posted
The more I read, the more I realize how these little bugs can mess up our brains...
If hell does exist I was probably there last night. I had a panic attack/herx that just wouldn't go away 1 hour, 2 hour, 3 hour, it was awful, when I awoke this morning it was still with me, it is gone now...
I know it was a lyme herx because i have experienced this before, it has never been so long and horrible though...
My face went red flush.. My neck felt swollen and stiff, I entered a dream like state where I had no control of my mind. Its like my mind and body were battling eachother while I was trapped in a state of fear and anxiety. I truely felt that I had lost my mind forever. I was so fatigued I couldn't move, and my eyelids felt like 20 pound bean bags.
What I described above was the first series of lyme symptoms that hit me... this happens every month or so, but nothing as bad as what happened last night.
I have really had enough of this. I'm considering stopping my biaxin and tinidazole treatment and going back on the herbs. I felt like crap on the herbs, but I never had a mental herx this terrible...
Even if I am killing of the bacteria scum, Its just not worth it, I never want to experience that again.
can anyone relate????? Posts: 170 | From Vancouver | Registered: Apr 2006
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posted
i experienced this with flagyl and tinidazole(not taken together), but by the second week after stopping them i realized i had a major break through, though i'm not cured.
best i recall, i've had hours-long panic attacks when not on abx, and that were, at the least, lyme-induced; if, at the time of my attacks i was taking herbal, or vit.-min. supps., its possible that they might have contributed to the intensity and/or duration of my panic attacks, but at the time, i was too ignorant, and not "tuned-in" to the effects of the infection(s) on me to identify their contribution, if any.
in one of his publications on lyme,one top llmd-psychciatrist, recognized by all, as such, mentioned hours-long panic attacks as being lyme-induced, as compared with panic attacks due to some other cause(s)which last for much, much shorter time period(s).
best to consult with your doc about temporarily stopping the tinidazole, and resuming at a later date.
posted
Flagyl did this to me too. It sure sounds like a big herx to me! Did you inform your LLMD? Stay strong because if you push though this, it does get better!
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lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
I agree up
zman
-------------------- I am not a doctor...opinions expressed are from personal experiences only and should never be viewed as coming from a healthcare provider. zman Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
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posted
I dont want to sound like a major wimp... but I don't think I could handle another big herx like that.. Hey, I could endure any sort of physical pain, but this is completely differen't. I felt like I lost my mind and I could never go back to normal... 3 hours of pure fear! But then again how am I to get better?? tinidazole/ flagyl is scary...
When I herxed on the herbs it definitely wasn't this bad...
JUST when I was starting to feel good again and regaining my energy this happened... Its a real pain in the @ss.
How often would you guys have this sort of mental episode??? Did it get better with time? How long on tinidazole or flagyl were doing?
I've been on antibiotics and mepron now for almost 6 months and I currently feel like I hit rock bottom, fatigue and (feeling like $$$t feelings) have all returned in max force.
I"m thinking of stopping my univeristy studies this year if this keeps up. Its just so hard to keep up the work load and deal with this at the same time.
sorry for being so negative hehe! Posts: 170 | From Vancouver | Registered: Apr 2006
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posted
Half the full dosage amount for tinidazole.
500mg Tinidazole 1000mg Biaxin
a day..
I had done 1000mg tinidazole earlier this summer for a month and did not experience a herx this bad. hmmmmmmm
Posts: 170 | From Vancouver | Registered: Apr 2006
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char
Frequent Contributor (1K+ posts)
Member # 8315
posted
How are you doin?
I have trouble handling more than 250 Tinizadole for more than 5 days. Had an even harder time with flagyl.
I start getting depressed and have to take a break.
1000mg sounds like a hefty dose. I'm not a dr, though.
Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
I was made to feel like a wimp when I was on here before and could not handle the high dosages others were taking.
SOME had said to just keep at it, if I had kept at it at the dose they were at, I would be dead.
I am no wimp, what I was was toxic with the lyme and babesia, so toxic that I had to start off with 75mgs of the biaxin. Even with this dose, I near died in the mind, it was horrific, I felt like I was IN a horror movie and I was the one about to be killed. It was so scary I wanted to quit all together. I swore each day
it was the last time I would take the antibiotics, but each day I took the antibiotics, because I felt better with them,
High dosing for some will kill them, so be careful. Work your way up if you have to. My LLMD said to start off slow if this happens, like what happened with you and work up.
I am though at a point now that the herxing is horrific, I am doing babesia meds, getting severe depression, but if I cut back, my breathing
suffers, and I am just about dead. I am seriously ill now and my body needs the high dose.
Maybe try cutting back, see how you do.
Trish
Posts: 1250 | From Canada | Registered: Aug 2004
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posted
It sounds like a Babesia herx to me. I got similar symptoms but not for hours and hours on art, mepron, and zith.
Posts: 293 | From healdsburg, ca , sonoma | Registered: Feb 2005
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I have had maybe ten, twenty of these episodes when I was on ketek and ceftin. They are terrifying. I also became irrationally moody / emotional. I am a psychologist, with both feet on the ground my whole life . . . so I can relate how wierd and scary it is because suddenly you feel you have lost your mind, and then what do you have?
So remember:
1. They will pass. 2. Many of us have had symptoms like this. 3. Figure out your own coping mechanisms as you go. 4. On the one hand, take as much medicine as your doctor prescribes and you can tolerate; on the other, be kind to yourself and talk to your doctor immediately if symptoms get too funky.
Like I have shared here before, after my first few herx's like this, I got an "arsenal" of medication to help, and worked very hard on my perspective (not easy when you are depressed and feel you've lost your mind).
I now believe there is no way to get around the herx's. Some of us will have funkier herx's than others.
However, I am out of a wheelchair and consulting part time again. HUGE steps, huge recovery. And I am only half way there.
Flagyl is making me a little crazy. So I pulse it. Taking breaks with that particular abx has become an iimportant coping strategy.
Good luck. Being this sick sucks, doesnt it.
Go to WildCondor's website and look at some of the herx's she went through. And she is doing great now.
-------------------- Jeff Posts: 533 | From CA | Registered: Mar 2006
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