (or others) that I'm not aware of. Probably."
Oh Cave, you know me all too well, tee hee hee.
Keep up the good work everyone! And know I appreciate what you are doing so BERRY MUSH!
And to those who are emailing me info... GOOD WORK!
posted
Sometimes, it may help to follow the money. On Tuesday, Yale School of Medicine received $57 million Clinical Translational Science Award (CTSA) from NIH according to www.yale.edu.
Interestingly, 4 of our last 6 Presidents have been graduates of Yale. Current and former President Bush are members of Yale's Skull & Bones Society. So is John Kerry. I understand that a number of major law firms on Wall Street and in Washington D.C. were started by Skull & bones members.
This may not have anything to do with anything, but it seems creepy.
Posts: 159 | From Ecuador | Registered: Apr 2006
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bettyg
Unregistered
posted
LDFIGHTER,
quoting TINCUP... Nice to see BettyG.
You seem to have something I don't. The ability to organize to make work much easier. Yes.. good idea.
Would YOU be able to make an ongoing list.. ON THE BOARD only... to let others know who is digging into who's dirt?
I would.. but you are much better at it than I could ever think to be.
If possible... thanks! If not possible... please stick you head in a bucket of COLD water and don't lift it out till you change your mind... ok? ``````````````````````````````````````````````` Dilly... Yes.. "Meanwhile, I think I'll start compiling an IDSA fact sheet of my own, will share it when complete in case anyone finds it useful..."
MOST helpful for MANY! None of us have time to tackle that project! We need to share it across the country... so VERY good idea.
If possible, good! If not possible... please see my suggestion for BettyG above! ********************************
LDfigter, would you have time to organize an online list for Tincup of which names in TC's long list of folks are being researched and BY WHOM?
I do NOT have the time; NO ENERGY; COMPLETE FATIGUE is what I've been going thru since July and it's worse now.
I can't take anything more on than what I have right now ... sending newbie lnks/advise to them upon arrival, helping them get LLMDs in their state, and helping on the board plus all the PMs they send me.
Dilly edited her post, and will NOT be working on this project; she'll be doing something else.
So sorry Tincup, but I have 4-6 legislative letters to write and they are important too!
I've routing you all on from my corner of the world. Bettyg
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Betty G..
Didn't know you were feeling so poorly!!! Had I known I wouldn't have bothered you.
Oh.. by the way.. do take your head out of the cold bucket of water. You are excused from duty for now.
Feel better soon!!! If I can do anything for you.. just ask. OK?
Hey pig..
You LIKE being called pig? I hope so! Or do you prefer your full given name.. pigwit?
Or .. ok.. now I AM laughing.. would you prefer sssssuuuuuuuuueeeeeeeeeee?
Sorry.. sometimes I can't help myself. You can take the girl off the farm.. but you can't take the farm out of the girl.
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
To all who have shared and researched...
Just so you know. The info has been sent to several others who needed it to use as they see fit.
As well, I am working day and night using your work to support this work I am doing. I'm ALMOST done with a project that has literally taking me weeks to put together. (About 20 pages which need condensing to about 5.) Have other pages to develop too that should go far and wide.
quote:Originally posted by Tincup: I am officially declaring war on ducks and duck motels!
NO MORE MR. NICE GUY!
We MUST start working together.. ASAP!
Some folks with Lyme are already feeling the effects of the latest IDSA guidelines.. and are unable to refill prescriptions they desperately need. You could be next.
By the way.. the CDC has just posted the IDSA guidelines on their web site.
Now more folks will end up suffering.. LOTS more folks.. because to "have Lyme" now.. the doctors must see a rash... and if they don't.. you need to test positive on both ELISA and Western Blot to get a maximum of 28 days treatment... IF you get that.
ENOUGH OF THE INSANITY! ENOUGH OF THE ARROGANCE! ENOUGH OF THE IDIOTS! ENOUGH OF THE EVIL! ENOUGH OF THE MONOPOLY ON OUR HEALTH CARE!
We want dirt on any of the following groups/people... and any conflicts of interest, patents they have, connections with insurance... ANYTHING you can share or dig up. I am furiously writing and researching.. and compiling the information... and could use your help.
Either email me or post your info here... please. It will be sent to the proper authorities.. for sure.
I appreciate the help, more than you will ever know... as I am worn down and still trying to push as hard as I can.
Here is a list of the first line of ducks and duck motels I am requesting help with.. if you please.
The IDSA
Gary P. Wormser
Raymond J. Dattwyler
Eugene D. Shapiro
John J. Halperin
Allen C. Steere
Mark S. Klempner
Peter J. Krause
Johan S. Bakken
Franc Strle
Gerold Stanek
Linda Bockenstedt
Durland Fish
J. Stephen Dumler
Robert B. Nadelman
Divisions of Infectious Diseases and Allergy, Immunology, and Rheumatology, Department of Medicine, New York Medical College, Valhalla, and New York University School of Medicine, New York, New York
Atlantic Neuroscience Institute, Summit, New Jersey
Departments of Pediatrics and Epidemiology and Public Health and Section of Rheumatology, Department of Medicine, Yale University School of Medicine, New Haven, and Department of Pediatrics, University of Connecticut School of Medicine and Connecticut Children's Medical Center, Hartford
Division of Rheumatology, Allergy, and Immunology, Massachusetts General Hospital, Harvard Medical School, and Boston University School of Medicine and Boston Medical Center, Boston, Massachusetts
Section of Infectious Diseases, St. Luke's Hospital, Duluth, Minnesota
Division of Medical Microbiology, Department of Pathology, The Johns Hopkins Medical Institutions, Baltimore, Maryland
Department of Infectious Diseases, University Medical Center, Ljubljana, Slovenia; and Medical University of Vienna, Vienna, Austria
Again.. thank you!
You are right I just got dined!!!!!!!!
I guess my next step ROB A PHARMACY for my MEDICIAN welcome to America
-------------------- I feel like their's corruption with some Doctors about lyme disease Posts: 23 | From Westchester NY | Registered: Oct 2006
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Will you be able to share with us your plans for this info at some point in the future? I know you can't yet. My hubby thinks we should make copies of all the dirt articles to send to all of our Congressmen(including the articles by Elena Cook) I suggested that we might want to send them out to as many investigative reporters as possible and see if any of them bite. The injustice must be made not just public, but truly of high profile visibility. Good luck with your project!!! Suzy sorry I haven't been of any help, daughter's not doing so well and I'm out on short term disability at the moment, but I am trying to read every day or so to keep up with what's going on(guess that's called "lurking"- sounds so sinister)Hopefully, I can be more active in the future.
Posts: 260 | From Virginia | Registered: Jul 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey Suzy-Q..
So sorry to hear of both you and your daughter being down. It breaks my heart. Anything we can do to help? Do let me know... ok?
Tell your hubby I like him... and his ideas! VERY much!!! If he were here right now...
I'd share my special jar of okra pickles with him. Maybe? Hmmmmm... Ok.. he can have ONE!
If you or anyone would like to use this information posted here.. may I suggest..
1. ALWAYS.. without a doubt.. DOUBLE check all information before it is used for any purpose. ALWAYS have at LEAST 2 dependable sources... better to have 4-5 if possible.
2. Don't worry about intruding on what I need the info for.. or using it while leaving me behind in the dust. By no means. GO FOR IT!
I am using it right now for back up in my research.. because I need documentation before pointing BIG fingers. Others are using it for other reasons I am not privy to. So please help yourself.
3. No matter what.. always follow rule #1.
`````````````````````````````````````````````
You said..
"I suggested that we might want to send them out to as many investigative reporters as possible and see if any of them bite. The injustice must be made not just public, but truly of high profile visibility."
When I am done with my okra.. I will post a new post about what might be done to help us with the Lyme situation.. or something to that effect. Please watch for it. Due to the hour.. I may wait till tomorrow... very tired now.
I will mention now that I've learned we should make noise.. but.. we need to be careful how we do it. YEARS ago folks went to a big news show.. and the people there did investigate an were ready to report. We didn't know they were "connected" with the dirty dogs at the time.
Turned out they had to threaten to sue to prevent negative stuff that the dirty ones were spewing at the time.
So it CAN backfire since the dogs don't play fair. We don't want that to happen.. for sure. It is a touchy thing.. and I am not even comfortable with it all.
In other words.. I've learned MY lesson the hard way. I find it is better to discuss plans with those of like mind.. then work out plans with the folks able/experienced to do that specific thing.
Again, try to look for my post when you have a chance. Big meeting upcoming.. step one.
In the meantime.. PLEASE.. you and anyone reading this...
DON'T wait on me.. and don't think I am trying to stop folks from going about doing what they feel may help the situation.
I am just trying to gather anyone who may want to work together to accomplish our goals. No one person can do it alone.. so the more the merrier. Plus.. we don't have time or energy to be duplicating efforts either. I know I don't.
Do let me know how you are doing.. ok? I hope you all are MUCH better real soon.
Well, I know this is going to sound corny, but I just keep thinking how great it would be if someone like Woodward & Bernstein got hold of the Lyme story and exposed the "dogs." I also have a fantasy of some author, like Robin Cook, who writes medical thrillers, writing a novel based on the truths and intrigue of Lyme that would bring attention to the facts. But don't worry, I won't send out any info indisrciminately, and unfortunately, I don't have any contacts with any of the above anyway.
My hubby adores pickles!! You might want to hide them or put them under lock and key!
As far as daughter & I are concerned, we are hanging in there. Nothing about this disease is easy, especially when you are dealing with teenagers. Thanks for your concern.
Keep fighting the good fight. You are my hero!!
Suzy
Posts: 260 | From Virginia | Registered: Jul 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey Dilly girl..
Were you and your behind the scenes friends able to do the summary.. in plain English.. of the IDSA guidelines that you mentioned you would do previously?
Not trying to rush you.. not at all... but it would be VERY helpful to have... for many folks.. here and elsewhere. I don't want to ask others to work on it if you are almost done.
I've already contacted the states reps, from top to bottom.. and the media.. and many others.. but it would be nice to use the simple form to explain it in simpler terms to other folks we are contacting.
If you need help.. do lettuce know. Ok?
Thanks for trying... and again.. I'm not trying to rush you.. just wanting to know where we are on our progress meter.
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